step by step and elovera cream 
jsl123
12 y
8,005
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so its my 4th day on elovera. to tell you the truth theres big positives but also big negatives.
firstly step by step. did it take a while for your lips to go back to 100% normal once you started to apply elovera cream? becaseu you said to give it a few cycles was this the same case for you???
because so far unfortunately for me my lips turn very white when in contact with water. i definately cant go swimming let alone surfing. i cant even drink a glass of water quickly as the lips turn white.
the positive i feel like my top lip the ec affected aera has shrank 50% also the same on the bottom lip. its like were the lip skin comes on the inside of the lips were saliva begins is were my lips are sturggleing to fully heal. the outter sides of the lips towards your normal skin on your face has joined the good skin on the lips and become fine. so im very puzzled!
step by step what i do is brush my teeth and then have a shower and then i wait for about 20 minutes for the lips to air dry so they become clear and not white and soft then i apply the elovera cream. then the lips go a little bit white for the lips but once it dries and sinks in the cream the lips look 99% perfect.
with this cream i can really see that ec is just the lips peeling skin in a continual cycle its almost like the skin underneath whihc should gorw back normal once the dead skin peels and falls off like every other normal human cant for us. its like it hates air or something and produces this extra layer for no reason. soooooooooooooooooo f***ckininggg annoying!
im still not sure about elovera but ill give it a few weeks. its summer here and im dyeing to go for a surf!!!! i need this eccc shit under control orrr to f***cckc off@! lol
- Re: step by step and elovera cream Healing2021
12 y
8,238
This is a reply to # 1,997,191JSL,
First of all, I doubt your lips are going to completely heal after 4 days of using elovera, or anything for that matter. Your gonna have to give it some time man.
Secondly he was using the steroid along with the elovera, so his results and your results arent going to be comparable.
And thirdly, you said you were have big negative effects but you didnt talk about any.
And also, if your EC has reduced by 50% on both your top and bottom lip after just a few days, how can you say there are any negative effects/act skeptical about it?
- Re: step by step and elovera cream jsl123
12 y
7,834
MoreThis is a reply to # 1,997,219negatives is the ec affected skin turns extremely white when in contact with water. as in after i have a shower it takes sometimes upto 45 minutes to dry and become normal colour lips rather then white. if that makes sense.
and of course i agree i have to give it sometime but its difficult when i have work now. i cant just sit around home. i have a scedule that i have to stick by. i cant sometimes hope out of the shower and sit around for an hour waiting for my lips to dry up and stop becoming white and soggy if you know what i mean! i cant be late for work or ill get the sac!!!!!!!
- Re: step by step and elovera cream Healing2021
12 y
7,891
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This is a reply to # 1,997,228Oh I see.
How about the areas that have already healed? Do they turn white?- Re: step by step and elovera cream jsl123
12 y
7,926
This is a reply to # 1,997,230they still turn a little bit white when in contact with water but i only think thats the cream. its like the skin there is strong and doesnt become peely and really white when its wet. if you know what i mean! how good do vunks lips look in that last picture!
also did you contact the tree mans derm or have you had second thoughts? hows your cream coming along?- Re: step by step and elovera cream Healing2021
12 y
7,975
This is a reply to # 1,997,233I did contact him but he never called me back.
But I will wait until after I see if this works before I contact him again.- Re: step by step and elovera cream jsl123
12 y
7,819
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This is a reply to # 1,997,237oh ok thats weird he didnt contact you back did you email him or something?
also i know you dont think ec is psoriosis or exzma but do you agree that it still could be possible. i mean for both of those conditions can casue chronic peeling of skin whihc is caused by an increase in cell turn over whihc kind of what happens with our lips. i know you odnt but i strongly think its very possible and it this stage to me its the most likely.
did you see daniel millers latest picture.. bottom lip has came back really bad in my opinion but his top lip seems to be holding whihc is great for him.
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- Re: step by step and elovera cream longterm
12 y
7,752
MoreThis is a reply to # 1,997,237With EC, it seems like the top lip can sometimes heal while the bottom lip does not heal. However, the top lip can go back to EC.
- Re: step by step and elovera cream Healing2021
12 y
7,799
This is a reply to # 1,997,245Yeah JSL,
I really dont think that its any of those for me.
For you, its very possible. I mean for a while I truly believed that what I had was psoriasis, but I treated it with the most aggressive Psoriasis medication POSSIBLE. So my doctors are quite certain that this is not the case for me.
