Re: info on temporol lobectomy?????????

hi jlweaver
I've had this operation (for epilepsy) so I can tell you how it was for me.
I'm 45 and started having fits 5 years ago.
They became uncontrollable even on large doses of drugs. My MRI showed an AVM under the temporal lobe and this correlated with the seizure type (partial complex).
It was operable so I decided to go ahead even though the surgeon warned me of all the possible consequences eg visual deficits, partial paralysis and even death (about 6% chance that one of those would happen).
The operation was successful and I didn't die.
However, 18months on, I have the following:
double vision
marked fatigue.
I was told to expect the double vision beforehand but that it would resolve within 5 months.
Most literature also says that you will be back to"normal" within 6 months but I think it will probably take me 2 years, so be wary of these claims!
On the plus side I have had no fits since the surgery
and have spent the last 7 months off all medication, which is excellent.

I think the double vision and fatigue are linked and I still hope to make a full recovery helped by acupuncture, osteopathy, rest and Rife treatment (I'm experimenting on myself - any suggestions from experienced Rifers welcome).
Oh, and it's the mother of all headaches for the first 3 months!
That was my experience and if I get my vision back it will have been worth it.I still hope so.
As you are younger I guess your chances of a good recovery are better.Also if you go ahead, make sure you are well rested
and as healthy as possible before the surgery.
Good luck with whatever you decide. Tweet