Re: Gluten-free diet update (6 weeks) / no change

My son did gluten free for about 3 months or longer and no sugar/dairy - there was really no change. At first I thought this was a systemic thing, but everything seems to point to it being localized. A good diet is always good - but I dont think its the cure. If it was a system thing there would be other symptoms than just the lips and my son and most people with EC don't seem to have any other symptoms other than EC.

Right now he is doing Vitamin C paste on his lips and cocoa butter. We are still waiting to get the Beta gel and going to do that next.

Its good to hear what people are using to make it not so noticeable because if there is not a cure, seems like people need to find a way to live with it, until there is a cure. Tweet