Re: Most Gardasil 'safety' data discovered to be fraudulent

The problem with an online survey such as this one is it's open to abuse by vaccine apologist. I came across some posting from a guy who calls himself Orac on a site whose real name is Dr. David Gorski who runs a site called "science based medicine" but he really is a high paid troll for big pharm who has what he calls minions who go online and do what trolls do, provide misinformation and outright lies on informative vaccine sites. There is a poster that calls herself LiLady who brags about going on sites to takes surveys just to mess up the data. here is some of her postings:

" Well the “open” survey now has 7,799 participants…I think the 7,799th “child” might be “mine”. I filled out the survey on behalf of my six year old…who is unvaccinated and has 10 siblings. I entered “yes” to every question about disturbed sleep, fussiness, medical issues and developmental diagnoses.
I haven’t had so much fun messing up a “survey” since I responded to a robocall from the Tea Party Voter Choice Telephone Survey. Posted by: lilady | August 31, 2011 4:04 PM

I just entered data on “another child” of mine on the open survey. This child is 10 years old, has four siblings and is vaccinated. My “10 year old child” has none of the problems listed on the survey and I ticked off “NO” on all the questions about behaviors, physical diagnoses and developmental diagnoses on the “survey”.
Posted by: lilady | August 31, 2011 5:12 PM

p2.
I think the survey “researchers” have a lot more than me to worry about. The internet survey has been visited by other skeptics who have also entered false data. That’s what happens when you “attempt” a “scientific” survey on the internet and notorious anti-vax bloggers provide links to the “open internet survey”.A vaccinated versus non-vaccinated survey is unethical and this internet survey is unethical as well.
Posted by: lilady | September 1, 2011 1:14 PM

Yes, I entered data on the open survey from my one computer site and it is probably just a valid as the data from the other “participants”… and might even be “more valid”.

When you have an open internet survey with ambiguous wording anyone can “wander” over and enter data to skew the results. Now I am not accusing anyone at ChildHealthSafety for deliberately putting a bogus survey up on the internet to encourage multiple false entries and I’m not stating that the design deliberately did not meet any of the criteria for a survey…but it is less valid than the Tea Party Telephone Survey that I participated in several weeks ago…which really was a robo call randomized survey.

The folks at ChildHealthSafety have no way of knowing what percentage of the participants really have a child…no less a vaccinated or unvaccinated child and no way of knowing if any, some…or most of the participants are childless paranoid cranks who are against big government and/ or Big Pharma. Indeed, perhaps some of the participants are manipulating the publicly held stock of vaccine manufacturers.

Now I’m no computer techie, but I know enough about entering data on a public site requires you to provide a valid email address…which I did not…and surprise, surprise!!!…the data was accepted.

Yes indeed, the data I entered was probably just as valid as the data entered by the other “participants”.

So here’s the deal, unlike other participants I publicly stated that I entered data which was false and easily “verifiable” as false by the “researchers” by simply contacting the invalid email addresses.
Posted by: lilady | September 1, 2011 9:42 AM

This is the problem with online surveys, blatant fraudulent data being entered into the data base by trolls. Until any online survey can prevent this how can they present their outcome as cogent and accurate?
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