Bowen Research? 
daedalus
19 y
4,214
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Bowen Research found me highly positive for Lyme's pathogens.
However, I was told it's not in the red or white blood cells.
Does anyone know exactly what that means?
And does anyone have personal expereince with their testing accuracy?
- Re: Bowen Research? alisaun
19 y
4,404
This is a reply to # 52,510Hi Daedalus,
Was it the Bowen lab results themselves that told you that it wasn't in your red/white blood cells or was it a doctor that told you? I find that statement confusing from what I know.
Perhaps when they took a look at your blood they found Lyme in locations other than the actual cells mentioned. The Lyme spirochete can burrow through tissues and can be found in other places besides in the cells themsleves. Since they are pleomorphic, they can be in several places in your body at once and even if they're not in your WBC's or red blood cells, if they are in other locations then you have Lyme. They could just be swimming around freely in your blood, too.
Bowen should have sent your doctor a digital photograph also - have you gotten this yet and does it show anything? Also did you test positive for the co-infections they test for (babesia and erlichia)?
I am going in in a few hours, ironically, to have my blood drawn for the Bowen test. For their accuracy, from what I have read they are the best around. This is because they test for the actual presence of the Lyme antigen rather than other tests like the Elisa that test for only the antibodies which not everyone produces when they're sick.
I also know that they have had 2 other labs verify their work and the results agreed 100 percent. I say any lab that actually uses darkfield microscopy and takes and actual pictures of the little buggers in our body is OK by me! :)
Alison
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- Re: Bowen Research? daedalus
19 y
4,107
This is a reply to # 52,511Yeah. So I'm a bit confused as well. To answer your other questions I'll have to wait till I have spoken to my Doc tomorrow.
As a side note: My "Primary" health care provider gave me an ESA test several weeks after symptoms closed in on me. By their standards I tested negative.
My symptoms have lasted a over a year, although they have progressively receeded with self diagnosis and care. They include(d): Unannounced nausea, unexplained loss of appetite, rapid loss of weight, very pronounced (but not rapid) heartbeat, unusual depression, overwhelming waves of anxiety at (particularly at early evening), insomnia, disturbed sleep (uncontrolled thought processes), bouts of frequent urination (10 or more times a night), 10 days of constipation followed by a year of IBS (defecate appears to be improperly digested, i.e. soft and pasty with more recognizable food particles.), bloating and foul gas, unusual joint pains (particularly the spine), rapid onset of gingivitis, spells of breath which smelles like acetone, unusual esophageal feeling best described as "coarseness", hardened or swollen (but not sore) lymph nodes, unusually red (but not sore) throat, unexplainable hoarseness, duodenal discomfort, unusual eye and salivary gland swelling(left side, TMJ symptoms (left side), an unusual "side splint" sensation at the ileocecal valve/appendix location, inability to handle even the taste of "normal" foods, lungs "overinflated" (not enough room in the chest cavity) followed by a feeling that I might soon produce phlegm (I never did) followed again by many months of an unusual gasp post exhalation (particulalry noticeable while lying on my right side), unexplained dizzyness, and random twitching of the fascia on my lower legs to name just a few.
I never noticed any "bullseye" rash, but have had many rather nasty bites while climbing.
My "standard" doctors tested me with all their standard tests including; Liver functions, Kidney functions, CBC, Diabetes, Helminths and protozoas, H Pylori, ECG/Heart functions, Hypercalcuria, chest xrays, CAT scan of sinuses/thorax/abdomen, etc.
They told me I was "fit as a horse" and that I had depression, GERD and Sudden Onset Adult Asthma. They prescribed Prozac, Protonics, and Zopanex.
What a joke.
To anyone else reading this post or involved in this Forum, it would be a good thing to post some of your results from testing you've done, so we all don't get scammed by our Doctors on this. Some results to post would be Doctors name(or at least their general geographic location), you reported Dilution?Titration level, and results of any co-infection tests.
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- Re: Great Idea alisaun
19 y
4,426
This is a reply to # 52,512D,
That's a great idea. Hopefully I can be one of the first to respond as I just went to the lab today and my blood should be in Florida by 10 am tomorrow with results the next day. I am going to be so all over my doctor's office to fax me the results.
Have you checked out lymenet.org? The forums there have a loooooot of info especially about co-infections, symptoms, Bowen dilution rates, etc. even weird symptoms that I have that other people have like dyslexia, air hunger, and eyelid twitching! And getting sick in Target/Wal-Mart stores.
