My Series of Unfortunate Events Morg... 
ScottE54
11 y
5,586
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Hello I hope everyone is doing as well as they can. I've been suffering from Morgellons for about 6 months now. My immune system suffered exponentially the past year due to prolonged stress, a predominantly acidic diet, insomnia and finally the straw that broke the camel's back - bed bugs. I also worked in an auto parts factory for a couple of years in the paint room. I'm sure this contributed to my weakened immune system as well due to the toxic chemicals that I used on a daily basis. Additionally I had wisdom teeth surgery in January of 2012.
I have never abused drugs & alcohol, however I did start to use marijuana and drink alcohol more often to cope, which was a terrible thing to do. I snorted a line of cocaine at a party during my downward spiral. I know I should've taken notice of the shitstorm I was creating in my body. Since I have eczema & Psoriasis I have used Hydrocortisone, Zovirax & Fucidin. I was not using any of these medications regularly when all of this happened. I used Zovirax occasionally when I had a cold sore, which was not that often. Every few months.
When things got out of control is when I brought bed bugs home with me to Toronto, Ontario from a trip I took to Philadelphia. Took me 2 months to discover that I had them and another couple of months to fully eradicate them. The havoc the little critters wreaked on my immune system & well being was unbearable. I'll never forget about it. Unfortunately once I got rid of them my immune system was decimated and has never recovered. I have all the symptoms of Morgellons. Excessive hair loss/thinning/coated in biofilm, biting & crawling sensations, lesions on my hands with protruding fibres, black specks/sand when I exfoliate, chronic fatigue, depression, mood swings, emitting static energy especially around cotton/electronics/metal & never-ending mucous/conjestion.
By far the worst symptom I have is my lips are constantly raw/sore/peeling/cracked/swollen, which makes eating/drinking extremely difficult. I believe this is called exfoliative chelitis, however I'm sure there is a connection to Morgellons as other sufferers have commented that it gets into cracks in the lip. Smiling and laughing are pretty well impossible to do without painful consequences. I feel my lips crawling as well. I manage to do okay at college with the use of Vaseline & Desonide 0.05%, but my life is total hell and my friends often wonder why I'm not myself some days. I have suffered from eczema & Psoriasis for my entire life so I'm no stranger to autoimmune diseases I just never thought I'd suffer this much.
I try to stay positive, pray and maintain my faith, however I feel like more of a Frankenscience experiment gone horribly awry than a human being. I'm only 23 and I just wasn't ready for this devastating of a blow. I would never wish this kind of suffering and anguish on anyone. Recently I have been giving 100% trying to beat Morgellons through routine cardiovascular/abdominal exercises, supplments (vitamin C, CoQ10, acidophilus probiotic, omega 3 fish oil, CALM magnesium, vitamin D3) and a healthy/nutritious diet (organic eggs & salmon, leafy green vegetables, limitd fruits (green apples/lemons/limes) to get my body alkaline. I am in the process of seeking out a naturopath and I plan on buying a far infared sauna when I can afford one.
I apologize about the long story. I truly don't mean to sound vain I know very well that there are people on these forums who are going through far worse than I am and my heart just goes out to them. I just want to know if anyone has any suggestions for Morgellons Exfoliative Chelitis conflict. On the Exfoliative Chelitis forum a member suggested using Desonide 0.05% (which my Dermatologist prescribed me) and Vasline over top of it to stop the peeling and give me some relief. If I do this long enough I might even be able to cut down on the chronic inflamaton and smile again.
What worries me is that I have heard that petroleum & steroids can make Morgellons even stronger and suppress the immune system further. Would I still be able to detox/progress/build back up my immune system using this combination. I'm just not sure what to do. Perhaps someone could recommend a good organic moisturizer/lip ointment without petroleum/steroids. I've tried going without it, but being at college its just utterly humiliating and gets me down when I need to stay positive. Thank you for your time.- Re: My Series of Unfortunate Events ... Bugbuster
11 y
6,495
Tapeworms, Round worms, Flukes?
Hulda Clark Cleanses
Remove Parasites and Worms
Get rid of the life suckers!
This is a reply to # 2,025,977Hi there,
You are going through much difficulty and I am very sorry to hear this.
Just a few suggestions for now.
Whatever reduces stress, helps you to sleep is what is best for this fragile situation in your life.
Though the ointment and steroids are not the best, I believe sleep and reduction of stress is very important.
If it were me, I would take baby steps towards builiding up your immune system and getting away from the sterioids.
Continue to clean up your diet.
