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Re: Thank you!!
 
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Published: 18 y
 
This is a reply to # 760,911

Re: Thank you!!


and I still need more. Sorry, but this is better than any info I've had in YEARS. So his diet is typical teenage boy, minus sugar and red dyes and meat....he is not a fan of meats--which I totally support. We've had blood tests but I'm fairly certain not for that specifically. Can I just ask my doctor for this? We're a military family so maybe the doc can call in for the labs? And what doses for a child that weighs 80#? Your help is very appreciated. He was on meds for years but we made the family decision to wean him off, and he is clean with good liver function as of the last testing.
Interestingly enough as we moved from the west coast to the southern region his symptoms improved enough that we assaulted the medical team here. With no new info (of course).
Wondering....at birth he had supraventiculartaxicardia without blueness at any time. Is that the same as the oxidative stress? or similar to?

I appreciate the need for privacy here on curezone and rarely use my name for that reason, but Ben is really an anamoly (sp) and any help I can get I'll take, and am grateful for. We know that Ben is given to us to love and help and he is teaching everyone he touches new things about life and living. I, as his parent, want only to help him and this forum is most comfortable for me (thank you Humaworm). We really don't fit anywhere neatly, which is what we've come to know as a family. It's easier to 'know' than not and fit. I am happy to move my questions elsewhere if needed, but really appreciate any input.
Thanks again,
C
 

 
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