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This is a reply to # 1,159,666
Need direction for good action plan?
Hi humblepie,
It’s so sad to see you go through so much turmoil, but I’m glad that you are opening up and sharing. Hopefully, you’ll feel better talking about it with people who understand.
It looks like you’ve covered a great deal of treatment options with no success. Perhaps that’s because unless you know what the cause of the problem is, you’re shooting in the dark. I realize that you don’t have insurance now or a steady income, but I highly recommend that you be tested for TMAU. You can email the Trimethylaminuria Foundation at TFnetwk@aol.com, and they’ll send you info on how to get tested. I understand that the Colorado lab only charges $150 plus there will be shipping costs.
I sometimes wonder how some people can’t smell body odor, and yet others do. I know that when I put an air freshener in my house that smells good, at first I smell it and enjoy it, but in time, I don’t smell it anymore, even if it’s a new bottle. Perhaps there’s an adaptive process regarding our ability to smell a particular scent, and that’s why so many family members don’t smell sufferers. They’ve been living with you all their lives, or at least for so many years, so they had to have adapted to the point of not identifying the scent. As a matter of fact, usually sufferers of body odor can’t smell each other! I believe that most family members do want to help each other, but if they can’t smell the odor, then they just can’t smell it. That doesn’t always mean that you’re not emitting body odor, unfortunately, and that strangers won’t be able to smell you.
I would think that when you go to your doctor’s visit that may take an hour at the most, before you leave your house, you would have washed yourself to be as clean as possible. That might very well hold you off for a while without the strong odor kicking in, and then the doctor can't smell it. However, at work, you have to consider how many hours you are there in the same room where you odor does kick in and lingers. That’s the frustrating part of it all, maybe the next time you go to the doctor, don’t wash as much, walk briskly for a few blocks to break out into a good sweat to get to his office and sock it to him : )
I know it has to be so difficult for you, emotionally and financially, to be bouncing from job to job and to have tried so many remedies, with no success. TMAU seems to be the only body odor producing condition that is most understood, and unfortunately, insurance companies don’t cover the diagnostic test for it in the U.S. It’s a bitter-sweet pill to be diagnosed with TMAU because you have to feel some hope that by identifying it you know what treatment plan to do, but at the same time, it is potentially (probably) a genetic disease and there is no cure. On the other hand, if your results are negative, indicating that you don’t have TMAU, then you’re in limbo again, with no idea of which way to turn.
TMAU and possibly other metabolic conditions, such as the one indicated by an abnormal blood amino acid profile, can cause toxicity in your blood which comes out through your lungs, skin, kidneys, in sum, all organs whose function is to cleanse your body. This toxic state also alters the pH in your body that creates a good environment for smelly bacterial growth. These toxins permeate from your gut to your blood, and then the body tries to clean them out through your breath, sweat, etc., and thus the odor, altering your pH which leads to an altered bacterial/fungus level, etc. This complex chain of events produces body odor of multiple sources. That’s why if you just change your diet to one that may or may not be the one that addresses your condition, but don’t neutralize the pH on your skin, or if you work on killing the localized bacteria on your skin and/or your gut but keep eating the wrong foods that your body can’t digest or oxidize thus producing additional toxins, you’re never going to see results!
That doesn’t mean that if you did an on-target treatment specific to your condition to combat all these factors at the same time, that you wouldn’t be able to finally become odor-free. A few people in this forum and others have accomplished it, including my son, who has been almost completely odor-free for approximately 4 months. Even when he does get a little bad breath (a 1 or 2 on a scale of 1 thru 10), he knows what he’s done wrong to cause it, and immediately corrects it.
This is why I suggest you try to get tested for TMAU so that you can identify what you have, and you can target your treatment plan specifically to the root of your problem. You might also want to ask your doctor to do a blood amino acid profile to see if you body is processing amino acids properly. Once you have ruled out these 2, you’ll know that you can eat choline-rich foods and proteins, at least to a moderate degree. Then you might want to see if a low carb diet (sugar) is your solution, and then dairy products. But jumping blindly into all sorts of treatments will only frustrate you, if you’re not lucky enough to hit the right combination accidentally.
I do think though that even though you haven’t discovered which internal treatment would best suit you, at least you can help your skin maintain a proper pH to help fight bacterial growth. Our bodies have a good balance of bacterial and fungal growth, and sometimes the fungus is killed out and the bacteria take over, and vice versa. Liquid soaps tend to helps balance your skin’s pH more than soap bars, and sea salts are very good as well. Don't over scrub you skin so much that you debilitate it, taking away it's ability to maintain proper balance and protection. Instead, just try to bring your skin's pH to a healthy level, and it will start working to heal itself.
Not too long ago, Marx posted the names of inexpensive products she’s successfully used, and I did some research as well by calling the various soap companies to ask them what the pH of their soaps was. I was surprised to see that many would not give out that information! Maybe they don’t trust their product???
Anyway, I’ve written a few posts regarding my research for products that would moderate the skin’s pH, Marx gives a pretty good summary of it, see her posting http://curezone.com/forums/fm.asp?i=1154117#i where she lists the products she uses as well. BTW avoid perfumed deodorants because they tend to not mix well with BO. Instead go for the scent free ones.
Hope this helps steer you in the right direction. Good luck, and do keep posting. Let us know what works for you and what doesn’t. This is how we learn from each other.
mpdela
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