I cannot believe the misinformation ... 
#183825
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Dr. Savely's book is apparently the first factual book published. She says the cleaning rituals do not help and only create stress. The fibers are not infective agents.
Someone wrote a book that said people should disinfect everything. people spend hours obsessing on cleaning. I am thinking now that was a falsehood and he just wanted to sell books to vulnerable people.
The truth and facts need to get out there and as far as i knowDr. Savely's book is the closest to it so far. I hope many other experts will take an interest in writing books that get the facts out.
I have never heard such nonsense as one hears about morgellons.
I think awareness needs to be raised about the need to use a 60x mini microscope to see if they have filaments around their nails. That is the determining factor - not whether they have sores or not.
Many people with morgellons mistakenly think they have strongyloides and that is a problem. Anyone with black specks or scratches has morgellons - not strongyloides. In fact they may not have encountered scratches or black specks yet. The important factor is if they have the filaments around the nails.
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- Re: I cannot believe the misinformat... #137587
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- neither can I.... SHARKMAN
8 y
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This is a reply to # 2,343,763Are you trying to say morgellons is not a parasitic infection that's cured by parasitic drugs? So by comparing the morgellons symptoms to strongyloides symptoms is misinformation . Nematodes and the bacteria and fungi they carry can be responsible for every morgellons symptom posted so how is that misinformation ? I posted some of this misinformation and please tell me where I may be incorrect?
- myths #183825
8 y
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This is a reply to # 2,343,868Sharkman you got people on the right path by emphasizing the need to take doxycyline at the same time. Your approach was a solution and helped so many people. The impt thing is that the vet formula works. The vets are on the right track by giving Antibiotics and ivermectin. But how would we know about the black specs and scratches? It was so easy to think it was strongyloides because the health authorities haven't given us the knowledge and tests we need. And when we describe scratches and black specs to our doctors they have not corrected us because they don't know any better.
It is a myth that morgellons is caused by the wrong dental material, or by a fungus or mold exposure. There are myths that it is caused by chemtrails or Genetically-Modified-Organisms etc. The book talks about the myths that are on the internet about morgellons. One book says that only diet and cleaning and disinfecting will get rid of morgellons. not true at all.
- I think the vets are smarter SHARKMAN
8 y
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This is a reply to # 2,343,873The scratches can be caused by the fungi http://www.tteamforendurance.com/Pages/scratchesfactsfiction.aspx
- Me too #183825
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This is a reply to # 2,343,875They are smarter at helping people with parasites than our doctors. They seem to be allowed to use common sense unlike the restrictions of our doctors.
- Re: Me too SHARKMAN
8 y
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This is a reply to # 2,343,878So am I now justified with comparing morgellons to nematode infections like strongyloides ?
- biofilm #183825
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This is a reply to # 2,343,881Some quotes from book:
"Many of the MD patients i have examined have been convinced that they are infested with strongyloides...When MD patients are treated with ivermectin... many report a decrease in symptoms. However, MD patients do not have stool cultures that are positive for ovum or parasites, and the filaments found in the skin of morgellans patients are not worms, but rather inanimate objects."
"...Morgellons disease is not caused by a helminth or by an ectoparasitic infestation..."
"Phospho-tau in the MD skin suggests that there could be a specific genetic variation in Morgellons patients making the Bb (borellia?)/H. pylori infection produce collagen and keratin filaments. This is all conjecture at this point."
- What's your point ? SHARKMAN
8 y
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This is a reply to # 2,343,892This article is fact not conjecture , http://www.einstein.yu.edu/departments/medicine/divisions/allergy-immunology/division.aspx?id=11886 Maybe those Drs need to stop using o and p for strongyloides as it seems to be the most unreliable test , unless multiple samples are taken over multiple days, but who am I to second guess the establishment that couldn't diagnose me and put me thru hell for years. I can post medical articles all day about misdiagnosed strongyloide cases . They say in your book the disease is not caused by roundworms but patients get relief from roundworm medicine? , tests are negative but they use the most unreliable testing ,this sounds like the same medical system that failed me . At least they give their MD patients the right meds to start off with , so I will give a little credit where credit is due.
- What's your point ? SHARKMAN
8 y
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- biofilm #183825
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- Re: Me too SHARKMAN
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- Me too #183825
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- Fenben and fungi SHARKMAN
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This is a reply to # 2,343,873Why Fenben is so effective if used CORRECTLY. http://www.alwayshelpfulveterinaryservices.com/wp-content/uploads/SafeGuardEquine_instructions.pdf
- Re: Fenben and fungi #183825
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This is a reply to # 2,343,876I found fenben worked well
This site answers some of your questions.
http://www.thecehf.org/faq.html- Morgellons fibers SHARKMAN
8 y
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This is a reply to # 2,343,963The website you requested I visit validates every point I make. Every symptom mentioned can easily be a symptom of nematodes . I had most if not all symptoms anyone could have . You mention the fibers ,they are not worms ,so what are they? . Worms eat hair (keratin and melanin are components of human hair ) do you know worms poop . It's called castings. Article mention collagens , worms eat tissue , guess what human tissue is made from collagen . Strongyloides b4 they encyst wrap them selves in a cocoon made from our hair and tissue . So is morgellons an undiagnosed known or unknown worm in the strongylida family. I would guess yes , at least I come to scientific conclusions with information found all over web.
- Re: Morgellons fibers #183825
8 y
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This is a reply to # 2,343,987I wouldn't have a clue Sharkman. Surely enough research has been done to be sure they were a separate pathogen. Ask the Foundation.
Dr. savely says most people who have morgellons are misdiagnosed. The more people that get a correct diagnosis the more pressure there will be on government to do the research and educate doctors.- Fibers SHARKMAN
8 y
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This is a reply to # 2,343,991You said People like me spread misinformation about morgellons , when all I present is facts . The people you recommend spread misinformation or they have no clue what morgellons is. I answered your questions , you can't answer mine . I proved my points , and you want me to call on your behalf to prove yours (are you for real) . Unless you have something substantial to add to this discussion , I believe I once again validated my self and my postings with valuable information others can use.
- Re: Fibers #183825
8 y
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This is a reply to # 2,343,993I was not thinking about you when i made that statement. It just so happens that the protocol you use works for morgellons too. You helped lots of people with morgellons and strongyloides.
i was thinking about web sites that said diet, disinfecting everything daily, chemtrails, dental metal, etc were the cures. People who sell products can take advantage of people when the medical system abandons them and casts them aside as people who should be ridiculed.
- Re: Fibers #183825
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- Fibers SHARKMAN
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- Re: Morgellons fibers #183825
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- Morgellons fibers SHARKMAN
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- Re: Fenben and fungi #183825
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- I think the vets are smarter SHARKMAN
8 y
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- myths #183825
8 y
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- Re: I cannot believe the misinformat... #137587
8 y
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