It seems as though most of the people we hear about lately are those getting cured by wound healing/using moisturizer and allowing to heal. And these are all lip biters, so thats truly what I think it is.
I am now following the first derm I spoke to, who is the only one who definitively said she knew what this was from the beginning and didnt waffle like other derms I saw. I should have listened to her from the beginning but she is in Florida so it was a little harder.
Again based on my treatments and tests, my doctors and I are positive its not Psoriasis or eczema. If it was then more people would be treated and more things would indicate these conditions in people's tests and treatments.
- Re: step by step and elovera cream stepbystep
12 y
7,903
This is a reply to # 1,997,253
Jsl,
I would advise you to be a bit patient with it , since it's not a strong cream like steroid.. White lips were a problem for me as well ..
but i used alovera after my peeling was stopped by betagel ..my gut feeling is that it's working for you- Re: step by step and elovera cream soilwork
12 y
7,861
This is a reply to # 1,997,263JSL. Shower at NIGHT before bed, then you dont have to shower in the morning and can go straight to work...that's what I do.
- Re: step by step and elovera cream danielxmiller
12 y
7,925
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This is a reply to # 1,997,273I wanted to add JSL that my bottom lip hasn't "come back really bad" you are comparing two different things on my lips. You are comparing a beginning cycle to an end cycle. If you want to see the progress on my lips you have to compare an end cycle to and end cycle to see what actually is healing.
For instance, the last ending cycle was in week 30. If you compare the two you'll notice the build up is not nearly as high, and is much smoother in appearance. That is the progress my bottom lip is making.
The reason my top lip looks like it does is because it was the last area to get EC. It start out on my bottom lip for over a year before my top lip became affected. So it is likely that it will be the last to heal, if you believe the same theory as I do.
However if you want to see a part of my lip that is COMPLETELY healed, check out the following two pictures. I actually wrote Healing2021 in a message about it a day or so ago, as I just noticed it!
Old picture from a couple months in: http://bit.ly/XrpNPm
Newst Picture: http://bit.ly/Qtzqu8
If you zoom both pictures in and look at the top lip at the small line running where my lip meets the normal skin, you'll see it has stopped flaking completely! And also the skin directly below has started, what I am calling the "beginning stages" of EC, which should be the ending stages of healing for me. I remember my lips doing this in the beginning and I would rub it off "thinking" it was nothing...boy was I wrong, haha.
So there I have my first completely healed part of my lips, which doesn't turn white in the shower, and doesn't flake at all.
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- Re: step by step and elovera cream longterm
12 y
7,795
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This is a reply to # 1,997,491Hi Daniel,
I remember you mentioned that you began eating salmon or fish every day at work. How long have you been doing so? I am just wondering since fish or fish oil has improved some people's lips.- Re: step by step and elovera cream danielxmiller
12 y
7,847
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This is a reply to # 1,997,494Yeah it Salmon, and I started that probably a month or two into this. So I'd say minimum 5 months maybe 6. However I don't eat it every day anymore...I was eating it every work day which is 4 days a week, and I got about 1.5 pounds each time. I would also get lemon and squeeze that on it, it tastes amazing :)
Now I usually eat it at least 2 times during the week. Other days I'll make my own food or go to some restaraunt during lunch.
But yes it does seem to help, at the least bit it makes me feel awesome!- Re: step by step and elovera cream Healing2021
12 y
7,735
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This is a reply to # 1,997,497Daniel,
So you had EC covering your WHOLE top lip and bottom lip?
I didnt realize that the skin on your top lip that is now healed, was affected as well.
I think your the first person Ive seen with EC covering the entirety of your lips. Anyways its nice to see that part has completely healed. That must really reassure you.- Re: step by step and elovera cream danielxmiller
12 y
7,835
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This is a reply to # 1,997,515For the most part yes. However in picture 1 is the worst that part of my top lip got, which was flakes. It was still EC though, just not very far into it...the beginning of what EC becomes. They didn't build huge crusts up, but if I had peeled that part of the lips they would eventually become what the rest of the lips were.
Anyways yes it feels great! And the second part that used to build crusts up now only flakes, which is just below that level, so hopefully soon that will be completely healed as well.
