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Stop my 8 year son old from going blind - begging for help
 
wideload42 Views: 4,478
Published: 19 y
 

Stop my 8 year son old from going blind - begging for help


Hi to all,

I am really desperate to help my young son. At age three he suffered a severe reaction to medication called Toxic Epidermal Necrolysis. He survived the reaction (80% mortality rate) but his life has been hell ever since. He lives with excruciating eye pain, cornea abnormalities and most recently a cataract. He also has asthma and severe allergies since the reaction. In a nutshell my son was poisoned. To say we have tried everything is an understatement. He has had over 48 anaethethics for eye surgeries and invasive eye procedures. To make a long story short - I had started him on Dr. Christophers eyebright over 5 months ago. We have had to use as an eyedrop as my son cannot use the eyebath and won't open his eye because it "burns the eyes so bad". The cataract only started about a month after starting on the eyebright both topically and internally. Instead of responding to the eyebright the cataract has simply progressed and my son is now completely blind in one eye. He has low vision in the other. Finally we found Dr. Schulze and we have started my son on the incurables program. We are into week three but still no improvement. The surgeons are sharpening their knives for cataract surgery with intraocular lens implant. I am desperate to avoid surgery for my son but the reality is that he has lost full vision, and does not seem to be responding to the eyebright except development of pannus and to aggrevate the conjuntivitis as there are no tears to rinse the solution off the surface. In addition to the incurables program my son is taking Brain and Lung formulas. Are we at the end of the road? is there anything else we can do? To summarize the eye conditions,cataract, severe dry eye (scar tissue blocking gland), irregular cornea, pannus, corneal scarring and vascularization, chronic conjunctivitis, lid keratinization, floppy eyelid (collapsed onto eye from loss of cartilage), meibomian gland dysfunction. One question springs to mind? my son's eyes are so dry that we have to use lacrilube ointment to stop the eyelid from sticking to the cornea, could this stop the cataract from coming out?

Sorry this is so long winded but it really is the very tip of a huge problem - any suggestions or help would be really appreciated. For myself I cannot live the rest of my life wondering if there was something more I could have done.

Helen
 

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