I know another woman who had this condition - but hers was ultimately linked to psychotropic medication. If you take anything for Depression or anxiety, that is another possible cause to discuss with your doctor.

I had alot of body aches especially on the left side and my muscles twitched and spasmed like crazy. I am 10 months post and im getting alot better. 95% better. I know it was the mirena. I would get yours out as soon as possible and it wouldn't surprise me if you felt better within 6 months or so. Good luck

My husband suspects mirena changes the cell membranes in some way. i forget what he called it. maybe thinning of the mylean sheathe or something like that. he said its common in boxers that have gotten knocked in the head one too many times. just a suspicion. but who knows?sometimes suspicions help people come up with answers. all i know is we were lied too about mirena!!

Hi there. I am new to this forum and am blown away by all the other people who have side effects from Mirena. I was especially surprised that someone else posted something about pseudotumor because I am being ruled out for that now. I have an appt. with a neurologist on the 17th of November to figure out what is going on, only I'm pretty sure it's the IUD. I do get headaches, but I have most of my life. I've just noticed that they're kind of like migraines but not. I hear my pulse constantly in my left ear, but don't have any tumors. My left eye twitches sometimes, which it never did before, and it happens usually before the headache comes. Vision sometimes is blurry. Other things not related to pseudotumor-like others, my hair is falling out. I am growing hair on parts of my body that should only grow on men. I'm tired all the time. I've had to change my antidepressant twice because they don't work anymore. The list goes on...I had mirena the first time 6 weeks post partum in april 2006, then it came out on it's own (maybe my body was telling me something) in December of 2007, so I had it replaced and still have it. I have an appt. to get it out the second week of November. It's hard because I am a labor and delivery nurse and people ask all the time about birth control. As much as I'd like to endorse mirena (I do love not having a period) I can't do it. We'll see what happens when I get this thing out. Hopefully it will get better!

My doctor never named it that, but after a google of what a pseudotumour is, my experience is exactly the same. It was worse when I arched my back backwards.

I am a 35 year old healthy active woman. I had the Mirena IUD inserted 2 years ago, and my health has been awful. It started with a severe gallbladder attack about a 6 months after it was inserted. I have absoluely NO libido whatsoever at this point, and I am always tired. Seven months ago, I woke up with pulsatile tinnitus (the sound of my heartbeat) in my left ear. It has not stopped since. I have been to many doctors, and have been told that they are pretty sure it is psedotumor cerebri. I have double vision sometimes, I have headaches (not awful migraines, but a steady flow of headaches). I have numbness in my arms sometimes, and my periferal vision is terrible. I coudn't believe that I found these posts, as my neuroradiologist asked me if I was on birth control when he told me he suspected this disease. I said no, but I have Mirena, which releases hormones into my body. He didn't come right out and blame the Mirena, but it makes alot of sense to me. He told me that my MRI showed that I have a large empty space around my pituitary gland, which is not normal for someone of my age. I am having the Mirena removed this week, and am hoping for a reversal of my symptoms. I still can't believe the amount of information linking Mirena to the Pseudotumore cerebri. If any of you see this post, please write back to me to tell me how you are now. Thanks~ glassbyheather@hotmail.com