Mysterious chronic illness 
mlg115
9 y
6,158
† Cross †
Hi everyone,
I am so desperate for answers as I have been sick for 3 YEARS and am not getting any better! I can't stand living like this :( PLEASE HELP!!!
About Me:
-Female
-27 years old
-Caucasian
-Never smoked, 1 drink of wine every 3 months? No drugs
-Normal Weight
-No major health issues before a trip to Thailand (except i had lots of minor colds/strep/dental surgeries etc. when i was a kid so lots of Antibiotics ; still felt very healthy 99.9% of the time and had tons of energy); was in good fitness.
-C-Section, premature, breastfed 3 months only
History:
3 years ago I went backpacking in Thailand/Laos for 6 weeks and did lots of things that I probably shouldn't have…. (drank smoothies (ice) and ate at street vendors, played with stray dogs/cats/other animals, ate at questionable establishments, walked barefoot, etc. and partied a lot!). About a week after trekking in Northern Thailand, I got sick with a respiratory illness:
- Severe cough (felt like i'd break a rib) – green stuff comes up *had bronchitis several times when i was younger so i didn't think much of this
- Chills
- Fever
- Aches/Weakness
- Runny nose & congestion
- Hives
- Nausea
- Headache
- Stomach pain
I used OTC cold medicine which I got at a pharmacy there for about 5 days but my cough stuck around. I felt ok otherwise. After 3 weeks of this, I went to see my family doc in Canada and was put on Antibiotics for bronchitis. No change. Then put on steroid inhalers which I used for about 2 months and still no difference. Cough wasn't as bad anymore but it was still there and I developed post-nasal drip which bugged me all day every day. I also kept feeling like I just couldn't expand my lungs to get in enough air and I couldn't run anymore which was a HUGE passion for me before my trip :(
About a month after I got back, I started having tons of weird problems that all started around the same time:
Digestive:
-LOTS of gas every day to the point I would look pregnant, constipation (I go 1-2x per week, only a tiny bit), stomach cramps, malabsorption, bloating, weight gain esp in legs of 15lbs, occasional mucous in stool, random stabbing pains throughout my intestines every day lasting 1-3 seconds, occasional diarrhea, feeling like stuff is moving around my intestines (bubbles moving up??), sometimes undigested food (usually corn). Also got sick again about 1 month after I got back and puked like clockwork every 20 mins for 5 hours, lasted 4-5 days (was puking nothing but green bile by the end). Endoscope/colonoscopy 1 month ago: LYMPHOCYTIC COLITIS (but I don’t match the symptoms of this). INTENSE cravings for sugar/bread – can’t seem to stick to any diets.
Cognitive:
SEVERE brain fog (feel like I'm in a dream every day and just not registering things, forgetting stuff (short and long-term), new anxiety, new mood changes, ADHD (diagnosed about 8 months after i got back), new depression, EXTREME FATIGUE!!!! Weird personality changes (disconnected, moody) that last a month or so if I take Tylenol 3. Sometimes get debilitating tension headaches that usually last 48 hours.
Body:
Intense weakness, pain after minor exercise is extreme and can last 4-5 days, restless legs, tinnitus, dry eyes, random sharp stabbing pains in places all over my body, cannot get fit no matter how hard I try, very dry hair, sometimes get blurry vision
Female Stuff:
Irregular periods that last a week but I only get a tiny bit, blood with clumps, very brown. LEEP Surgery for CIN-II even though I had Gardasil 3x.
