Man I understand that your EC makes you very depressed but I think you are overreacting. Your lips look totally normal even if they aren't. I mean, despite the fact that you have to live constantly with aquaphor, I'm sure you can have a good life, maybe not as good as if you didn't have EC but still a good life. Lots of EC sufferers would be happy to have your lips.
By the way I saw that the vertical lines came back on your lips. Don't you think that it is a good point ?