Re: TMAU... Ataluren / PTC124

LPN12345: In regards to your statement below:

"since you mentioned in the past that you were tested yourself for TMAU, but had tested negative (because you have symtoms)thats saying too that just because you may have TMAU symtoms, it does'nt mean that you have TMAU and that they can't be helped with their problems, because even if some do have TMAU"

As long as you intend to sum me or any other poster here up, please at least make a slight effort to have your facts straight.

One think I would like to point out: I never say "everyone here has TMAU". What I do say is that TMAU is something that CAN fortunately be tested for, and you would be doing yourself a disservice in time, money & stress by trying to figure this out without first consulting a doctor for some (mostly) passive tests.

This thread was created to let TMAU sufferers know that there are at least some groups who are actively trying to figure this one out. I just found out about Ataluren about an hour before I made that post & thought I would share. The TMAU pdf has a fairly recent date on it as well - so I linked it.

However, my cynical side questions if this research is being done more for the bovine cattle than the human cattle. I guess it doesn't matter either way, as long as there is progress.