Personally I think there is hope. I think doctors are looking in the wrong place. My hope is in the Lord. He made our incredible bodies and He alone is our true source of healing.
I was diagnosed in 2000, but first noticed symptoms of weakness in 1994. FSH is a dystrophy that affects adults. It is a slowly progressing disease. My testimony so far is that I don't seem to have gotten any worse, and when I do the right things, I seem to get a little stronger and better. When I do the wrong things, I definitely notice a difference and seem to slide back to where I was.