Re: Any suggestions please.

You're at a rough stage of recovery, I think. I remember being in my first year and feeling somewhat better than I had around removal of the IUD, but still pretty lousy. It's so hard for this to drag out when you're not used to chronic illness. Before the IUD, I'd never had anything worse than bad colds and morning sickness (which was bad, but not anxiety-causing!). There are so many symptoms I've had (and some still lingering) that are so bizarre - like the "hot legs" you mentioned. These are symptoms that don't seem to be specific enough to give a good diagnosis, that make the Drs. just scratch their heads, but are strange enough to affect our lifestyle and scare our pants off.

I can't remember if you've posted more detail about the hot legs sensation, but is it similar to erythromelalgia? I know I've struggled with flushing/hot feelings in my feet, legs, and hands, even my ears sometimes. These have all improved over time (I'm about 2 1/2 years post). I feel that these issues can be caused by hormone imbalances and disruption of our autonomic systems.

Hang in there. You just need more time, even though that's hard to hear when you've already put in 8 months of recovery. 8 months is a great accomplishment! I feel your pain.

Love,
Diana Tweet