Lineup- thank you for the info, too. My MD said he would treat me with IV of ivermectin possibly. That still may not be enough to help but it's worth a shot if I can back up my case.
Empowerment- I am SO sorry you are dealing with this also. It's horrible. ER situation has happened to me, too. How do some ER doctors do all sorts of tests and figure it out, like the case studies I've read about? Stay strong!