Re: mansonella perstans

You are so right about the stress. I am on Social Security Disability due to PTSD. I was a survivor of a crime and worked with NY State Crime Victims for two years. So I have major stress issues which is why they are probably been active.

I also have traveled alot: lived in Albufeira, Portugal and had my son there. I was sick in the hospital for a week after delivery due to intestinal parasite from the drinking water, the news said. I've also lived in Canary Islands, Lanzarote for a short time. I grew up in Florida, however, and looking back, this is where I think it started...due to some of the early illnesses I had there...

What is the most stressful to me? The doctors and their ignorance...

I started on Social Security disability in February and am 56. The new law states you have to be on for two years now and then receive Medicare. I have a 1770.00 spend down and then Medicaid picks up. I tried to find primary doctor and only one in this area taking new patients is Providence Medical Group. I can't get an appt. until Oct. 11th, even when I tried to see if someone can just look at my lymph nodes, the lesions, and give a referral to Harborview Travelers and Tropical Infectious Disease clinic out of Univ of Washington. THEY know what it is, but at the ER of the hosptial, they asked me if I felt I was a danger to myself or others. The male nurse then never examined me and wrote "Itchy skin" on diagnosis, and with my son and a friend of his from college (we all saw them under the microscope), said as he sat with his arms folded on his chest, slouched in his chair with his legs wide apart and with a cocky attitude (another doctor wannabe), he said, you know, people are going to think you have mental issues.

Been taking melantonin at night which does seem to calm down, and am using coconut oil both internally and externally...I managed an herb and vitamin shop and worked at a coop in NY and am familiar with all natural products...

It is the doctors that are the biggest problem. I've never seen such arrogance, ignorance, and irresponsibility in my life.

Bathing in baking soda and white vinegar, then pour peroxide on myself, then coconut oil....

I have them in my lymph system, hard to swallow, pain in lower left abdomen, eyesight failing, ....it's terrifying and no one that listens and knows seems to be able to help..you have to get a primary...and it seems to me, with someone with PTSD having these crawling under their skin and worsening symptoms, you could get a quicker appt. if only to get a referral to someone that can help. It seems cruel and unusual, sadistic...to have someone wait on this.

So sorry to be long. I guess when people first find out, they tend to do this on here. It is such a lonely, isolating place to be....

Thanks for responding. This is the only place I've found where people can at least find others going through the same things.

I am curious - why not contact CDC? They are no help to individual, but I at least like they give the diagnoses protocol on their website for Mansonella perstans...and that's how I found the clinic at Harborview? They took my soc sec over the phone, said someone would call back. I don't know why. I was so upset I just gave it to them. Why do they need that, I wonder?

They didn't cb and I called again and they said they had emailed the medical director for approval and that the medical director didn't email back yet.