Re: TMAU... Ataluren / PTC124

 Your comment and post (I'm sure) doesn't refer  to everyone in this forum.  I've said it  before and I'll say it again every person with BO or BB problems is not due to  TMAU, but after thinking it over I decide to rewrite my comment on the matter,  it seemed like you were saying ( from the way you posted your comment) that everyone in this forum that has a problem with BO and BB has TMAU. But from what I understand TMAU usually starts from a very young age (sometimes from birth, and it's possible it can be inherited from the parents) although  none  of my siblings have TMAU symtoms, even though two of us have the same father from my other 4 brothers and sisters. I took your comment as being sarcastic because I've read some of your comments in this forum in the past, so I'm pretty familar with your choice of words. And since you are known to be pretty blunt when you've worded your comments in the forum, (Your name pretty much says it all)  I'm sure you can understand why I may have interpreted your comment the way that I did.

 I know we are not all doctors, but we do offer each other encouragement and helpful information especially when some have been  to their doctors and have gotten no help.  And although a lot of us are going through this I don't believe everyone in this forum has TMAU.  But your comment seems to be telling everyone "THIS IS YOUR PROBLEM" and since you mentioned in the past that you were tested yourself for TMAU, but had tested negative (because you have symtoms)thats saying too that just because you may have TMAU symtoms, it does'nt mean that you have TMAU and that they can't be helped with their problems, because even if some do have TMAU symtoms there are supplements and vitamins that they can use to combat the BO situation(I can speak on this myself) and still live a fulfilled life, while changing their diets. I figured it is something others need to look into if all else fails; and I guess people just have a way of saying things even if it may not be in a way that some of us would say it. Now I know TMAU has not been discussed much in this forum  much but I  believe the link is going to be helpful to many,  And I heard that there is a way people can get their urine tested  with the Mayo  Clinic for 145.00 verses the 400.00 they were offering before. (a lot of people like myself don't have hospitals where we live that can perform special test for  metabolic disorders like TMAU)  And since many don't know about matabolic disorders  maybe it's time for us in this forum to be educated.  That is the reason I reposted this other link because it lists all kinds of diseases and some of them are metabolic.

 I still feel that this link be should have been  posted  in the TMAU forum too, because some of them can benefit from this information as well. But there are other reasons for BO problems mainly because the body odors  are manifested  in other parts of the body besides the liver, and skin. Some people have been having their BO and BB problems for much shorter periods of time than those with TMAU symtoms. I've reposted this site so that like us, others can look more into their situations and not only focus on getting rid of the smells but getting the bottom of their situations. Thank you for posting the TMAU information. http://bodyodor777.com/myths.html   For those interested in this site Click on: Internal causes and External causes sheds a lot of light on some situations depending on where the smell is in the body.