Your symptoms sound amazing. Many of those I have and do also have myself. Right now especially it's the loss of appetite, nausea, and a bunch of other things.
It's WONderful you got diagnosed though - that is such a huge part of the battle.
Ali- Re: Great Idea daedalus
19 y
4,009
This is a reply to # 52,513Thanks for the link.
After reviewing a list of symptoms at http://www.canlyme.com, I have some to add to my previous list, in no particular order:
1. Sinus infection for several months (predominently on the left side, as it subsided my nose acquired the most whimsical whistle when I breathed out, which to me indicated a significant change in the structure of the sinus passage. This also lasted for several months. I was scoped and CAT scanned for growths. None existed.
2. Testicular pain. I can't seem to remember which side, I think it was only on the right. It was unexplainable (my wife didn't kick me in the nuts=) and lasted for about two or three weeks.
3. My arms and hands became far more susceptible to falling asleep. This has subsided but I have developed numbness in my left index and middle fingers which persists, as well as a golf ball sized area just below my shoulder blades and left of my spine. This area is numb and "itches" for lack of a better description.
4. Markedly increased effect of alcohol. This was one of the first thing I noticed prior to thinking anything might be wrong. What I would normally drink with ease affected me significantly. I'd get "woozy" with one drink. During this early period, with no other symptoms, I thought perhaps all my days of partying had finally caught up with me. I had also just lost my best friend to liver cancer, so psychologically I was really expecting cancer.
5. Over-emotional reactions, cryed easily.
6. Exhibited bi-polar episodes. I knew I was doing it, when I was doing it, and had no explaination for it.
7. Memory loss (short or long term). I come across memory loss on things that I realize I should be able to recall easily. I put everything else aside and purposely sort each episode out till I can remember the pertinent information.
8. I had one debilitating "stabbing" episode where one would normally get a "side-splint". I was out on a walk and when this struck it took me almost two hours to traverse a normally 25 minute section back to the truck.
9. I recently had rear rib pains which felt like the intercostal muscles were tense and would not relax. Also of note is the fact that early on my daily push-ups would aggravate my lung/esophageal symptoms.
10. On several occasions very early on, before the massive onset of symptoms, I had several intermittent days where I felt "wrong" but not necessarily ill. On most of those days my vision was annoyingly blurry.
11. I forgot about the plugged ears. I had that too for several months.
12. Loss of sex drive. When you're that sick, sex doesn't come to mind. I'm not sure if that's a "loss of sex drive"....but the effect is the same=)
13. My eyes burn from time to time now for no apparent reason.
Some of these symptoms might be related to Candida overgrowth.
Just recently I began taking daily: Minimum of 100 oz of Ro or distilled water. 300 Mcg of Molybdenum and folic acid, as well as a broad spectrum mineral supplement to break the toxin cycle of possible Candidiasis. Cellfood for upregulating body oxygenation (I also take an OTC Ephedra (Ma Huang) based bronchial dilater once a day to counter my breathing difficulties and increase oxygenation. A teaspoonful of 3% H2O2 (Hydrogen-Peroxid) in 16oz of RO water (also for oxygenation). L-Glutamine, N-Aceytal Cysteine, Alpha Lipoic Acid, CoQ10 and CoQA to boost Glutathione production. Samento to upregulate the native and acquired immune systems. Custom Probiotics multistrain probiotic formula (25 billion count of live bacteria per capsule) and Clarkia tincture. I eat almost exclusively organic. Meat intake is one piece of "organic" chicken a day. Tea Tech instant green tea mix (the Matcha or "free pour" version) for the high polyphenol (antioxidant) count. I also take a direct EGCG (NOW brand) supplement to aid any damaged cells in their natural dying process. For sweetener I use Xylitol or Stevia or both. Occasionally it's Sucanat for baking.
One thing to note. All of my symptoms come and go, which I believe to be a strong indicator of Lymes or similiar infection. The symptoms morph, from one being the most prevalent to the other, each lasting just long enough that you almost forget about the last. Nothing else that I've researched has such a predominent "roving" element to the symptoms.
- Re: Dr. BURRASCANO's Treatment Guide... alisaun
19 y
5,689
R
This is a reply to # 52,521Hi D,
Yes yes and yes! I totally agree with you and have also had a lot of the symptoms you mentioned. In particular, I definitely agree that the symptoms "morph" and change over time.
The sinus issue may also be a yeast issue. I know that several people with Lyme have had this and it's directly related to candida. And sex drive . . . lol what's sex? I think I've forgotten.
