What to use while on holiday? 
PleasantOne
12 y
1,506
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Hey everyone,
I am currently taking the "leave it alone" route in the hopes of healing my lips. I have been doing this since the beginning of July and I have not really been putting anything on my lips apart from coconut oil on the odd days. For the past week i've not been using anything on my lips at all. Instead, use a cotton pad to soak up water and let that sit on my lips for 10-15 minutes before I go bed. I notice that my lips feel alot better, but they are still forming thick yellow crusts.
I am going on holiday to Jamaica with my family for 2 whole weeks which im excited but also worried about because my lips absolutely horrible and i really don't want it to affect me when i'm out there. I would like to know your suggestions on whether I should apply anything to my lips to protect them from the sun when i'm out their. Preferably something completely natural.
PleasantOne
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- Re: What to use while on holiday? brillig
12 y
1,880
MoreThis is a reply to # 1,976,267The only natural products that give significant sun protection to the lips (SPF 15 or higher) are the ones containing zinc oxide. They do work quite well as a sunscreen, but the zinc in them makes the lips white (which most people see as a downside).
If you are willing to consider minor sun protection, just plain shea butter (the unrefined kind) offers some lip protection (around SPF 4). Which is better than nothing, but not really enough for a sunny vacation and spending lots of time in the sun. However, it is all natural.
All the non-whitening lip balms with sunscreen contain chemical sunscreens, which are generally dangerous. However, not using sunscreen on the sensitive skin of the lips is also dangerous.
All in all, the situation is a mess. I'm sorry there is not a better answer.
============================================
EDITED TO ADD:
Of all the zinc based sunscreens, this one has the best reviews as far as not turning the lips white:
Loving Naturals Clear Lips SPF 30+ Sunscreen Non-Nano Zinc Oxide UVA/UVB
http://www.amazon.com/Loving-Naturals-Clear-Sunscreen-Non-Nano/dp/B0055M466W/...
There are still a few complaints about it being kinda sticky and possibly difficult to apply, but it is NATURAL, protects well (SPF 30), and does not turn your lips white (or at least much less white than the usual zinc products).
It seems worth a try, I just put a tube in my Amazon cart.
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- Re: What to use while on holiday? Healing2021
12 y
1,444
This is a reply to # 1,976,310PleasantOne,
I dont think you have to use anything. I saw my derm. right before I went on vacation and he said I really should use something to protect my lips from the sun. I was doing the leave it alone method when I was on vacation (at he beach in South Carolina), so the sun was intense and I was outside ALL DAY. I didnt have any problems using nothing. My lips didnt burn or anything. Although I am pretty dark-skinned to begin with and dont usually burn so I dont know if that makes a difference when it comes to lips. So in my opinion you dont NEED to use anything.
But I actually saw by far the most improvement while on vacation so it will be interesting to hear about you. Let me know how Jamaica is too cuz that where im supposed to go next spring break with my friends. That is, if I can heal this BS.
- Re: What to use while on holiday? DepressedLips
12 y
1,401
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Fast and Painless Constipation Relief
Oxygen Bowel Cleanser
This is a reply to # 1,976,321Hey Healing how are your lips doing? Are you leaving them alone and moisturizing with water?- Re: What to use while on holiday? Healing2021
12 y
1,340
This is a reply to # 1,976,334Depressed,
No. Unfortunately I stopped that because my derm really wanted me to try using Protopic for the next 2 weeks. My lips seemed to be doing pretty well, but he seems to really think that protopic along with this Cyclosporine will work. But I might stop this Protopic sooner than 2 weeks.
How are yours doing? Are those areas still not scabbing over? And not getting wet after showers?- Re: What to use while on holiday? DepressedLips
12 y
1,495
This is a reply to # 1,976,337Well they were doing pretty good but this weekend I wanted to hangout with my friends so i had to peel off the scabs :/ but now that i told my friends about it im going to just leave them alone and let them heal from now on haha i was wetting them every hour so ill probably just keep doing that.
