Well mailanee...once you get your Lichen Sclerosis under control, you just go on with your life as you did before.

Now I'll be the first to admit that when mine was active, I was almost out of my
mind. But within 2 weeks of coming from Vanderbilt (and we're just 10 minutes from
Paducah, Ky...in Southern Illinois) I was back in control of my life and happenings.
I'm not one to brood over spilt milk...I had experienced extreme suffering when my
Lichen Sclerosis was active...but once it was under control I had things to do, places to go and people to see. :-) So I went right back on track.

Why don't you call the Gynecology Department of Vanderbilt and see if they still
have a Dr Entmann there...that's who "I" saw. He was WONDERFUL...and got me turned
around with just one trip to Vanderbilt...I didn't even have to stay the night.
His first name was either Stephen or Kenneth...now don't ask me why I can't remember...because those 2 names are nothing alike...but I know for sure one or the
other is right....so give them a call and go see him. My charges were just like
going to any other doctor...not bad at all.

As as for always having issues...what kind of issues are you talking about? Health?
If you're having 'health issues'...that means you're not feeding your body the nutrients it needs to get and stay healthy. At you're young age, you're probably
into Fast Food hamburgers, french fries, coca colas, etc. :-)
So if that's true...back off on those fast foods and eat a healthier diet...add some raw foods and salads...back off on the Sugar big time. You'll see your health
turn around in no time.

Hope you'll check on Dr Entmann...and good luck.

actually the one i used didn't work it made my symptoms worse (not the shape, but the itching). i'm on a new one i start it tomorrow i will try to remember to let you know in about 3 weeks and i'm sorry i dunno where to find it in the uk. i haven't done much research on it.

I haven't heard of any steroid that reverses shape or appearance.

I certainly sympathise with the lack of support... been treated like an hysterical woman for years! First consultant said I was obviously scratching myself in my sleep...GP seems more clued up, but then she's young.

My condition has ceased to respond to the steroid ointment- so I was sent for a biopsy- and after 9 hours starvation (to be a day care patient) I went into theatre and the consultant said he couldn't see anything to biopsy! so sent me home!


I've found the UK based LSSupport group- but can't find out how to join.Its always good to know you are not alone.