I do understand ME
I was diagnosed with ME in 1984 following infection with an unknown virus. It consumed me at the time and developed into the category 5 complex with CPS/FMS and MPS.
However, liver-flushing turned things around for and I have continued with the support of the fine people on curezone.
I do understand the 5 dimensions of ME, in general
• Cerebral. - Headaches insomnia, characterised by waking un-refreshed; despondency; anxiety, worry, and fearful, free fall anxiety of impending danger. A continued tired Washed-out” feeling.
• Spinal. - . Backache, with tenderness along the spine, is characteristic. Other manifestations may include tingling, crawling, or burning sensation, or certain parts will feel hot or cold.
• Gastro-Intestinal - Hyperacidity, waterbrash, nausea, retching, and vomiting. People sleep poorly, has unpleasant dreams, and develops an irritable disposition. There is flatulency, rumbling of the bowels, constipation may alternate with diarrhoea and a sense of weight or soreness over the abdomen.
• Cardiac - palpitations and sometimes sharp pain similar to angina.
• Urinary - The quantity of urine expelled is usually small. The patient becomes irritable, and experience dull headaches.
This may be a new way at looking at the illness for you.
But free fall anxiety is a key characteristic of ME and Chronic Fatigue Syndrome.
Medical practitioners in eastern countries have recognised for centuries and have strategies to treat it.
Unfortunately western doctors often prescribe a basic antidepressant to improve sleep and elevate pain levels but it freezes the digestive system and leads to a congested liver and even gallbladder removal.
People here do understand and do care so my advice is to not push them away.