I am 26 months post. I used to hope my numerous medical tests would show something so I could find the cause and treat it. Now over the last year I've started having abnormal tests but it still doesn't help!!!! They are all at a loss.
Since the May blood test, I've become anemic--even though I take 150% of recommended daily iron and B vitamins every day. ???
Blood shows gamma globulins and C3 (immune system stuff) are off. Gamma globulins suggest "chronic immflamatory response."
Estrogen and testosterone too high, ratio between estrogen and progesterone way off. Progesterone cream doesn't seem to help.
Brain MRI 30-40 lesions, probably not MS, could be inflammation or blood vessel problem, or who knows.
Breathing test abnormal--they thought I had asthma because I didn't have enough breath, but I defintely don't.
Oxygen test abnormal--it went down instead of up when I exercised.
Have acquired "significantly" deviated septum. 3-4 years ago I stopped being able to breathe on the left side and now I see why. I asked how it could have become deviated and they said teachers live in allergy soup. So what, my septum MELTED? What?
Heart rate now has premature/irregular beat, so they can't read the nerve test they did to see why one pupil is larger than the other.
The only thing that's improved since I had Mirena removed is that I feel happier despite everything. Not so angry.
Also I found out that 5 years ago, when I got the Mirena, my school put down new carpet OVER the old hurricane damaged carpet. This might be too paranoid, but I feel like Mirena depressed my immune system to the point that I have acquired mold allergy or chemical sensitivity. . .that would explain the years of daily muscle aches, painful eyes, fuzzy thinking, face rash, headache, and 5 years of fatigue. Even the numb foot. It would explain why I feel nauseated and dizzy in my classroom but not at home. It would explain why I'm getting worse and not better.
Anyway, I've written way too much. I'm just trying to talk it out and find a solution. Maybe that's why Mirena makes us sick. It weakens our body and makes us vunerable to everything.