Thanks for the update. I hope and pray that you will go back to feeling better very soon. Keep us updated, ok?

I can totally relate. In the past year or so I've noticed that motion in my head feeling that you describe, sometimes more noticeable than others. Feeling off-balance just trying to walk straight sometimes. Also the breathing thing, where I feel I need to concentrate on breathing. Not bad enough to make me feel panicy anymore. I know if I ignore it, or take a nap it'll go away. Haven't had where I've jerked myself awake in some time now. Still getting a little anxiety here and there. It seems like I feel it up in my chest. I was feeling it a bit more the last couple days, but today I feel good. I've been getting pressure in my head, as if just my head and eyes could have high blood pressure?? Unfortunately for me, I'm still not 100% even after 4 1/2 years, but compared to a couple years ago even, I'm doing so much better. I was thinking the other day, I can't even remember what it was like to feel normal anymore, and who knows if I'll ever be completely better. But it does help to look back and see how far I've come.

Good luck, keep posting!
-nile

Wow thank you so much to all those 2 years post-removal for posting your successes and struggles with Mirena. I will be exactly 2 years post removal at the end of this month and boy, I was losing hope. I was starting to think that something else was wrong with me. I don't think I've had one whole month where I could say I felt good everyday. I would say one week at most but the rest has been hell. If it's not one symptom it's another, but most constant symptoms are an unbalanced feeling and exhaustion. I can't drive or go anywhere by myself because because this unbalanced feeling is horrible. I was losing hope because I hear of others still having bad days, but also having decent days where they could go places, exercise, socialize, etc. and in my case no way in the world I could do this. The most I could do is go to church, visit my family, and hardly go grocery shopping. Thank you everyone! You guys lift up my spirit, and give me hope once again. I don't know how much longer I will be feeling sick, but just knowing that there is hope gives me strength to keep fighting this nightmare.

I also want to thank the ones that are back to normal and they still take their time to come back and check on those that are still suffering. I might not post too often because sometimes I feel like I sound too negative. I'm always posting that I'm still struggling even after so long. I promise that I'm here every single day not once or twice but many times always checking and looking for answers.

Question to those with the head unbalanced feeling, do you guys feel like tension on the back of your neck, or ears pooping or ringing? I went to The ENT and he didn't find anything wrong with my ears, so I don't know what else to do to get rid of this unbalanced problem. Like I said I still have many of the other symptoms but this unbalanced problem is constantly annoying.


Thank you everyone so much.
Cynthia

I suffer from Menieres Disease (vertigo), not caused by Mirena (surprise surprise) so after dealing with it for over 20 years I have a few tricks if you are ever hit with the vertigo feeling again:

- Avoid all salty food while you are dizzy
- Drink a cup of peppermint tea each hour
- Take a ginger tablet
- Try and sit in a still position not tilting your head until it subsides

I am on a permanent low salt diet, in fact I dont have salt at home apart from a tiny container for guests - I dont add salt to anything. Salt is a major trigger for me with Menieres/vertigo. I especially get an attack when I have been out to a restaurant or eaten take-away :(

Just thought I would share..... :)

Hope you are better soon - it's horrible what we are all going through!