I haven't got a diognosis yet, but my body has become extremely aged. I am like an 80 year old woemn when I am 35. I am worried that I will never regain my youth. This doesn't seem to be getting better. I agree with you, it is up to us to make things happen.
love to you Clare x
p.s Please see my mail further down about silicone testing! I'm in the uk also. Please private mail me.