- Re: What to use while on holiday? DepressedLips
12 y
1,495
- Re: What to use while on holiday? Healing2021
12 y
1,340
- Re: What to use while on holiday? jsl123
12 y
1,387
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Protozoa, Amoeba, Pin Worms?
Hulda Clark Cleanses
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This is a reply to # 1,976,321hey healing how is your progress coming along with the medication and the cream have you noticed any difference? while your using the cream is there any bit of white skin forming in a line sort of were your lips touch or not???? hope your medication works youv been on it for 2 weeks now? if it doesnt work does this simply mean its not psorosis or exzma? and what is going to be your next plan of attack?- Re: What to use while on holiday? Healing2021
12 y
1,581
This is a reply to # 1,976,353JSL,
I havent really seen any improvement, but it is still really early. My next appointment is in 2 weeks so I will see what he thinks then. I hope I will see improvement but I never get my hopes up. And if this doesnt work then yes, I think we will rule out Psoriasis, Lichen Planus, and anything else Cyclosporine treats.
As for my next move, I think I just want to leave them alone. And just give it a real go for 5-6 months. Last week when i left them alone for a week, they felt and looked good. better than the first week when I first started leaving them alone. I dont know if it was possibly the Cyclosporine or maybe just because of the progress I was making while leaving them alone.
But I will discuss it with my doctor because Im sure he may have a plan for what he wants to do next. Although Ill probably just leave them alone and if that doesnt work Ill start doing other shit.
Also one of the things that keeps me thinking that leaving them alone could work, is before I first started leaving my lips alone, I could see places on my top lip where is appeared to have layers of skin missing. Like there were these deep grooves that just looked like there was skin missing. And now I dont have those.- Re: What to use while on holiday? jsl123
12 y
1,540
This is a reply to # 1,976,367how do you say you dont have any improvenments?
i mean how can you really tell wehn putting creams on? i mean 95% of the creams i put on my lips made the crust fall off over night then during the treatment you wouldnt even know i had ec as my lips were completely fine. just when i stopped the creams it would come back in 4 days.
i mean if you start doing the leave it alone theory you would have to restart the whole prcoess i would imagine although i think ihopethis helps said i think off memory that he manually peeled his lips a few times for social events maybe somebody should go through his posts to see if that is correct i was under the impression as is daniel miller that you have to completely leave the lips alone. ???????
anyways hope you going good man i really hope the medicine kicks in does the medicine also cover exzma conditions???
i was wondering if you could ask your doctor maybe if he would think it would be a good idea to try medicine that they give people that get ulceration in the mucous membranes ro there lining of there digestive system as the lips are part of this??? might be worth asking him
anyways let us know!- Re: What to use while on holiday? Healing2021
12 y
1,481
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Hulda Clark Liver Cleanse
Hulda Clark Cleanses
Fast and Painless Constipation Relief
Oxygen Bowel Cleanser
This is a reply to # 1,976,371I can say that I dont think I see improvement because I would just know if I was improving. I mean I've had this for 9 months now, and obsess over it everyday. I would know if they were improving, believe me.
They are still red as hell and they seem more raw and irritated than ever. If I was seeing improvement then they wouldnt be.
At least when I was leaving them alone they werent raw and irritated. And I dont think I will have to start all over again, because I havent dont as much damage over the past 2 weeks as I did in the previous 5-6 months.
Like i said when I left them alone again last week, they looked like they did when I stopped a few weeks ago. The crusts were clearer and thinner.- Re: What to use while on holiday? jsl123
12 y
1,362
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Protozoa, Amoeba, Pin Worms?
Hulda Clark Cleanses
Fast and Painless Constipation Relief
Oxygen Bowel Cleanser
This is a reply to # 1,976,375mate i would take on chemo theorapy to get rid of this mother fukkkaaaa.
a life with ec is like being dead theres no difference so why not go down fighting i say. bring it on!!!!!!!!!!!!!
once i have done 6-7 months of leaving it alone if a doctors tells me to put chicken shit on my lips and drink 5000 litres of acid i will do it.
what ever it takes!
