Yes, we shouldn't let this condition ruin our life. But I think his condition isn't severe. I doubt his lips will turn white when it touches water and form crusts on it. His case is mild just like when I was 10-17. At that time I didn't think about my lips much because the symptoms weren't severe unlike now.
However, I have managed to accept the condition and I won't let this condition affect my state of mind all the time. If there is a cure for EC then it would great of course but if there is not I wouldn't be upset.