Here is a link to Dr. Burrascano's treatment guidelines - this is an excellent document and was really helpful to me.
http://www.lymegroups.org/EastBay/
Also, I'll cut and paste here his checklist of symptoms...
Have you had any of the following? CIRCLE ALL YES ANSWERS
1.Unexplained fevers, sweats, chills, or flushing
2.Unexplained weight change- (loss or gain- circle one)
3.Fatigue, tiredness, poor stamina
4.Unexplained hair loss
5.Swollen glands: list areas_________________________________________
6.Sore throat
7.Testicular pain/pelvic pain
8.Unexplained menstrual irregularity
9.Unexplained milk production; breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach or abdominal pain
13.Change in bowel function- (constipation, diarrhea)
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list
joints_________________________________________________
19.Stiffness of the joints or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creaks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains, skin
hypersensitivity
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.Increased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness, unavoidable need to sit or lie down
30.Tremor
31.Confusion, difficulty in thinking
32.Difficulty with concentration, reading
33.Forgetfulness, poor short term memory, poor attention, problem absorbing
new information
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing; word or name block
36.Mood swings, irritability, depression
37.Disturbed sleep- too much, too little, fractionated, early awakening
38.Exaggerated symptoms or worse hangover from alcohol
Cheers,
Alison
- Re: Dr. BURRASCANO's Treatment Guide... alisaun
19 y
5,689
R
- Re: Great Idea daedalus
19 y
4,009
- Re: Great Idea alisaun
19 y
4,426
- Re: Bowen Research? daedalus
19 y
3,775
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This is a reply to # 52,511Woa! My dilution rate is 128! Anybody else on this board quantify this high?
I tested negative for both coinfective pathogens.
BTW. Just to live up to my original suggestion....my doctor is Steven Davis, MD and ND in California. Anybody know/heard of him?
- Re: Bowen Research? daedalus
19 y
4,107
- Re: Bowen Research? #37444
19 y
3,972
This is a reply to # 52,510i had the same diagnosis as you, positive to lyme on the bowen test and negative on the western blot (twice). Bowen is not licensed, which is why your receipt shows up as a 'research' donation. They never had FDA licensing, however they did have CDC (center for disease control) from what i heard. they lost that within the last 2 years, due to lack of funding. i personally think it is a true pity that the only other company that does antigen testing is Igenex Labs. obviously bowen has something to offer; however they are not in a position to get the proper licensing so that their test can be considered a true diagnosis. the only problem i have with their test is that every test that they have done on anyone has turned up positive. they have never had a test come up negative (up until 1 year ago, at least), so you'd think that it is a false positive. But as angilyn says, they've had independent labs backup their findings, and are able to grow the bacteria back directly from the blood cultures.
i treat lyme homeopathically. all those nasty Antibiotics are not necessary, they are only harmful. there are lyme nosodes avaiable - they treat the lyme directly, succesfully, and in a gentle fashion.
- Re: Bowen Research? alisaun
19 y
4,589
This is a reply to # 52,514Hi,
I had the same question when I started hearing about how many positives there are through Bowen. But there are two things that I think may cause this: One, people who have doggedly waded through so much research on their own and desperate for a diagnosis seem to be a large part of Bowen's clientele. I figure the really sick and really determined people find them, and that this is why most of them test positive for Lyme.
Secondly, I understand the concept of "false positives" with other tests, but with this one I just am baffled as to how actual Lyme spirochetes could actually visually show up falsely. I mean, they take a look and can actually see the little buggers there. But then perhaps there can be some room for error with the protein markers they use? I dunno.
It's a scary thought to think that so many people have Lyme that they have so many positives. I wonder also if the lyme pathogen, having the ability to be dormant/latent, is one of those things like mono where people can be exposed and asymptomatic but still show its presence. I think I read that something like 85 percent of people have mono in their systems - not sure if it's the antigen or the antibody.
If you could, could you please tell me where you get your lyme nosode stuff? I am reeeeeeally adverse to the idea of taking Antibiotics , an trying to treat as holistically as possible and am very interested in that these seem to work for you.
