I told him that and he won;'t he said terbinafine is not very good at all. so he wont. I'm going to be on such a high dose that It might work, well see.... did you see my above post about the other doctor thinking it was the lab that contaminated it? what do you think?
sky12, i got those results then had another appt with a respected Ent at USC she told me she doesn't under stand this and if this is so that I have that then I would be dead (thanks doctor like I wasn't already more scared than ever) she said sporanx (sp?) is very bad and my liver blah blah all she did was scare the shit out of me. But she will be able to operate on the bone tumor they found in my frontal sinus later on if it keeps growing fast. right now I am not strong enough. and she does not think it is causing my problems. she also thinks the cultures got contaminated at the lab! so I think I have answers one min then the next the next doctor tells me this!! my mind is racing, this is too much for me.
My infectious disease doctor is running a stool test specifically for fungus/yeast to find out what strain is in it. to see if the sporanox will kill that too. If you think it might be you need to get to a good infectious disease doctor and ask for a spitum test (i hawked and spit and made myself cry and blew my nose in itcause I could not get much flem otherwise)and get a stool test specific for yeast candida that will tell you which strain. I had a stool test at kaiser 3 years ago that said "many yeast" but did not tell me which kind and my natural doctors test came back no yeast, so this infectious disease doctor is where I actually got some results. I turn in the sample tomorrow then I don't know how long I have to wait...
YES I have bad bad bad candida, I think one of the worst on here besides a few others.I had to quit my job i loved and barely can get out of bed. I had the candida long before this new aspergillus thing... . so my symptoms started 3 years ago after tons of antibiotics for tonsil infections. diarrhea so bad I would almost cry, then constant vomiting,acid reflux to the point where I wouldn't eat anymore and still had it bad. then ear fluctuations, could not pop them, very dizzy, hair loss, nail fungus, memory loss, brain fog, neck shoulder pain sooo bad, many more then this last oct came down with a UTI that would not respond to two rounds of antibiotics, then got a bad cold that made me cough for months till my heart would hurt, went to doctor they gave me inhalers and steriod pills they triggered asthma and made it all worse nails turning blue, and vertigo unlike anything I have had before lungs felt tingly and briloy and weird and felt like they would fill with liquid. got off those inhalers stayed warm and in bed and took core level lung vitamins (30 a day) and my lungs got better for about a month then I came down with this sinus infection that does not show on ct scans and I don't have colored mucus. but have extreme pain and pressure and fever, swollen glands and lypth nods, post nasal drip, and extreme vertigo and bad ear pain put on 20 days of antibiotics cause 3 doctors (including my natural doctor) said it had to be bacterial. The 2 ent's i saw at USC think I don't have a sinus infection AT ALL cause it doesn't show on the scan. she says my pasage ways are slightly swollen. at this point I'm going nuts NUTS. I cried harder than I ever have when I got home, she scared me so much saying I would die if I had that. SO do I believe the cultures or this ent from USC????? she wants me to do another culture, she said in one breath I would be dead if I had that then a few mins later said "the mayo clinic says 97% of healthy people grew that in there cultures" but she must have misread because I too have read that and it said 97% of SINUS infections are fungal, not healthy people without sinus problems. I'm going to start the sporanox tomorrow. pray to god this works if not I'm out of options...
tell me what your symptoms are. the lung/ sinus/vertigo issues are the worst ever, anyone who doesn't have these symptoms is soooo lucky, the other candida symptoms just seem so trival when faced with this!
adieu, so I get to the pharmacy today and the doctor f'ed up and only put in 200mg a day so I got half as many pills after his whole speach to me about hitting this hard with 400mg! so now I have to call tomorrow and fix this. Are yours capsules? I thought they would be tablets like diflican but there not. you take all your pills at once? is it okay if I spread out the four tablets throughout the day? I took my first one about an hour ago so far so good no crazy side effects yet... ha. I really don't like having to drink a coke with it! I asked my doctor if I could take diet he said NO! it has to have the acid and sugar. but I looked at coke ingrediants and it has aspertaime in it, I will not drink that junk. so I bought an off brand and got diet anyways. he also said no on lemon juice or vinegar instead for some reason! might try it anyways. have you noticed it working if you try lemon juice or vinegar instead of coke?
I also had this idea you know how the sinuses have little blood flow to them thats why sinus issues are so had to take care of weither there bacterial or fungal cause the medicine has a hard time getting there? well I need this s to get to the problem you know the b vitamin niacin? well if you chew them on an empty stomach they give you a "niacin flush" which brings all the blood to your face, neck and arms. I was doing this while on the antibiotic. I'm going to keep doing this and hopefully it will bring the blood supply with the itra in it to the sinuses more so than how much normally goes there.
yes the ent said there is a risk of congestive heart failure. but said it is VERY rare, if you feel anything to get to the hospital. I also have ocassional heart palps from the candida but I know my heart and liver are good and think I will be okay! the benefits far out way me doing nothing and sitting here waiting to die! if you feel you have lung issues from this I would get these tests done! do you have insurance? if so jump on this find a infectious disease doctor for these tests could not find a damn other doctor that could do these. He said diflican won't do anything at all for asper.
that harsh ent also wants me to get retested and see a imuniologist (sp??) at USC for further testing. I'm so exhausted from the millions of appts and doc f ups (for some reason I have the worst luck with every test or doctor I see like this lab lost the stool test I took a month ago so had to retake it). I just want to sleep and sleep and only wake up when I feel better :)
yes he will be keeping tabs on my liver. the ent told me that if the tests start showing damage just get off and the liver will repair itself, so not to worry too much. damn adieu you got sooooo skinny saw your new picture! I will be like that in like 6 more months prob.my weight has done some crazy things with candida. three years ago I started out at 137lbs I was small but a little thick. then got the vomiting and digestive issues and went down to 125 and looked sickly at that weight for some reason even though I'm only 5'4, I was put on stomach pills and went to town eating the cravings for sugar were unbelievable. I ate tubs of ice cream! (before I knew of candida) and shot up to 175 over the next two years!!! then started the diet on jan 30th of this year and are now down to 140, i appear small though and wear a really small size even though that weight may seem like a lot to some girls. I can stand to lose more I will be okay even if I get down to 115. after that I will start to worry. you know whats strange? is I have been doing the diet for almost 5 months and started the natural antifungals for 3 months before I took the IgA, IgG, IgM and they were still off the damn charts, so weird! feel like I have starved myself for no damn reason! the CMV (Cytomegaoviris) from my understanding is yes in the same family as mono.he says if I have CMV I also have epstein barr viris. ITs all in the herpes family doctor said its not like the cold sore form it effects the immune system like mono and makes you real tired, could have contrated it anytime in my life, don't know if it is active right now. all the antibodies test confuse me a little I know IgG is the test for if something has been in your body at one time or another right? and I think IgA is if its currently in your body? or is that IgM? My CMV IgG is 4.7 very high out of range. but my CMV IgM test is <0.9 reference range is 0.0-0.8 said it was equivocal what ever that means. so maybe its not active anymore>>?????when I google the antibodies it doesn't give me much on it. will have to ask my doctor.
oh my god you got thin!! so your saying you think you could handle 400mg a day though?
you mean no pain pills at the same time or its not alright to take them at all during the day??? does itra have any thing it shouldn't be taken with the pharmacist was crappy didn't help me at all. Like supplements are fine right? hope iodine is okay with it cause I want to continue with that, and zinc and vitamin c. I also take atavin and valium for the vertigo. hope that is okay too. Didn't really want to ask the pharmacist that cause I bought the valium off the street and do not have a prescription for it ha