James: An update on my mom and a few questions

Hey James,

This is a continuation of the thread on the previous page.
//www.curezone.org/forums/fm.asp?i=1895871#i

Copied, updated, and consolidated from the link above, as of 1/29/2011:

I will have her continue taking the aloe vera and will recommend against the Zometa, then. We also replaced the O3 - Ozone ELITE with an identical unit, and it produces a smell. It seems to be of good quality in every other regard; not sure why there is sometimes no ozone smell at all with the other one. Sometimes the smell it is slight, sometimes there seems to be none, but at first it was definitely stronger. The company said it could be a problem with one of the cells. Anyway, they replaced it right away.

Besides seaweeds, what other herbs, minerals, etc. do you recommend for inflammation? She's taking a few things now, including nova scotia dulse. Or do you think that the inflammation cannot really be helped until the uric acid levels drop and the lymphatic passageways start clearing?

About the pain -- do you think that the irritation is that much more painful because of the nature of my mom's cancer, the fact that she has inflammation in the cancer-affected region? I'm asking because I have not really come across any people stating that their ozone treatments brought them such strong pain, maybe because none of the patients were suffering from inflammatory breast cancer. Her oncologist has also said that she has never seen such a level of pain with any of her patients, including those with IBC. When her pain was at the lowest, so was her inflammation. Or maybe it's simply as you say: the more uric acid (and pain), the more inflammation, and that's the connection.

I grinded some nettle leaf and put it into capsules to make sure that she's getting enough of a dose. She is taking nettle leaf, quercetin, devil's claw, burdock, juniper berries, malic acid, and tart cherry extract (and maybe some others) to help her deal with the uric acid, but I don't think that it is having an effect. She took the nettle leaf in capsules, devil's claw, burdock, quercetin, and tart cherry extract for several weeks now (instead of simply malic acid, nettle leaf tea, and juniper berries for months before) without any improvement in pain. Is it possible that something else is to blame for the pain other than uric acid? It is concentrated in the affected breast, once appeared in the rib area, and used to appear in her right, puffy arm, but now only seldom does. She does not drink more than half a gallon a day of water, but probably even less than that. It may very well be related to that, I think.

Due to her pain, we will decrease the ozone dose to 36-37 ug/mL, around the same levels that she was doing since October 8th up until early December when her pain was at the lowest since starting ozone back in June. But first we are having her take a break from ozone for one week or two altogether to have her pain improve before we continue treatment. Since the ozone seems to have been working well for her, we'd like to keep it at these levels if it means decreasing pain and inflammation and having her in a positive and good mood.

After about a week without administering ozone, her pain has not improved. Comparing this to late September, she did not do ozone for a week and on the first day her pain improved tremendously. She sometimes drank baking soda when the pain was especially bad, and it helped quite a bit, but this past month it does not seem to help at all, which may have something to say about whether or not it is uric acid that is causing the pain. She will resume ozone at the 36-37 ug/mL level in several days, or maybe in another week (maybe her pain will become more controlled). Just last night, she says that she felt some kind of liquid coming out of her other breast and thinks that it may have been milk, like before. No milk has come out since mid to late November, so this seems a bit strange to us. Also, why would the pus increase with a ~48 ug/mL dose if the fungal infection seems to have been finally under control just two months ago when she was doing ~36 ug/mL? Doesn't it follow that a stronger ozone concentration will eradicate the infection more quickly and give it less of a chance to come back?

You have said that you don't think that the cancer has metastasized to the bones. What do you think the "soft tissue component" on the right 11th rib could be? She complained a few weeks ago about a very sharp pain in her right ribs that has been worse than the pain in her breast; it lasted only two days or so. It would hurt when she moved. Can it be a malignant tumor whose destruction is causing the release of uric acid in the rib area, causing her pain, much like what is happening in her right breast? Can she have uric acid in the rib area without it being metastasized cancer?

Also, a pain similar to what she had in her ribs came back a few days ago, but she says it’s a bit different from the last time. It was sharp, it hurt when she moved, but it was also hurting when she breathed. And she was also experiencing quite a bit of pain in areas adjacent to her affected breast, even a bit higher and lower, including towards her throat, where there is no inflammation and the skin looks normal. She says that it is a very similar pain to where it is most concentrated in her breast, so maybe it is uric acid. She has additional pain in her chest when she breathes, hiccups, coughs, etc., and you mentioned earlier that pleural can cause that. You said that she is probably getting the pleural effusion from her inflammation -- what is the connection there?