I wanted to note that when I started leaving them alone the top layer was not affected with EC. Only after leaving them alone WITHOUT water or anything touch my lips is when EC spread to that area. Only when I introduced water and saliva did the EC line start receding.- Re: step by step and elovera cream jsl123
12 y
7,849
This is a reply to # 1,997,524any normal persons lips goes like those little flakey things if they keeped their lips completely dry for a few weeks. Its normal! i dont think you guys realise but lips dont actually have there own mechanism of keeping lubricated and moist. This is what the head derms of the hospital told me. thats why alot of people suffer from dry lips. Most people give the lips relief from their daily water intake, showering and also the odd lick of the lips. and the rest actually moisturize the lips with a balm. iv said it so many times but there are billions of people that apply moisturizers to their lips daily. its completely normal especially if you live in a dry or cold climate.
i also got those tiny flakes spread while keeping the lips dry and so did alot of people thats not the begining stages of ec in my opinion. if it then i odnt think we would all still have ec. because it simply goes away with showering and water.
- Re: step by step and elovera cream jsl123
12 y
7,870
This is a reply to # 1,997,582and healing your right all those cure claims are very different in ways. the question is did those people have ec or did they just have chapped lips. and did they make cure claims like i hopethishelps after a couple of days only to realise ec returned(luckily ihopethishelps was honest and told us). I know im so negative but obviously im not going to believe most things on the internet especially on a online forum. unless they have proof etc etc as in pictures of their ec. progress pictures and a picture of thier lips after a few months of being ec free etc etc. if somebody truley had ec and cured it they would want to share their story and would be more then happy to unless their a heartless prick. but if theyve been through life with ec im sure they would change. me personally my heart goes out to every ec sufferer no matter how much i disagree or think there a f***cckinifninggg idiot. if i got cured i would still share my story answer their questions and hopefully help them or at least one person. i know this forum is annoying and depressing but i would definately stick around for a week or so helping and answering questions of people and give a detailed post of what i did to get cured before leaving.
- Re: step by step and elovera cream danielxmiller
12 y
7,894
This is a reply to # 1,997,587I'm honestly not sure why you say any normal persons lips get flakey, that's entirely untrue. None of my friends lips get flakey -- ever. Even when I lived in Indiana where it gets below zero in the winter.
I know I never got the flakey stuff until I got EC, so for me it is the beginning stages, because that's what my EC started out as. And I believe that's what it's finishing as. Which I just gave you proof that part of my lip used to have EC and is now 100% healed as in it doesn't turn white in the shower or produce any flakes whatsoever. NO FLAKES AT ALL. However just below it used to have huge crusts, now have become large flakes, and will turn into small flakes, and eventually heal itself.
You don't have to believe me, but when I show you a picture of part of my lips flaking and having EC and another picture with it clearly being 100% healed, you can't say it's not healed. Then you go and say it's normal for lips to flake, well I'm telling you flaking lips are not normal. If it were normal that part of my lips would still be flaking, but they aren't.
You'll see in a few months what I'm talking about.
- Re: step by step and elovera cream lipshitz
12 y
8,201
This is a reply to # 1,997,632Daniel, I know it makes logical chronological sense for the top lip to heal later, but in my experience, my top lip was almost fully healed a year after my condition started, and the top lip had started peeling 2-4 months after the bottom (hard to remember exactly since it started so minimally). Now, I don't think we necessarily have the same causation for our conditions, so it's entirely possible yours will heal in that way. So glad you're seeing some progress and keeping up the positivity, by the way.
Jsl123, stick it out if you really believe this treatment is worth testing -- which you seem to have felt for weeks! I'm not convinced in my current anti- Psoriasis treatment either, but I think I need to see its effects over a 2-3 week period at least, and perhaps even while upping the dose, before I try something else or the same in conjunction with hyaluronic acid/emu oil.
Peace,
C.S.
P.S. My raw cocoa butter arrived today. It's solid as a brick but damn that shit smells good!
Expand 24 messages, 21 to 44 of 44 jsl123
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- Re: step by step and elovera cream danielxmiller
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- Re: step by step and elovera cream jsl123
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- Re: step by step and elovera cream danielxmiller
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- Re: step by step and elovera cream Healing2021
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- Re: step by step and elovera cream danielxmiller
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- Re: step by step and elovera cream danielxmiller
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- Re: step by step and elovera cream soilwork
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- Re: step by step and elovera cream stepbystep
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- Re: step by step and elovera cream Healing2021
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- Re: step by step and elovera cream jsl123
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