Re: SEB PICS: Detailed history, diagnosis and condition management

The swabs taken in the USA between 2001 and 2005 and in the UK during 2011 diagnosed the problem as lichen planus. Subsequent focus earlier this year was aimed at the use of a Vitamin A inhibitor (to counteract the over-keratinization effect of EC but again this had no effect). It's only in the past four months that Barts and Kings isolated a very difficult to find staph infection (it was described to me as though looking for a needle in a stack of needles. It's too early and I don't have enough evidence to say these were mis-diagnoses but thought that may go some way to explaining why staph. aureus wasn't picked up previously. Hope that makes sense.