TESTS DONE
- Ear/Nose/Throat scope – saw the mucous stuff in my throat, which is what I cough up daily (it’s clear now). Doc said its gastric reflux, antacids for 6 months did nothing
- 2 bad lung function tests that were not diagnostic; POSITIVE METHACOLINE TEST FOR ASTHMA (inhalers do nothing)
- Normal Chest X-Ray
- High CRP (fluctuates though)
- Low Neutrophils, slightly Low RBC, slightly high WBC, anemic
- 5-6 stool parasite tests and stool culture – negative
- Negative Lyme, rickettsia, stronglyiodes
- Negative celiac, lactose intolerance
- Normal TSH, liver function, pancreas function, kidneys OK
- spit test thing was normal for lung bugs (was sent to lab)
- Estrogen normal
SEEN:
Infectious Disease Dr (doesn’t know what it could be)
4-5 general practice Dr’s who just shrug it off
Respirologist
Gastroenterologist
Ear Nose Throat Specialist
Naturopath (hence leaky gut/candida treatment that did nothing)
** Waiting on referral to see an Internist, who knows when - Canada healthcare system at work here :)
NO IMPROVEMENT
- 1 week of metronidazole 500mg, three times daily (doc gave in case Giardia was hiding – never came up on any tests though)
- Inhaler for asthma; steroids for asthma
- Candida diet (1 month); Adrenal Fatigue treatment; Leaky Gut Treatment
- Anti-ADHD, anti-depressants did nothing to improve energy or mood
- Humaworm parasite cleanse (2x)
- Juice cleanse (5 days)
- Gluten free for 1 month
- Probiotics (lots!)
- Fibre supplements
I take multivitamins (high B vita's), omega 3, 3000-4000 ius Vit D, CoQ10, calcium, Iron (only recently), 5000mg glutamine to help gut. Have a copper IUD (put in past month) so no more BCP.
PLEASE PLEASE PLEASE HELP ME! ANY SUGGESTIONS AT ALL WILL BE GREATLY APPRECIATED!!!
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- Re: Mysterious chronic illness grizz
9 y
5,750
This is a reply to # 2,237,824mlg115,
OMG ! I can really feel for you. Doctors will not be helpful for all of your symptoms. It is clear that your symptoms are a combination of factors. First of all, look at the symptoms caused by Antibiotics , especially the 5 stages of Candida:
Results of Antibiotics
http://foodmatters.tv/articles-1/how-to-overcome-candida-naturally
5 Stages
http://aleciajeanne.hubpages.com/hub/The-5-Stages-Of-Candida-Overgrowth
Most important at this point is to boost your immune system with at least 10,000 IU Vitamin D3 Geltabs,
https://docs.google.com/document/pub?id=1hLMo2CkT6M00HxUGdzQ0BqyqROg41usb53wb1or2uDo
and with Iodine and required co-supplements
https://sites.google.com/site/iodinereferenes/home
https://docs.google.com/document/d/1IzFKo-r2-Nn8_z0KUrOhHdlanzSuhkuV3QO03XF6YTY/edit#
Here are your detailed instructions for Candida:
https://docs.google.com/document/d/1ndAbkVTfthqeMx5r3K0UqMFXHbrEiL7RCgIyC9BuTTg/edit#
I know there is a lot to read, but your health depends on it. These are time tested & proven with many testimonials:
https://docs.google.com/document/d/1KQ8tCLrOoQQJ8h_gSRM1aZ1Ya-YqaN4B3i8NMXOm8TY/edit#
Best to you,
Grizz
- Re: Mysterious chronic illness mlg115
9 y
5,386
This is a reply to # 2,237,899Thanks, Grizz.
I did a pretty hefty candida diet and took Colloidal Silver , pau d'arco, caprylic acid and candicin/candex for a while which did nothing.
Also loaded up on pro-b's which didn't do much.
From the bottom of my heart I really think I have some sort of bug. My mom and step mom and two step sisters are doctors (gen practitioners) and they're not even believing me anymore - they also don't believe in candida but I don't have much faith in standard medicine anymore cuz it's been so long :(
I think I might see if my naturopath can recommend something stronger (nystatin?) in addition to an antiparasitic because I must have some resilient buggets after all the things I have tried!
