16 day headache--suggestions? 
Melanderso
13 y
2,550
I've tried most of the over the counter stuff, at double doses. Benedryl, prescription naporxen. The herb tumeric, an anti-inflammatory. I didn't go back after 3 acupunctures because it took 2 weeks for my arm to feel better after they put the needle in the wrong place or something. The pain is over the top of my head from ear to ear and all over my jaw. It buzzes and burns and seems to be getting worse. My prmary had no suggestions. I am starting to feel crazy.- Re: 16 day headache--suggestions? clarebear
13 y
2,437
MoreThis is a reply to # 1,842,670Hello,
Sorry to hear you are having a bad time. I have recently been diognosed with vitimin B12 and Magnesium defficiency as well as a load of other stuff. Anyway I know that defficiences in certain vitimins and minerals can cause all sorts and that magnesium deffininately helps with headaches!
Could be work looking in to. I am now on a vitimin/mineral programme and taking very high doses. I'm praying this is going to make me feel a lot better! love to you!
Clare xxx - Re: 16 day headache--suggestions? cynthleal
13 y
2,378
MoreThis is a reply to # 1,842,670Oh Lord having a headache for this long it's insane, every day that passes by I hate mirena more and more. It makes me really mad that this pharmaceuticals and Dr's don't have any remorse for humans, it's all about the money. I'm so sorry that you are going through so much pain right now, I wish I knew of something that can help you. Dont feel bad I have been going through some bad days lately.
I really hope you feel fetter soon.
Cynthia- Re: 16 day headache--suggestions? Melanderso
13 y
2,307
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This is a reply to # 1,842,700Thank you so much. It means a lot to be able to come here and find support. My husband just said, "You should take something." Wow, thanks honey. If I didn't have you ladies I don't know what I would do.
I"ve been talking lots of vitamins. Maybe too many? I started the progesterone cream again a week ago. 21 months and I'm still not making my own progesterone. Maybe it's making the "normal" pressure I've had on my head for 4 years worse? The Dr. said the symptoms of estrogen dominace get worse for a while on the cream as things try to adjust.
I too am so angry at Mirena. I feel like it's ruined every system in my body. My cousin had a baby this week. I think if I wasn't so sick I might like to have a second child. But my tests look like I'm not even ovulating any more anyway. I am just so angry and tired.
Thanks again for being there. I know better days will come--just wish they would hurry up!!
More
- Re: 16 day headache--suggestions? srharder
13 y
2,406
This is a reply to # 1,842,884I am 2 yrs. post as of July 29th. I have been about 80% or so. Feeling better, can function fairly well.Then, this past month I started getting that feeling of movement. I really notice it when I am sitting still. If I keep moving, not so much.Kind of like when you get off of a cruise ship. I also have had a little anxiety and what seems like a chronic tension headache. Right at my temples and across my forehead. Not very apinful, more like a slight buzzing or something. When it's really bad my eyes are really fatigued.The pressure makes me want to go to sleep and wake up anew. My periods are like clockwork, but I have never had my hormones tested. I have major medical for ins., so it would cost me a fortune to have the dr.s test it. It would be worth it except, I know they are just going to say I am in the "normal" range. Going to try a naturopath in my area. To make a long story short, can totally relate to that constant headache or pressure. 2 yrs. and it's still not gone. Maybe 3 yrs is the magic #. Let's HOPE!
- Re: 16 day headache--suggestions? Melanderso
13 y
2,398
Clarkia Tincture
Hulda Clark Parasites Cleansing Tincture, 2 oz, 4 oz, 8 oz, and 16 oz
9 Day Juice Fast Kit
Juice fast without hunger.
This is a reply to # 1,842,913Srharder,
So the pressure makes you feel sleepy, too? I've had that pressure for years now and it seems to be the source of the fatigue and brain fog. The harder it presses down the less I can think straight. It wasn't too awfully painful until recently, when it joined together with the jaw pain I've had for 4 months. I wonder what the physical cause is? And why did it wait so long to crop up?
I'm supposed to get a $250 saliva test in 2 months. Saliva is not covered by insurance at all, and neither is the cream. The last MRI was over $600 and just said 30-40 tiny lesions--possible inflammation or vasculitis. No help at all. So even when tests show a little something no one knows what it means!
Thanks for replying, because it reminds me this comes from Merina like everything else! But I'm sure to be insane by the 3 year mark! Take care.- Re: 16 day headache--suggestions? Laredo7
13 y
2,577
Clarkia Tincture
Hulda Clark Parasites Cleansing Tincture, 2 oz, 4 oz, 8 oz, and 16 oz
9 Day Juice Fast Kit
Juice fast without hunger.
