Re: why me why you?

I feel with you. Many people don't really understand how a small part of our body can affect us so much. I too feel like I live a totally different life at the moment. I have problems going to work (having to tell a number of people everyday what kind of diseases I have..) and going out in public in general, but I still try to do it. It is my life and it doesn't matter what other people think about me. I know how hard it is to think that way, but that's the way it is. We have to accept that we have this condition. We could be worse off (even though it doesn't feel like it oftentimes).

What somewhat helps me is seeing a psychotherapist (not a psychiatrist who prescribes medication and whatever they do ;), but a psychotherapist who does "cognitive behavioral therapy"). We talk about how to handle the mindset/thoughts that come with EC, learning techniques to relax etc. and how to handle the problem with people looking at us better. Of course he can not make my EC go away, but it somewhat helps with the whole situation, at least a little bit. We're still somewhat at the beginning, but I feel that it helps and that I have already made progress. I remember how bad I felt when my lips weren't even as bad as they are now. Compared to that phase, I'm already doing better. Not doing good, but better. You should definitely at least try it if you have the chance.

Of course I also started taking an antidepressant, but my dosage is very low, so I am still depressed, often times very depressed.

We have to keep fighting.