- Re: Mysterious chronic illness mlg115
9 y
5,386
- Re: Mysterious chronic illness linenup
9 y
5,586
This is a reply to # 2,237,824All signs of an infectious organism - 99.9% of conventional testing will miss this. Most likely parasitical and a very good chance it being protozoa. Many of those areas are teeming with protozoa including e histolytica, blastocystis, isospora, cyclospora, cryptospordium, giardia etc.
Flagyl (metrodazole) is an old school drug that is still widely used but seldom effective with lots of side effects. Most of these infections require a cocktail of drugs. As a side note, there are variations of Flagyl that has less side effects such as tindazole and secnidazole.
Many of protozoa are transmitted via water or fresh produce grown in water (aquaculture).
Proper testing is critical - here are links that will be helpful:
http://patrickrambling-pb.blogspot.com/2012/12/lessons-from-parasites.html
http://pptu.lefora.com/
(might want to look at the Dr. Cahill/e histolytica sub forum)- Re: Mysterious chronic illness mlg115
9 y
5,302
This is a reply to # 2,237,902Thank you so much for your response!
I haven't been able to treat for anything as nothing shows up on the tests so doctors all think it's in my head.
I was hoping 2 rounds of humaworm would help if there was something there but I guess not :(
I have an appointment with my infectious disease doc again on Monday and am going to come prepared with all this info! Als have one next month with a naturopath who apparently knows a lot about this kind of stuff and Lyme so maybe a fresh set of eyes will help me to get answers!
Thanks again...I've felt so alone in all this so I really appreciate getting comments from people!- Re: Mysterious chronic illness linenup
9 y
5,465
This is a reply to # 2,238,065
parasite tests are largely defective in that rarely are they detected for several reasons.
Humaworm is not going to be very effective in protozoa situations.
ID doctors rarely suspect parasites and the tests are largely inaccurate. The only thing they have left is blaming the patient having psychological issues.
Naturopaths in general terms are not well versed in treating parasite infections.
Sorry to be negative but this information comes from years of collecting data from a diverse population and many hours of research.
Protozoa require specific tests with trusted labs - and they require specific treatment strategies. They are quite tenacious depending on the species.- Re: Mysterious chronic illness mlg115
9 y
5,382
This is a reply to # 2,238,077So if doctors aren't well versed in this, what can I do? If I send something to one of the labs in the link you mentioned, how would I even get treatment if something came up? I live in Canada. My doctors have been completely resistant from day 1 and it took 2.5 years of me complaining before they would even do standard parasite testing that is not even very accurate. Even if I showed them positive results from one of these labs, they would probably still just brush me off, try to discredit the lab, or say (again) that "Protozoa don't cause symptoms." (I've asked if it can be something like that before)...
Is there some broad spectrum Antibiotic that would treat a variety of different Protozoa without me knowing exactly which one it is?
I really appreciate your advice but I'm not just not sure what the step should be?
Thanks again!- Re: Mysterious chronic illness friedegg
9 y
5,778
This is a reply to # 2,238,399go to all the walk in clinics and tell the drs you want to be tested for parasites o and p test,
tell them you have diahrea very bad for months and they will do it.
honestly do as many as 30 tests not the 5 0r 6 they believe.
also as lineup says test with parawellness lab in usa for 300 dollars he is good a dr and a microbiologist.
I LIVE IN CANADA AND NOT ONCE DID A DR TELL ME I COULDENT HAVE A STOOL parasite TEST DONE.they will test for bacteria as well as parasites.
sometimes make things up to get what you want and I found don't so any signs of emotion with them .be stern with them not rude.