Include in your diet:
Organic eggs and meat (mostly chicken and wild caught fish)
Organic /non GMO foods
Plenty of veggies
Blue berries, raspberries, strawberries otherwise very little fruit
Coconut oil, olive oil, hemp oil, red palm oil
Rice, Quinoa
Almonds, Walnuts, Pine nuts
Little dairy: Cottage cheese, Kefer, Yogurt with no sugar
Xylitol (excellent sugar replacement)
Red wine (only in moderation)
Avoid:
Sugar (Sugar is poison to your body)
Flour (gulten forming)
Simple carbs such as Chips, Popcorn and crackers, etc.
Soy
canned food
Milk
Canola oil, saflower oil
Splenda or aspartame in any form
Alcohol (if you drink, drink only 1 glass of beer or wine but not more)
Supplements:
Diatomaceous Earth (1-2 Tablespoons)
MSM (I use 2 tsp. daily)
Digestive enzymes daily with meals and between them
I used many supplements and have more diet suggestion. I will need to organize the whole list and post it.
Topically, you may want to try using iodine directly on the wounds, try it in a small area first to test tolerance.
It will burn like crazy for a few seconds, but then calm down. Iodine will stain the skin so you may want to do this when you can stay home for a day or two.
Then I would make a solution of melted monolaurin which can be melted in a pan and add water. Mix well and when it is still warm (not hot) apply to wounds.
If the iodine is too difficult just try the monolaurin.
Please remember though, Morgellons is mostly an internal problem that is showing up on the skin.
The more you can detox and clean up your diet the better you will get.
I had a terrible bout with Morgellons and now I am doing very well.
You can get there also, but it will take time.
Stress reduction was the biggest thing for me to do in order to recover.
I hope this helps you,
God bless,
BB
PS. The hardest part of learning to reduce stress was staying away from toxic people and conversatons. Though we humans don't mean to hurt one another, it happens and I had to learn to be aware of what was stressing me out. I had to learn to put my own needs before others at least until I got well.
Here is more info on things I did:
- Re: My Series of Unfortunate Events ... ScottE54
11 y
5,064
This is a reply to # 2,026,023Thank you so very much for the suggestions and additional protocol link BB. I'm glad to hear your doing well what great news! Your inspirational words mean so much to me right now. It gives me hope that I can still salvage my future and get my immune system back on the right track.
I definetely agree with you that diet plays a critical role in Morgellons. When I was stressed out with the bed bugs my diet took a nose dive. Fast food every other day, cake, cookies, pizza and chips were a mainstay in my diet. Needless to say I definetely did some serious toxic damage to my gastrointestinal tract.
I have been buying a ton of organic leafy green vegetables lately. In my fridge right now I have kale, collard greens, spinach, brocholi & cabbage. I eat a couple of organic eggs every day and for dinner I usually have organic fish or chicken. I avoid GMO, sugar, flour, alcohol & coffee at all costs.
From your advice on diet BB I feel that the main things I have to refine in my diet to be sucessful are binge eating, eating smaller portions, eating slowly and cutting down on the amount of fruits I eat. I crave fruit in the morning when I wake up before I go to class. I know everyone is different when it comes to diet & nutrition, but how many meals did you typically eat a day during your recovery? I'm a smaller guy around 150 pounds if that helps. Would it be a good idea to cut the green apples and lemons out of my diet? How much fruit did you allow yourself to eat each day? Did you not eat any fruit some days? I'd be fine with organic berries in fact I'd actually prefer organic berries over apples & lemons since it would be much easier to eat considering my sore lips. The Xylitol sounds promising I'll have to read more about that.
Sorry I got a bit carried away there with the questions BB. I just want to get to the root of this problem with my gut. The probiotic & digestive enzymes have helped a great deal, but it still sounds like a warzone sometimes. Reducing stress is going to be key for me I'm a high strung person by nature. Exercising seems to be the best relief for me. I'm afraid I haven't been getting enough sleep lately. I need to make sleep a greater priority so my body can properly repair itself. I want to replace my cotton sheets, but I'm not sure what material I should go for. Will the static feeling I'm getting with my bed sheets and clothing fade away as I start to get better on my way to recovery? Any procedures I should take?
Thanks again for taking the time to help me out everyone I really appreciate it. - Re: My Series of Unfortunate Events ... Bluerabbit
11 y
5,161
MoreThis is a reply to # 2,026,023thanks Bugbuster for the awesome to do list. One thing I want to add, I'm wearing magnetic braclets and they almost immediately stop the popping sounds in my ears/head. Brain fog and other symptoms seem to disappear. My Chiro has a magnetic pulse machine which helps in the same way except it's a more intense "dose". morgellonscure.com sells the magnets. You can order a few and then make them yourself if you want, which is what I did.