This is a reply to # 1,843,065Hi all, I had intracranial hypertension due to low progesterone/estrogen dominance....though my estrogen levels are not high, just higher than progesterone which creates migraine and high pressure in the head. This is all very intimately connected with low zinc levels which causes copper retention copper is very inflammatory and a brain stimulant which causes severe anxiety, cycling thoughts etc. Mirena and other birth control pills cause this zinc/copper imbalance as well by shutting off out natural progesterone....you will notice if you chart your cycle that as estrogen and copper rise your symptoms get much worse, like during ovulation. Have any of you tried taking natural sublingual pregnenalone to help your body make progesterone? Also low copper diet and high doses of zinc help too. Best of luck to you all it took me 5 long years of research to figure this out and find my way back to better health- Re: 16 day headache--suggestions? nomirena
13 y
2,304
This is a reply to # 1,843,105PM Laredo7:
How do you know which type and how much to take ?
Nice to hear from someone who is doing well after this nightmare !!- Re: 16 day headache--suggestions? Laredo7
13 y
2,229
This is a reply to # 1,843,120I'm sorry I'm confused about your question, which type and how much of what?
- Re: 16 day headache--suggestions? nomirena
13 y
2,375
This is a reply to # 1,843,124I should have been more clear....
sublingual pregnenalone....I looked up on line and there are different types (liquid, pills, etc) and different dosages. Which one do you take, how much and how did you get to that determination ?
Thanks.
- Re: 16 day headache--suggestions? nomirena
13 y
2,375
- Re: 16 day headache--suggestions? Laredo7
13 y
2,229
- Re: 16 day headache--suggestions? tlmms4
10 y
1,244
This is a reply to # 1,843,105I've had Idiopathic Intracranial Hypertension now for 1-1/2 years and can't find a cause. Do you have any additional support info on the estrogen dominance theory? Any info would be appreciated. Thanks.
- Re: 16 day headache--suggestions? nomirena
13 y
2,304
- Re: 16 day headache--suggestions? srharder
13 y
2,201
This is a reply to # 1,843,065Melanderso,
I feel drained by the end of the day. Not body tired, head tired from the pressure on my forehead and eye area. I live in central valley ca and it could be allergies. I think it is Mirena related. Once the really bad brain fog lifted, I was left with this. It helps to keep busy. I mainly notice alot of things when I am trying to relax or do some computer work. I guess it could be worse. The heart palps and weird spikes in heart rate are few and far between.Legs still get tingly once in awhile. Anxiety much better. Recently, drove all the way to the coast (3hrs)and was fine. Something even a year ago gave me anxiety just thinking about it. I still have this overall feeling of doom or that something is really wrong with me. I feel great, normal most days and then back to Mirena crap. Happens during ovulation and period time. Definately hormones!! Which dont get me wrong I function much better than 2 yrs ago. Its just frustrating that its not completely gone. Hopefully, for the both of us, it keeps improving and we wont have to go insane. LOL. Best wishes for continued recovery.- Re: 16 day headache--suggestions? Melanderso
13 y
2,400
This is a reply to # 1,843,141Thank you! These setbacks are very frustrating! At least I don't hate my husband and wish he would die like I did while the Mirena was in! That was scary. I must say my leg tingling seems a bit better--I think the magnesium helped. But it's not fair to feel worse during ovulation (10-12 days) and before period (5+ days) because in a 25 day cycle that is pretty much the whole month!
Well, I'm going to try zinc because that seems easy enough. (Thank you, Laredo, for suggesting that). I looked up copper to see how to avoid high levels. Turns out chocolate has a high level of copper!!! Figures. But this is day 18 of headache so I guess I'd better put the Hershey's away. . .- Re: 16 day headache--suggestions? Laredo7
13 y
2,397
This is a reply to # 1,843,344hi there, just so you know the more depleated your body is in zinc the more it will seem to cause symptoms in the begining, this is because zinc is pushing out copper and excreating it, if you have slow bowels it's importatnt to get them moving with magnesium citrate powder to that the copper can be flushed out... that improved for me after a few weeks and the zinc is a lifesaver especially for stress....also B-6 is vital for making progesterone so that's a good one to take and higher dose vitamin C, i take mine as magnesium ascorbate, if you keep on with the low copper diet and high zinc this will balance out, there are many docs who swear by this combo for curing MS, Fibro, and many mental illnesses, keep me posted:)
- Re: 16 day headache--suggestions? Fairykisseznm
13 y
2,241
This is a reply to # 1,843,355Laredo,
I know you got this question earlier and sorry about the repeat but in what dosesages are you taking of your supplements?
Thank you for you help.