you need to figure out what you have and then getting the drugs is another day.- Re: Mysterious chronic illness nokinda
9 y
5,131
- Re: Mysterious chronic illness nokinda
9 y
5,131
- Re: Mysterious chronic illness friedegg
9 y
5,778
- Re: Mysterious chronic illness mlg115
9 y
5,382
- Re: Mysterious chronic illness linenup
9 y
5,465
- Re: Mysterious chronic illness AngelofEventide
9 y
5,503
This is a reply to # 2,237,902Reading your symptoms list is like reading about myself, but I have been dealing with this for 20 years with no help. All parasite tests and Candida come back normal, despite having a positive spit town several years ago for Roundworm. Stool tests normal. Have been diagnosed with several things, but no treatment ever helps and I feel like I am getting worse, I am planning on seeing an integrative gastroenterologist who also practices holistically and am going to ask him about Protozoa. BTW, unless you use a specialized lab like Igenex, most Lyme tests will come back negative, if you have it. Rickettsia is a common false negative thing as well and from I am being told, rampant in such places. My suggestion to is to go to Facebook and join the Spooky2 Rife forum. I just got mine and am still learning how to use it. A lot of people like us are being cured and it has a scan that can tell you which frequencies you need to get well.
- Re: Mysterious chronic illness mlg115
9 y
5,302
- Re: Mysterious chronic illness #178973
9 y
5,422
This is a reply to # 2,237,824This may have nothing to do with your symptoms, but just for sake of covering all your bases....have you been checked for TB?
- Re: Mysterious chronic illness mlg115
9 y
5,324
This is a reply to # 2,237,940I was negative for it about 6 months before my trip...since then I just did one of those spit test things that is supposed to test for it. Lab came back as mixed respiratory flora but no further detail than that.
Last time I was tested was for a job and they did a skin prick test - wonder if that is more sensitive? I have a follow up with my respirologist in early March and he's supposed to be a TB expert so I'll ask for a repeat test then.
Thanks!!- Re: Mysterious chronic illness twll
9 y
5,538
This is a reply to # 2,238,067Search for the type of parasites you can pick up in Thailand.
Here is a Google search.
https://www.google.com/search?q=thailand+parasites&ie=utf-8&oe=utf-8
I want to share my experience to see if this has happened to anyone else, and also to hear their experience. I have just spent 3-days in the ICU...
A dish made of fermented fish and said to taste like heaven and to smell like hell contains parasites that can accumulate in the liver and lead to ...
Facts and statistics about the Major infectious diseases of Thailand. ... of the female Anopheles mosquito; parasites multiply in the liver attacking red blood cells ...
parasite Infection - Diagnose-Me
http://www.diagnose-me.com/symptoms-of/parasite-infection.html
Just some of the stuff you can look through in the Google search.
- Re: Mysterious chronic illness twll
9 y
5,538
- Re: Mysterious chronic illness mlg115
9 y
5,324
- Re: Mysterious chronic illness Hidden Username
9 y
5,353
This is a reply to # 2,237,824
Hi Mlg115,
Wow, you have been throught the ringer! I am sorry at your age you are dealing with all of this!
Please consider looking into a high carb low fat vegan diet, with lots of fresh juices and fruit and greens, etc. Find things you can digest ok like possibly sweet potatoes, please make sure to eat enough if you go this route, like 2000 calories, min. The crux of the issue I believe is something you seem to already be onto: C section birth, lots of antibiotics, etc. Your gut is hurting for some balance and good flora, IMHO, and you could be stirring up metal issues or low b12/methylation problems with the B vitamins, CoQ10 and other supps..
First, happy you're off the BCPs (a steriod that can cause gut dysbiosis, gallbladder disease, heart disease, etc) But I would seriously rethink the Copper IUD, you mentioned dental sugery and I'm wondering if you already have heavy metals in you. Your significant other can use a condom, take male contraceptives or get a vasectomy, you getting better should superced all else as you don't want to bring these health problems into your 30's believe me, and gut health is life.
The above diet will slowly nurse you back to health because the high raw foods will reestablish a healthy gut over time if you don't do anything (drinking, meds, copper, meat, dairy, high fat.) else to destroy the gut flora. The gut flora thrive on fiber. You can eat high carb if you greatly limit fats, you will probably feel relief very soon with this.
Please look into Tylenol, the people who rep the company won't even take the stuff or give it to their kids.
