Re: 5 Years of Mystery Symptoms - Please help.

Sorry to see that others are having my same problems. I've had Mastocytosis my whole life but was only able to put a label on it recently.

It is very difficult to pin point the triggers but in addition to the ones you all have identified I have found that Vitamin D seems to start the rampage. I have a list of foods and their histamine content that I refer to all the time but I don't find it to be 100% true for me or everyone.

I have actually had more than a dozen minor strokes from the severe effects of the histamine response. The worst one was caused by frozen creamed chipped beef on toast. I don't know the connection I just know that was the cause.

I use Histame and DOAsin daily. If I don't the inflammation is so bad I can't stand to sleep in a room that isn't below 59 degrees F. I take it even though I am trying to eat only low histamine foods. It's very expensive and I hate to spend the money but it helps so much.

I am also taking Lufenuron because I believe that the fungus overgrowth causes the reaction to foods.

I am now down to only a few foods I can eat with no reaction; beef steak, broccoli, organic apples and apple juice. Some foods like rice cause me to get hyper and I can't sleep. Vitamin C in any form makes me itch.

I know from decades of experience with this that it gets very bad then goes away almost completely for a while then comes back again. Each time it comes back it is worse. The time of the attack and the time between seems to vary a lot.

Stress does seem to play a big part. I can connect every time the Masto was bad with a crisis event in my life. I've even learned to coach myself about not getting upset when something bad happens. I'm sure some people read it as being cold but I'm just trying to survive.

So, my experience says you should get a list of "off limit" foods for people with Mastocytosis and try to follow it.

This is not something to play with. I have over a dozen lesions in my brain. I am 3 inches shorter because the vertebrae in my back and my discs have disintegrated. This is all from the Mastocytosis. This is all permanent. I wish the CureZone had been around 50 year ago. I would have had a much better life.

You are unlikely to get a doctor to help you because I tried for years. Even went to Cleveland Clinic. They don't understand it because it doesn't make them any money. (Sorry for the sarcasm but I am more than justified)
You will have to figure it all out for yourself unless you have a talented Naturopath you can go to. They get it but they didn't exist when my battle started.

I wish you both the best and hope you find support and help.
If you find a "miracle" please post it on curezone. Tweet