Stuck again. Need some ideas.

So I seriously thought that my EC was getting better with the Sun but it doesn't seem to be working anymore. My lips responded well the first few times out in the Sun, but now they just suck again. (The UV index here is 8 in the afternoons)

I've been moist healing since January and I'm getting frustrated. I feel like my EC is particularly bad (much worse than Daniels). My lips peel ALL the way into the inner lips...So my lips feel inflamed 80% of the time. Even the skin on the side corners of my lips peel about 1cm into my mouth. I feel like there is a point where EC is so bad that it can become incurable and I think I might be one of those cases. How can my lips heal if 1cm of skin is being removed constantly when I talk? It really sucks because I've put so much effort into this. I've seen over 10 derms, an allergist, and a pathologist and I've followed all their instructions and nothing seems to keep them un-inflamed.

Has anyone tried something other than Vaseline, Aquaphor, or steroids to help bring down the inflammation? I'm thinking of using aloe vera gel but I've read that it dries up really quickly. I need some other ideas of soothing products to apply to the lips. Sorry for the not so positive text, just frustrated.