Also, I haven't been here in a year. Just been managing by peeling every other day and applying cream-based moisturizers. Life is hella different, can't say I don't miss my life pre-EV but I'm still alive.
Most rare conditions are unsolvable because even the known diseases today have still not been cured even by medicine. I know a lot of people here are optimistic, but I wish they would take a realistic approach sometimes.