I think your ideas are great. We seem to be thinking along the same lines. I will do everything in my power to get your suggestions in the blog we're still building. It's all moving right along. I'm so glad you are participating too.
Together we can try to make things happen to promote awareness and organization at all levels - employment, in the medical community, legal, and social. It's a huge undertaking, but much bigger movements came to fruition, so ours is not impossible.
Meanwhile, we have each other's shoulder to "cry on" in this forum when we need support.