JUST DO IT!!!!!!!
FKCUKKK EC
FKUCKKKK EC HATE THE MOTHA f***KKINGGGG CUNNNTTTTTTTTTTTTTTTT
- Re: What to use while on holiday? jsl123
12 y
1,362
- Re: What to use while on holiday? Healing2021
12 y
1,481
- Re: What to use while on holiday? jsl123
12 y
1,540
- Re: What to use while on holiday? Healing2021
12 y
1,581
- Re: What to use while on holiday? PleasantOne
12 y
1,362
This is a reply to # 1,976,321Thanks healing2021,
I am pretty sure that the sun helps with our condition due to vitamin D which is benefical to our lips, and also being on holiday is a stress free experience.
you would definitely love it out there. This will be my second time going Jamaica. :)
- Re: What to use while on holiday? DepressedLips
12 y
1,401
- Re: What to use while on holiday? PleasantOne
12 y
1,328
This is a reply to # 1,976,310Thanks for your suggestion brillig. Unfortunately, Amazon does not sell this product in the UK. So i am going to do abit of research into why I can purchase this from.
Thanks again- Re: What to use while on holiday? brillig
12 y
1,773
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Hulda Clark Liver Cleanse
Hulda Clark Cleanses
Fast and Painless Constipation Relief
Oxygen Bowel Cleanser
This is a reply to # 1,976,467You are most welcome. If you can't find that exact product, perhaps you can find a different zinc oxide balm that reviewers think does not turn the lips too white.
The choices in general are either:
Regular zinc oxide (non-nano or non-micronized)
or
Micronized zinc oxide (also called nano zinc oxide)
The micronized zinc oxide has much smaller particles of zinc, which makes it less whitening. However, some health conscious people claim that the micronized zinc oxide has particles SO tiny that they can actually enter the body/bloodstream through the skin, which they believe is dangerous. Opinions on this vary.
There are no health concerns at all with the regular zinc oxide, which is a natural, "barrier" type sunscreen, meaning it protects from the sun by actually creating a physical barrier on the skin that the sun can't penetrate.- Re: What to use while on holiday? lipshitz
12 y
1,458
This is a reply to # 1,976,490Damned if you do, damned if you don't. But enjoy Jamaica. There's nothing wrong with wearing a hat and sunbathing around noon when the sun won't hit your lips.
I would agree about shea butter being the best natural option for a maybe 30 minute contact with the sun. I always wanted to research this topic more, but instead moved to Portland where the sun isn't really a problem. Now I'm in Northeast Brasil during the rainy season so basically I'm doing long-term supplementing with Vitamin D capsules.
I'd be really interested in a survey of how much sun peeling lips sufferers get on average. Due to fears of developing actinic cheilitis (a much worse condition in every sense) I wouldn't be surprised if we all get little to no sun on average.
Peace,
C.S.- Re: What to use while on holiday? Healing2021
12 y
1,345
This is a reply to # 1,976,713Lipshitz,
Just out of curiosity, how did you find your way down to Brazil. I assume you are living down there at the moment? Where are you originally from?- Re: What to use while on holiday? lipshitz
12 y
1,413
This is a reply to # 1,976,737I'm originally from Texas but like I said in another post, went to work on a farm in Argentina. After I got kinda bored there, I thought Brasil during Carnaval would be exciting. I met my girlfriend then, and now I'm back again, in the Northeast, near the equator. It's always humid here, but not too hot since it's the rainy season now. Thinking I might avoid another US winter and go to Southeast Asia instead, then come back to Brasil after that.
Peace,
C.S.
- Re: What to use while on holiday? lipshitz
12 y
1,413
- Re: What to use while on holiday? Healing2021
12 y
1,345
- Re: What to use while on holiday? lipshitz
12 y
1,458
- Re: What to use while on holiday? brillig
12 y
1,773
- Re: What to use while on holiday? Healing2021
12 y
1,444
- Re: What to use while on holiday? brillig
12 y
1,880
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