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Re: Lips getting worse
 
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Published: 14 y
 
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Re: Lips getting worse


You have a real smart doctor....he knows what he is doing.. make sure you stick with him/her.
Did he give you the minocycline first and is that when you saw improvment or have you been taking both of these at the same time from the start?
The second drug is an anti inflamatory/anti autoimmune


I've had the same thought as your doctor. Orofacial granulamtosis / autoimmune.

I was going to try your doctors route but first I wanted try reducing foods that have been known to cause this OFG which is sometimes thought to be caused by allergy.
I have cut out foods that through medical article at one time or another have caused OFG(Orofacial granulamtosis).
I have seen great success peeling wise. Little or no peeling. However i still think swelling is there and either need to give it more time or try what your doctor has given you depending on your results.

Some of the things i have cut out is benzoates , wheat,milk,sugar,certain vegatables and peeling is definitely contained.

Keep us posted on your progress Let me know if one drug has help you more than the other or has it been both of them at the same time.

 

 
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