Hi Shroom,
Thanks for your msg. I do have multiple sclerosis but I have seen 2 specialists now and both have explained that if it was just my torso and legs they could've linked it to my MS lesions but because of the Eyes/ears/nose/throat there is no damage enhancing in my MRI that could explain symptoms in those areas.
Do you have advice on what drs I should see? i am very lucky with our coverage. I have had a colonoscopy, seen an endocrinologist, nutritionist, several infectious disease drs, neurologists, allergists, I'm at a total loss. We have been unable to continue trying for a baby as I am worried for its safety if it is
parasites and am severely depressed and suffering with uncontrollable anxiousness.
My Grandma has diabetes, and I have suffered with breathing problems I get a pain in my ear that spreads to my chest.My energy up until this sensation started was always great, especially given I have MS only occasionally I felt fatigued if I had been yogaing and working alot.
Here is a list of symptoms broken down in order (sorry this is long)
Nov -
- Wiggling behind eyeballs
- Crawling in throat
- Crawling/wriggling in ears & nose
- Severe intense stinging/itching like a million pinworms in anus (lasted for a few minutes once i went to the toilet it subsided)
- Shooting pains in my arms & torso following crawling movement
-bubbling in torso (felt like all through my stomach and intestines
The crawling in my E/N/T lasted about 3 weeks then just stopped. I took Albenzadole at the start of Nov, one lot of 2x 400mg 2 weeks apart. I was starting to feel like all movement had stopped then I had itching in my bum so I took another round of albenzadole. This is where things get bad Its like it came back with a vengeance, I had
- severe crawling in my throat and thighs,
- felt a large wiggling movement in mt right foot and one in my jaw.
- All crawling is worse when I eat carbs
- I get 'bite' feeling in my torso.
This caused me such bad anxiety I was didn't sleep for 8 days which sent me a little off the deep end and was ready to take my life.
I went to an eye specialist who said I had an infection in my eye and my PCP who said i had Bronchial Spasms. I have also has several little holes in my legs and behind my ears (I dont scratch and they are perfect little small holes about the size of a pen tip)
All along wanted to believe it was neurological and if it wasn't for the holes and itchy rectum I could be convinced but as I have had pinworms as a child I recognize the sharp, stinging, painful itch which is what makes me think it much be parasites.
Thanks so much for taking the time to read this long post!