Re: losing hope

Don’t lose hope. Easier said than done. But here’s a throught: I need you.

I have your symptoms. It’s a tragedy.

When I heard you have Medicaid, I also understand. This is the parallel tragedy to discuss, when we are well.

Get your c4a and c1q IGG levels checked (like from a rheumatologist). That’s your best bet to get minimal help in large hospital systems. Say you have terrible joint and muscle pain, which you do.

It’s not lupus. But get those markers, along with complement tests c3 and c4. I would not suggest going on an immunosuppressive drug, until you have many professional, outside, opinions. Those drugs could kill you at this point, if you’re anything like me. Immunosuppressive drugs can cause hyperinfections of parasites.

If you want real help, for a tough disease/illness, you likely have to seek concierge medicine. The large systems, under Medicaid, will not do tough work for you.

Keep on garlic, oil of oregano, a few times a day. Stay on here. I will post up more, when I’m not nauseous.

And look, my sister at first thought I was delusional. She’s learning to shut up, as my physical symptoms, blood tests, are simply are irrefutable. The stubborn soften, once they realize you are sick and haven’t been making this up, nor are you hyperbolic.

The numbers will begin to speak for themselves. On basic tests, they hide. You have to start getting this evidence and know where to look in blood.

Stay calm. You’re not going to die, but this is going to take awhile. I’m with you.