Good job on your description of this disorder, concise and to the point. I agree with your idea of writing to the medical research companies. Several years ago I wrote to 20 of the top hospitals in gastroenterology outlining my problem and looking for help. I only got 2 responses. One from the Mayo Clinic who blew me off saying they were only interested in GI illnesses which were life threatening. like pancreatic cancer, and one response from Cleveland Clinic saying they were unfamiliar with my condition. Chapel Hill Northe Caroline also sent me an application to be seen at the functional medicine clinic. All the other hospitals never even responded. I also wrote to some well known doctors like Dr Levitt, Hoffman, and someone in California who proposed the bacterial overgrowth of small intestine as contibuting to IBS symptoms and nobody responded.