Re: Longterm antibiotic use caused my EC?

Sorry to hear you're going through this. I'm sure it's been an unhappy road and at times, lonely and frustrating because you don't know what to do. There are various theories thrown around here but unfortunately, no one really knows what causes EC even to this day. Some people have spent thousands and went to various doctors and dermatologists but with no luck. I myself have also done blood tests but nothing alarming came up.

Unlike you, I barely took any Antibiotics or any medications prior to the onset of my EC. Not a smoker nor a drinker either. I thought I was healthy back then since I was pretty active in sports and barely missed a day in school. Despite all of these, I still managed to get EC. I'm turning 21 and I've had this since I was 17, so that's close to 4 years. Honestly, it's been a rough road. At first, it negatively affected my life. I slowly turned into a recluse because I stopped going out as much and I couldn't deal with the fact that I have something I have no control over. I surely developed social anxiety because even now, I still have a bit of trouble socializing as well as I used to and some days I worry about how my lips look or feel, especially when talking to people.

If you look through the posts here, some people claim to be cured. No one really knows if they are cured or not, but it can't hurt to try their methods. One user who I have talked to, Ibinns I think was his name, claimed he cured his EC by not manually peeling his lips and using probiotics as he thinks EC has something to do with the gut. I could be wrong so you can just go to his profile and read through. Are his lips really cured? Who knows, but they do look normal. As for me, I cannot stand having the weird skin on my lips so I have resorted to manually peeling them every other day. It's no cure, I'm just managing through manually peeling and even to this day I wish I didn't have to do this but it's the only way I could live. When I peel, my lips look good for the next 2 days. It only takes 5-10 min of my day to peel so for the past couple of years, I've been living life by just doing this.

I know there was an FB group, but I'm not sure if it's still active since I left as soon as I got in because honestly, people there were just so depressing and were not helping at all. This forum isn't as active as it used to be so replies and support from others are not as constant, but we're all part of a very small community so I try to check the forum from time to time, hopefully helping others. If you need someone to talk to, you can always hit me a message. Tweet