Re: Conference Call Sun. 6th 2:00 PM EST Dr. Cheryl Fields, Arun Nagrath, Bobbie form B.O.S.S.
Mpdela,
Firstly, sorry for not replying earlier. I started a new job on Monday after a 4 week holiday and have come home tired each evening and crawled straight into bed!
Wow, you have been reading my posts so earnestly, how flattering! Gosh 25 months! I didn’t realize I had been away so long.
Mpdela, I do like your idea of a Blog and would be happy to provide a scientific input to ensure that our efforts are not in vain. I did create a questionnaire on the Yahoo Trimehylaminuria Group site but think you have the wrong site address. Try the following link instead:-
http://health.groups.yahoo.com/group/Trimethylaminuria/database
As you can see, the questionnaire is in 2 parts. Ideally, I wanted these to be combined into one table but anyway this questionnaire just serves as an example of the type of questions we should be asking. As you can see, not many people bothered to complete the survey.
Also, a guy called Ben has produced a table for
Body Odor sufferers on his site. It lists what people have tried and its effect:-
http://health.groups.yahoo.com/group/bodyodorgroup/database?method=reportRows...
A Group specific to breath odor have also produced a questionnaire/survey for their group and this has been completed already by it’s very diligent members. I think we should draw on their experiences by first talking to Jimi and Larc on the following message board:-
http://www.badbreathhalitosis.com/phpBB2/viewtopic.php?t=1202
We may want to expand the input of the blog to badbreathhalitosis.com so that we have 4 groups represented (MSN, Yahoo, Curezone and Badbreathhalitosis). It would be amazing if this combined effort by all the odor groups succeeds in uniting the 4 forums.
What do you think mpdela? Should we consult our brother Groups and ask them if they will work with us to achieve this common goal?
Arun