Pharma doesn't have the answers in my experience, I wish I was your age again and could have someone tell me these things. It would have saved me so much trouble.
Do you have amalgams? The supplements could be like a barbaric attempt at helping yourself. Please slow down with them, or eleminate some of them until you find out if you have MTHFR, please look into the following:
http://howirecovered.com/active-b12-therapy-faq/#detox
Parasite herbs might further harm your digestion, it did mine. I got very bad from them, I don't recommend killing parasites anymore, very rough on the entire body, very very hard on the liver and does not work, IMHO. Your liver will be something you will want to look into in terms of clearing depending on how well you recouperate from the above diet.
I hope you get better soon and can have your old self back! Keep the faith, and ask for guidance from God, or meditate and ask yourself what the answer for you is, we are pulling for you to have a total recovery and be better than ever, you can do it!
(p.s. the men in the white coats never helped me, they only made me a lot worse, I avoid them and my health continuously improves, they truly do not undertand health, only their brand of "medicine":)
HappyManatee
- Re: Mysterious chronic illness phelp
9 y
5,669
This is a reply to # 2,237,824so what dental surgery did you have?
people and docs look everyplace but the jaw and good docs start there - Re: Mysterious chronic illness Sempiternal22
9 y
5,794
This is a reply to # 2,237,824I'm in a very similar boat, I think we could even be twins. Especially with the horrible brain fog. It's like having highway hypnosis all of the time. (22 years old). I went from Ritalin to Adderall to Nuvigil (narcolepsy medication) and I am still struggling to have enough cognitive power to watch a tv show. -I've also been taking crazy precautions measurements for leaky gut.
About 2 months ago I bought Lauricidin, some Lyme patients have used it as a natural antibiotic, it helps to break down bacteria, heavy metals, and parasites.
Up until I used the Lauridin, "parasites" had not really crossed my mind- but then my bowl movements became very heavy, and fowl smelling. I though this might have been a sign of heavy metals, but then I realized there were worms inside.
I took a low dose of Lauricidin for two weeks, stopped for a week so that I didn't overwhelm my body. I had started on the regular dose, which was way too much.
During the break I suddenly had notable flu like symptoms, rashes, infectious snot, horrible lower back pain, canker sore w/ ear infection.
I began taking it again once I started to feel well enough to go back on. Now the worms have been coming out consistently, to where I can pull them out, put them in baggies with rubbing alcohol and say "MY BOYS!".
-Not sure how much of a role these guys play yet. Not only do worms cause lows of nutrients, but they apparently hijack cells that can trigger re-activation of Epstein Barr.
And hey, Lauricidin is very safe and very effective. Even in auto immune issues!!! I highly recommend giving it a try, as it tends to bring out the underlying issues so that you can see them more clearly.
- Re: Mysterious chronic illness mlg115
9 y
5,507
This is a reply to # 2,238,628Hmm, I'm definitely very interested.
Did your brain fog go away??
Also, how did you get it? Was it prescribed by a doctor? I live in Canada.
Thank-you!!- Re: Mysterious chronic illness Sempiternal22
9 y
5,438
This is a reply to # 2,238,736Sadly my brain fog is still an issue :< Nuvigil does help with this, I'm sure that if there wasn't any underlying physical issue it would be working wonderfully. The first day I took it, I read half a book, which is insane for me to be able to do. Nuvigil/Provigil can only be prescribed by a sleep specialist, mine was given to me on my first appointment without ever doing a sleep study. However, it turned out my insurance won't cover it without a sleep study being done. (Which I'll be doing in the near future) I hope I can continue using it, as it's help has been noticeable.
Gingko has helped for me as well. Sometimes "Smart Drugs" will help with brain fog and cognitive function, maybe look at some Nootropics.
http://nootriment.com/what-are-nootropics/
The Lauricidin can be bought without prescription, it's expensive (my jar was $40) but this jar will probably last you 75+ days.
http://lauricidin.com/
It does help alleviate symptoms, but you have to get through the Herx before this happens. During the Herx reaction everything will get worse, but this is only because all the toxins/bacteria/ parasites are being broken down so they body can get rid of them.