Jen- Re: 16 day headache--suggestions? Laredo7
13 y
2,218
This is a reply to # 1,843,546Hi Jen, I'm a Jen too:) I take 100 mgs of zinc, 800mgs magnesium, adrenal glandular called sub adrene 2 droppers in the morning, 50mgs to 70mgs of pregnenalone, 50mgs b6, 3000mgs vitamin c, D Ribose 12g, simplex F 3x a day and I follow a strict low copper diet. I think progesterone is the key but I could not tolerate it even as a lotion so preg is a great way to raise it, keep me posted:)
- Re: 16 day headache--suggestions? Fairykisseznm
13 y
2,172
- Re: 16 day headache--suggestions? nile
13 y
2,649
This is a reply to # 1,843,552Oh my gosh, I think you might be on to something. I Googled on Copper toxicity, and the symptoms describe my experience to a T. I just ran across a website similar to this one for Paraguard users (the Copper T IUD), who are having identical issues. One posting even said they wished they'd have gone with the Mirena! Here's that link:
http://www.mothering.com/community/forum/thread/916122/copper-iud-and-side-ef...
This site talks about it, and how it can affect the fight or flight response, and mess with norepinephrine - the only lab test I had which was abnormally high.
http://www.holistic-back-relief.com/copper-toxicity.html
Here's another interesting one:
http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm
Verrrrry interesting. PM Laredo7, thank you for the post, and if you have time, can you post more details about what your post-mirena journey was like? I've been on this road for well over 3 years now, and am still not 100%. Would LOVE to be over this!
-nile- Re: 16 day headache--suggestions? Laredo7
13 y
2,533
This is a reply to # 1,843,614i'm happy to help because i know what torture it can be trying to find the answers....i've been using my investigative skills and it finally all came together....copper toxicity is inevitable with use of any sort of birth control especially the copper iud but mirena works in a similar mechanism in that it makes your estrogen levels rise by shutting off your natural progesterone, estrogen dominance makes you loose zinc and it raises copper....copper can make you feel mentally unstable ie racing thoughts, detached from reality, mood swings, cause major pms, migraines, uterine fibroids, cystic ovaries and breasts, buzzing/vibrating sensations (due to it being a strong electrical conductor), sluggish liver as copper is toxic to the liver etc etc....luckily it can be fixed fairly easily by taking the detox supps and a low copper diet. this can take about 3-6 months to complete and as you go your body learns to make progesterone again....i needed relief sooner so i used pregnenalone but i'm so glad i did, i went from being housebound with severe anxiety to going on vacation to a casino with my boyfriend within 3 weeks of starting preg.....copper detox was very tough for the first 3 -4 weeks because it made the symptoms worse everytime i took zinc but taking molybdenum and taurine with zinc really calmed down the symptoms, i recommend 2 resources, first look up the andy cutler protocol for copper detox and also get the book "why am i always so tired" by anne gettleman (sp?) her book was what i used for my diet but do not follow her detox as ALA makes you retain more copper in the bowels which is no good for us. i started this 3 months ago and the results have been astounding.....i was almost suicical and having a mental meltdown....my symptoms are still a bit more during
ovulation but it's WAY better than it was and i still have 3 more months on the detox since i was copper toxic for 5 years for others it may be shorter. also look at your milti vitamin if it has copper do not take it, a woman should never supplement extra copper we tend to retain it anyway. best of luck all, feel free to ask any questions and keep me posted on your progress...you will all get well our bodies want to heal and will do so is you give them the support they need. best wishes- How are you feeling shira shira
12 y
1,865
This is a reply to # 1,843,675Correct me if I'm wrong.....Did you mention how Zinc is important for those with estrogen dominance? I had the Mirena in 2008-2009 and my symptoms have returned. I believe I have estrogen dominance and was told I have hypothyroidism and low adrenals...Do you suggest I take Zinc and Iron? I do have both. I just want to feel better. Thnks!!!
- How are you feeling shira shira
12 y
1,865
- Re: 16 day headache--suggestions? Laredo7
13 y
2,533
- Re: 16 day headache--suggestions? Fairykisseznm
13 y
2,172
- Re: 16 day headache--suggestions? Laredo7
13 y
2,218
- Re: 16 day headache--suggestions? Fairykisseznm
13 y
2,241
- Re: 16 day headache--suggestions? Laredo7
13 y
2,397
- Re: 16 day headache--suggestions? Melanderso
13 y
2,400
- Re: 16 day headache--suggestions? Laredo7
13 y
2,577
- Re: 16 day headache--suggestions? Melanderso
13 y
2,398
- Re: 16 day headache--suggestions? srharder
13 y
2,406
- Re: 16 day headache--suggestions? Melanderso
13 y
2,307
- Re: 16 day headache--suggestions? clarebear
13 y
2,437
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