for lorri32

I just recalled your idea of forming some kind of group/organisation to help

today it clicked finally in my mind that it would be a fantastic idea, especially good thing would be to share/exchange all the symptoms so we can determine the pathogen and then come up with the most effective/efficient treatment

I think this site is a very good one, but lacks the organisation, many things need to be repeated for new people and the info is all over

would be really good to have a site with a database where we could keep all symptoms info and all treatments info, I think that would be a great help, plus all pertinent information that we live in our daily lives that could help in idendifying the infections

I think when I get little better so I can concentrate I'd be more thinking about starting something as I have an IT background and could do many (technical) things myself. right now it's almost impossible to think about anything else but "how to get rid of these monsters before they kill me".

But wanted to let you know that your idea resonated with me, with a delay but still!! I think it would be a great help for all people suffering like us. I think "lineup" did set up similar site for protozoa infections.
But from my experience protozoa is usually just covering other parasites ( by that I don't mean to say that protozoa cannot be on its own, just in my own experience I know that protozoa and bacteria and viruses form biofilms). But maybe we can think of it when we can and then when we're are able to function better we could come up with something.