The Herx may last for weeks, it's best to have a steady low dose-- especially if you are killing off parasites, or accidentally find out you are killing off parasites while taking it.
- Re: Mysterious chronic illness Sempiternal22
9 y
5,791
This is a reply to # 2,238,736**I should also mention that I'm taking "Curacel" which is a mixture of Curcumin, green tea extract, and resveratol.
It's marketed for "Healthy Cell Growth, Especially in Breast and Prostate Tissue"
HOWEVER!~*~* In addition the fighting oxidative stress, and working as antioxidents, all 3 of these ingredients are used to inhibit microglial activation.
Over activation of microglia promoting inflammatory cytokines is what causes "sickness behavior".
This is a major part to developing Alzheimer's disease. In Alzheimer's a large portion of microglia have become "primed" sending each cytokine they come in contact with into it's inflammatory response.
There has been major discussion in the past 3 years, theorizing that some individuals exhibit easily activated microglia. Leading to the body over responding to pain, and promoting sickness behavior-- as seen in fibro, and Chronic-Fatigue-Syndrome (well, now, SEID) patients.
---------------------------------------------------
"When activated, microglia can produce high quantities of the excitatory neurotransmitter glutamate. 1 2 So when microglia are chronically activated, as they are in ME/CFS, this can result in high levels of glutamate in the brain, which can over-activate NMDA receptors and in turn overexcite neurons. High levels of glutamate in the brain have been suggested as a possible cause of the neurological symptoms of ME/CFS (such as brain fog, fatigue and sensory gating deficits).
Chronic microglial activation occurs in persistent coxsackievirus B infections of the central nervous system,1 and of course coxsackievirus B is strongly linked to ME/CFS. Thus a coxsackievirus B infection of the brain may in part explain why chronic microglial activation is present in ME/CFS.
Diseases that also exhibit chronic microglial activation include: hepatitis C,1 Lyme neuroborreliosis,1 systemic lupus erythematosus,1 schizophrenia1 and bipolar disorder;1 interestingly the first three in this list have very similar fatigue and brain fog symptoms to ME/CFS, suggesting that these symptoms may be underpinned by chronic microglial activation.
In order to reduce these ME/CFS symptoms of fatigue and brain fog, inhibiting microglial activation may be a good strategy."
http://forums.phoenixrising.me/index.php?threads/chronic-microglial-activation-in-me-cfs-and-its-possible-treatment-using-microglial-inhibitors.34164/
-----------------------------------------
^^^ Follow that link for a list of inhibitors!!!
- Re: Mysterious chronic illness phelp
9 y
5,956
- Re: Mysterious chronic illness phelp
9 y
5,956
- Re: Mysterious chronic illness Sempiternal22
9 y
5,438
- Re: Mysterious chronic illness mlg115
9 y
5,507
- Re: Mysterious chronic illness HotelParasite
9 y
5,943
This is a reply to # 2,237,824Did any of the the Doctors test you for malaria, yellow fever, chicamaugua,(I know I spelled that wrong) or Lyme disease? Did you tell them about your trip?
Use the net and look up all the diseases endemic to Northern Thailand and ask the infectious disease Doctor to test you for them. I'm no expert but that is what I would do next if it were me. Most times you have to solve things yourself.
Good luck! - Re: Mysterious chronic illness joegrane
9 y
5,918
This is a reply to # 2,237,824A Metametrix stool test found two parasites that caused me to have some of those symptoms. I also lost 10 lbs very strangely while trying to maintain weight!
In less than a week on medication--Alinia--I was back to normal. I also took generous doses of probiotics after the medicine.
- Re: Mysterious chronic illness grizz
9 y
5,750
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