Also, she has pericardial effusion, obviously on the left side of her chest, the unaffected area, according to the last scan. Is this dangerous? I read that if left untreated, it can be fatal. What can be causing this? And why do you think there is effusion on both sides of her chest? I know that metastasis is often the cause in both pleural and pericardial effusion, so I am pretty concerned about this.

Her bone pain kept declining throughout December until she barely felt it at the end of last month. But suddenly, right before the new year, her bone pain came back, though not exactly as strongly as before, but still pretty strongly. It has been on and off for the past month, but mostly on. The pain is in "all" of her bones, she says, which is probably not entirely accurate, but she does have bone pain in her hands, feet and soles, ribs, neck, joints, and other parts, so it is pretty widespread. As of a week or so ago, most of the bone pain left again. She also says that she feels a sunburn-like sensation all over her skin, a pain that she describes almost like having the flu and feeling off throughout every part of your body. She also describes the flesh pain as sometimes feeling like a bruise, which probably means that it is sometimes tender to the touch. What does this sound like to you? For the bones, should we add anything beyond the Bone and Joint Formula and the Rife Machine therapy? I know that it takes a while to rebuild bone, but I'm wondering if there is anything else that can accelerate the process and alleviate some of the symptoms, whatever it is that may be causing them. (It doesn't sound like cancer, as it affects her whole body, is on and off, and I know that it is not jumping from her breast to the soles of her feet.)

An acquaintance recently suggested to try boiling dried habanero peppers and drinking the water from them for the capsaicin for its anti-tumor properties. He also mentioned that it will help with the pain by way of an endorphin rush. Should she pursue this for pain or its cancer-fighting properties? Is it better to give her cayenne (40,000 Hu vs the ~225,000 of habaneros) capsules instead, since the burning in the throat is pretty severe? Does it have the same effect? Do you need to feel the burn to feel pain relief?

She also takes nattokinase, 2000 Fu per capsule, 3 capsules a day = 6000 Fu a day. I have 450 mg 40,000 HU cayenne capsules. What would be a safe maximum dose of cayenne for her to take since she is on the nattokinase? On this topic, would you recommend against taking ibuprofen (in addition to oxycodone and Exalgo) if it helps relieve some of her pain? I know that it is similar to a blood thinner so it may not be a good idea to take it with nattokinase, but I'm just making sure. If it's safe, what would the safest maximum daily dose be?

Several weeks ago the doctor said that she cannot fully compare the May PET to the Nov/Dec PET because they were done in two different facilities. She said that for a brief time in the summer, PET scans were ceased throughout the country as the protocols, etc. were investigated, as the procedure is too nonstandardized. As in, they measure differently, they use different amounts of glucose, etc., depending on the technician and the facility. So a SUV of 7.4 vs 14.8, she says, could simply be attributed to differences in each individual procedure, as can the tumor size. (She is compelled by the tumor marker CA 27.29 being cut in half, however, though you said it's not a very good indicator.) Do you have any comments about this?

We told the doctor exactly why we do not wish for my mom to take Zometa, and she said that the side effects that you stated never occur. I know that this is not accurate, as a simple Google search confirms what you've said.

She has missed a few periods since a few months ago. Since she is about 40 years old, I don't think that it's menopause. You commented on this earlier, but I'd just like to update that she is still experiencing this.

My mom had what may have been a heart attack two or three years ago. An ambulance came by and the technicians did an electrocardiogram test and confirmed it. They said that she should go to a hospital, but she refused, and it has not happened since. (We did not know this until fairly recently, by the way.) But during two nights over the past few days, she says that she felt what may have been two other heart attacks, or at least the precursors to them, but we're not sure, as they seem to be a little too close to one another. After all, isn't it difficult to tell if it's your heart or something else that's bothering you? And she has been doing ozone for months now, which I know is supposed to help prevent future heart attacks. But she does have the pericardial effusion build-up since before the last scan, which may have something to do with it.

The oncologist also prescribed Ritalin for my mom's sleepiness. She seems to sleep at least 12 hours a day, on and off (never a full 6-8 hours at once, but her sleep cycle has been getting deeper recently), but probably even more than 12 hours a day. I'm pretty sure that it is related to the oxycodone, and maybe even Exalgo, as you mentioned earlier. I know that there are plenty of side effects to Ritalin, including death and addiction, but do you think it is relatively safe to take for a few weeks or months? If not, do you know of any other alternative to combat the sleepiness that she feels from the opioids?

Did you receive the PET/CT disc yet? And thank you again for agreeing to take a look at it for us. Tweet