Many thanks,
Alison- homeopathic nosodes for lyme #37444
19 y
10,172
R
This is a reply to # 52,515I agree with you, people that have a good idea that they have lyme find the bowen test. I think that lyme is an absolute epidemic, and that most people in the U.S. have it, don't know it, and are asymptomatic.... and that this is the reason why all people tested so far are positive. i think being human pretty much means having this bacterium in you. i also think lyme is an opportunist; keep cleansing and eating well, enhancing the immune system naturally with all that is written about on curezone, e.g., liver, bowel and kidney cleansing is the way the battle is won. i don't think lyme can prevail when someone eats right, has no stones in their liver, and has clean organs of elimination. that's why i've been doing liver, bowel and kidney cleansing in addition to taking the homeopathic remedy.
the thing i've noticed with the remedy is that its just like Antibiotics in that if someone has a chronic, long standing infection, it will take months - many - to clear it completely. so if you take the nosode and it agrees with you, don't stop - keep going. i've been on it for about 4 months. lyme isn't my main complaint (I had 2 other serious things happen that i'm recovering from), and i am recovering slowly. (but at least i am recovering now). so i expect to take the lyme nosode for months. its not that it works slower than Antibiotics , its that the same rules about the lyme bacteria only being vulnerable when its in the growing phase still holds true, i believe.
the nosode that i'm taking was made by a homeopath that i know; he makes his own. he works out of raleigh, NC. if you are within range of raleigh, email me and i will send you his name & number.
any alternative center that has a homeopath on staff should be able to get you set up. homeopaths are listed in the yellow pages and they'll take phone calls regarding this, so you'd know in advance before an appt. about it. naturopaths will also have access to the lyme remedies. just specify that you're looking for a lyme nosode. some homeopaths treat lyme with ledum, instead of a lyme-nosode, so that's a question to ask them. i've never taken ledum so i can't vouch.
here's a homeopath on the web that i've emailed personally, and she seemed really good -
http://www.cindeegardner.com/boom11.htm she carries the mediral line which does have a lyme nosode. (i once asked her a question about another homeopathic remedy, and she answered quickly and was very upbeat).
i searched online hopefully to save you some clicking time. here's lyme nosodes which appear to be orderable without going through a naturopath/homeopath. each nosode will be alittle different; if you get one that you don't like, try another brand. i'm a fan of homeopathic remedies (recently used it for a bee sting) and found that i like a lesser known brand better than the wellknown one that whole foods carries. so we're all alittle different.
http://drgazsi.com/lyme_drops.html
http://www.alternativepharmacy.com/NewSite/HTML/revised/companyNZb.htm
http://www.innersourcehealth.com/patients/orderform.html (looks like this one needs a 15 min. appt. with the homeopath via phone).
there, that should do it. if you have any questions, please email me.
Best,
Lisa
- Re: Thank You! alisaun
19 y
4,274
This is a reply to # 52,517Lisa,
Thank you! I will ask my naturopath about these when I next see her. Although I don't think she is very lyme-literate...so thanks also for the links.
Also, I TOTALLY agree with you on the whole being patient thing. That is the one biggest mistake I made in trying to treat this naturally -- I would give up too quickly. Now I know it's a marathon and not a race and to be patient.
I have been doing the cleansing but one thing I've found is that at the moment my digestive system is so screwed up that it seems not to be able to produce enough bile to do the Liver Flush properly. But I'm going to try again on Thursday, this time after fasting and also taking some malic acid. I'm also doing a whole bunch of colonics among a ton of other stuff.
Lisa, good luck in your healing journey and thanks again for the great info.
Cheers,
Alison- Re: Thank You! #37444
19 y
3,746
This is a reply to # 52,518Good luck with the flush! I don't get a whole lot out either, compared to some on curezone, its so frustrating. but... better somethin' than nothin.' the best results - still low but alittle better - that i got were after using chinese bitters. unfortunately i'm allergic to gcg (makes me sneeze!)
I so agree with you that chronic lyme is all about the marathon. For myself I'm going to get another Bowen test taken over the fall/winter as a check.
Best,
Lisa
- Re: Thank You! daedalus
19 y
3,888
This is a reply to # 52,518Clarkia tincture will increase bile production. Also to note: Cocoa powder, red meat, and oil rich nuts (stay away from peanuts) will also challenge your body to produce more bile. An organic coffee enema will also flush bile into your system. If your not eating things which challenge your body to produce bile it will decrease its production.
- Re: Thank You! #37444
19 y
3,746
- Re: Thank You! alisaun
19 y
4,274
- homeopathic nosodes for lyme #37444
19 y
10,172
R
- Re: Bowen Research? alisaun
19 y
4,589
- Re: Bowen Research? alisaun
19 y
4,404
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