Take care!- Re: My Series of Unfortunate Events ... Bythc
11 y
5,775
MoreThis is a reply to # 2,026,115Hi,
Morgellons is so miserable and so bizzare to go through, my heart goes out to you. The advice you've recieved from the previous posts is most excellent. Here are a few of the things that worked on my morgellons. I almost forgot about the static, it does go away. In the way of food, add onions and garlic. Drink distilled water.
Goldenseal teabags, first make a cup of tea and drink it. Save the teabag, use the teabag on your lips as a poultice. It will draw out the morg infection and kill it. Take a vitimin A pill break it open and put it on your lips, then take castor oil and cover your lips. Keep a coaating of castor oil on your lips. Use the goldenseal a couple times a day.
Cheers
Bythc
- Re: My Series of Unfortunate Events ... Bythc
11 y
5,775
- Re: My Series of Unfortunate Events ... ScottE54
11 y
5,064
- Re: My Series of Unfortunate Events ... UserX
11 y
4,842
This is a reply to # 2,025,977Have u tried using sulphur soap daily? U can get it on ebay very cheaply. Worth a try. And coconut oil for dryness.
- Re: My Series of Unfortunate Events ... ScottE54
11 y
4,853
This is a reply to # 2,026,674Yes I ordered the Sulfur Soap a few days ago thanks for the recommendations.
- Re: My Series of Unfortunate Events ... ScottE54
11 y
4,853
- Re: My Series of Unfortunate Events ... #144623
11 y
5,070
Tapeworms, Round worms, Flukes?
Hulda Clark Cleanses
Remove Parasites and Worms
Get rid of the life suckers!
This is a reply to # 2,025,977I have strongyloides, and nothing much has worked for my exfoliative chelitis. It will disappear sometimes for weeks, then come back with a vengeance. I did find some lip balm that works well. It's Burt's Bees replenishing lip balm with pomegranate oil. Costs about $3 a tube, unless you order it from Amazon, where I found it for $2 a tube with postage in a 4 packs for the skin problems, I recommend Noxzema. It was originally designed to treat eczema (no-xema), and I find that when I get sores on my arms, face and scalp from the strongyloides, it dries them up faster than anything else.
I have all the symptoms of Morgellons except the fibers. I carefully shake out my bedsheets before I get into bed at night and awake with what feels like sand all over them.
If you notice that your sores appear after a "sting" feeling, look to see if here are two holes or tiny slits in your skin close together. If so, you may have strongyloides too.
I suggest you try to do ICU'S protocol for Morgellon's and see what happens.
//www.curezone.org/forums/fm.asp?i=1635638#i
Hope it helps.
- Re: My Series of Unfortunate Events ... ReallyOUReality
11 y
4,830
This is a reply to # 2,025,977Isn't this terrible! I do not think this is your fault.
Blame is another subject though.
Vacuum your environment as much as possible.
Spray vinegar everywhere.
Eradicating any water in your environment.
Look up Collembola, Gmo's and pheromones in Gmo's.
Detox you body.
Then write and share your findings. - Re: My Series of Unfortunate Events ... #154735
11 y
4,794
This is a reply to # 2,025,977Hi
Only thing I can say is far infared sauna therapy can help with detoxing your body of all the toxins. Good luck.- Re: My Series of Unfortunate Events ... ScottE54
11 y
4,827
This is a reply to # 2,028,845Thanks for the helpful messages everyone. Really appreciate all the info. I agree that playing the blame game at this point is counterproductive. I just need to stay focused on recovering and getting my health back.
- Re: My Series of Unfortunate Events ... ScottE54
11 y
4,827
- Re: My Series of Unfortunate Events ... #168214
11 y
4,490
Tapeworms, Round worms, Flukes?
Hulda Clark Cleanses
Remove Parasites and Worms
Get rid of the life suckers!
This is a reply to # 2,025,977I know EXACTLY what you are going through. I have all those same symptoms. Do your lips peel in strips? I don't have Morgellon's, but I do have strongyloides and lupus. I started parasite cleansing a few years ago, and they are now in my skin and have ruined it. My arms are nothing but scar tissue. I feel so ugly.
Have you tried castor oil on your scalp to grow your hair back. It really does help.
I don't know if I can go on any further with all that I'm going through. To top it all off, I'm broke and unable to make a decent living due to my illnesses.
- Re: My Series of Unfortunate Events ... Bugbuster
11 y
6,495
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