MY NIGHTMARE WITH DOCTORS!!
In 1999 I was bitten in a city park in Hanford, Ca.However I did not know about the bite on that night. Two days later I went to a Dermotologist with a rash I will never forget on my left arm. The P.A. removed what he said was part of an insect..gave me prednisone and steroid creme. That was the beginning of my nightmare, he said I think you will be just fine now! This is some kind of insect not sure what..but I dont think you need
Antibiotics , nor do I think we need to test this to find out what it is!!
( what other type of insect bores into your skin and had to be pulled out??, but a tick)
I moved and changed Drs..and I was becoming sicker all the time..I told of the bite and was told, oh well, nothing we can do now. Again they put me on steroids, as I was becoming allergic to everything and was continually breaking out with awful welps, you name it, it showed up on my face and body.
I finally decided to change Drs again, and finally in August of 2003, I was diagnosed with late term, chronic
lymes disease.
I have suffered with brain fogg, horrible arthritis, fibromyalgia, blurring of vision, inability to drive correctly at times, my joints at times ache so badly, I cannot handle it some mornings. The fatigue is on some days over whelming.
I have been on
Antibiotics for 2 1/2 months now, with only
a little improvement..and most of that has been with the brain fog..
I have suffered enormous depression, and had to go on anti depressants. my cabinet is full of drugs for this or that..
depending on my symtoms. I am currently on disability, and would like to return to my career, which scares me, as I am not sure I can handle it...did I mention I am my sole support?
Why is it, the Drs can get away with this, and we get to be sick for the rest of our lives. I am not young, at 55, we dont bounce back the same way. I do not blame the Drs for the bite, but for not providing the correct protocal when I initially sought help in 1999. The currect law protects the Dr..not me!! I have consulted 3 attnys, and get the same answers. This is unfair and unjust, and doesnt seem in the spirit of the law to me.
This disease has taken my good years I have left, and to boot Drs still will not listen in my area..even our health
dept denies the disease in our area.
We have formed a small support group,and try to help each other, as we are scared about our futures on a daily basis.
I read Amy Tan, the author has Lymes Disease, I am hoping she might want to help get the word out about this awful
disease..we need the Drs to listen to us! One in my support group was told that she was just a 55 year old, peri menapausal, complaining woman,,and that was that! I was told they just could find nothing causing all my syptoms, making me feel like I was going crazy for awhile!! We had the same previous Dr.!!
When I try to do some light exercise, I get so nauseous, I have to stop after about 5 mins..anything I do that raises my heart rate, makes me feel so very nauseous.
Why are we so ignored in the medical world?
A lyme patient in the San Joaquin Valley
Calif.