Thank you so much for your response!
I haven't been able to treat for anything as nothing shows up on the tests so doctors all think it's in my head.
I was hoping 2 rounds of humaworm would help if there was something there but I guess not :(
I have an appointment with my infectious disease doc again on Monday and am going to come prepared with all this info! Als have one next month with a naturopath who apparently knows a lot about this kind of stuff and Lyme so maybe a fresh set of eyes will help me to get answers!
Thanks again...I've felt so alone in all this so I really appreciate getting comments from people!