Can ANYONE relate? Please? From UK -... 
#116272
15 y
6,435
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I am so lonely. I live alone and have spent 6 weeks in bed curtains drawn.
I think my posts are too long as no one seems to respond or they say i have a virus ( i dont )
Candida suffere 4 yrs - housebound but able to work from PC and go out occasionally on "good days" which didnt seem to have any reason for why they were good.
Husband left me 18 mths ago due my limited health.
Was on erica white program - tons of vits and diet but only felt worse after 12 mths. Couldnt tolerate even 1 coconut oil tablet left me ill for 2 weeks.
I was on threelac for months ( started nov 08 ended 6 weeks ago )
It was ok at first on SMALL doses. But then I hit 2 pkts a day and all hell broke loose. I was so ill and getting ill and spending more and more days in bed ill without me even increasing the dose.
After 3 months of 2 pkts a day and trying to "stick it out"
I finally collapsed. All over body fatigue and weakness.
Slept for days.
Then symptoms like joint clicking started ( no pain ) and now for the last 3 weeks i am deathly ill.
Aching legs - lower back - hot - cold - shivering - unusualy clammy cold feet - sweaty hands and underams which always starts late afternoon and settles a few hours later.
headaches - joint pain in shoulder which extends all the way down to hand and under the arm too ( right )
wrists thumb joint aches - seems to be getting worse
( always worse at around late afternoon and stays until 11pm - and a little sore when I wake )
shakes
appitite on and off.
All over feeling of sickness..
Muscle twitching
major Depression probably because I have been in bed for 6 weeks and it doesnt seem to be getting better at all.
This doesnt feel like the die off I got from threelac ( sometimes it does ) other times I just feel ill - weird.
Is this toxic overload?
I have revealed my ferritin levels are 22 ( normal - 10 - 160 )
and TSH 0.32 ( normal 0.3 - 5 )
I just want to talk to someone who can say " yes i have seen or heard of this happening and you need to do ABC"
All i am getting is doctor saying I have virus.
i dont..a virus doesnt get worse on week 6
I dont have chest infection - sore throat - cough.
I want to die..seriously... I dont want to live anymore not like this.
Can anyone recommend a GOOD experienced UK based doctor / therapist who can treat me and find the CAUSE of my candida and why I cant get shut of it? Please?
I have been on the anti candida diet for 4 yrs - give or take once each 6 mths when I would eat 3 chocolates and throw the rest away or have 1 slice of toast..
death seems so more more comfortable than life in my mind.And not having a light or ray of hope..
sorry for the "drama" i am so low and alone.
More
- Re: Can ANYONE relate? Please? From ... Ruffneck
15 y
6,211
MoreThis is a reply to # 1,441,737doesn't sound to me like you were having die off from threelac , more like an 'allergic' reaction , flooding your body with something it did not like.try getting on some good wholefood supplements , it sounds like you may be deficient in some minerals , the muscle twitching may be due to deficiency in magnesium.
- Re: Can ANYONE relate? Please? From ... bodgy
15 y
6,263
This is a reply to # 1,441,737Well, I can relate!!!! BUT, I can't say I've figured anything out yet:(. I was curious if maybe you might have some type of environmental exposure? Maybe flouride(joints popping and clicking), this could maybe be from the water, dental work, some Antibiotics and/or antifungals. I think Iodine is supposed to help on many levels, have you tried that? Have the docs checked your vit d level? Just curious about hypoparathyroidism. I had a high blood calcium level once and the parathyroid controls this level. I know when the calcium in my blood was high---I wanted to die. It was the most awful feeling of hopelessness. But when the levels went back to normal--no more Depression or many other strange symptoms.
As for the die-off reaction from your threelac, I would say that could be something to also consider--definitely. Are you taking any other probiotics as well? Maybe this threelac probiotic is the only thing inhabiting the gut and leaving you in a state of constant die-off. I din't think this "good" bacteria would be good to have as the only bacteria hanging out in the gut. If not taking other kinds, I would start on some, or some sauerkraut, kefir, yogurt or something to re-inhabit with other good bacteria. And do you have some vit c? Maybe taking some high does of this could help the die-off from the threelac and boost the adrenals.
Maybe you don't have a current viral infection but have you had one in the past? Say, epstein bar(mono), any warts on your hands or feet, just grasping here. Trying to think of some viruses that can tie-up the immune system when given the chance to gain some ground in the body due to some other assault(stress).
I have many of the symptoms you do, and I too have run the gammit. Just trying to mention the stuff I've considered, even though I don't know the source for sure. Sorry I'm not very helpful, but hang in there.
I am editting b/c I also wanted to ask if you have any changes in appearance? Especially in the afternoon/evening when the pain and shakiness occurs? In my own case I've considered acromegly. This can be caused by a tumor in the pituitary, adrenal gland, lung or pancreas, from what I've read. I was told by Hveragerthi this was probably NOT the case(which I really want to cling to that) but my appearance changes so dramatically when these episodes occur, I can't help but keep it in the back of my mind. Have you looked into the symptoms of that maybe? I'll try to find a link to post about it and it's symptoms.
- Re: Can ANYONE relate? Please? From ... Ladywear
15 y
6,080
This is a reply to # 1,441,737Advertisement
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I think you maybe wrong - almost everyone on here really tried to help you last time you posted but you didnt respond. Why not try Dr Sarah Myhill who is based in UK - she is very good and understanding about candida/dysbiosis/CFS. She can arrange any tests that you may need and has a website, also does telephone consultations if you are too sick to travel, email communications and letters. She is the best person I have seen in UK.
http://www.drmyhill.co.uk
Hope that helps - Re: Can ANYONE relate? Please? From ... #91249
15 y
5,959
This is a reply to # 1,441,737Sadly it doesnt work as easy as ABC, their could be a number of reasons for such symptoms from parasites, bacterial/fungal overgrowth, hormonal disorders and endocrine problems, heavy metals etc.
Have you tried digestive bitters ive recently got started on them after overlooking them for too long thanks hve for reminding me and my digestion and allergys have improved a whole lot.
- Re: Can ANYONE relate? Please? From ... imaxfli
15 y
6,605
This is a reply to # 1,441,737Sounds to me like you are OVERACIDIC with Candida problems, probably have LEAKY GUT...I would eliminate Sugar and simple carbs from diet and go on "Moreless:pH" Alkalizing Protocol(baths/drink)...do Humaworm and Humacleanse together....drink as much filtered water as you can handle...take some Candida killers rotated every 2 weeks(GSE, Jotoba, Garlic Leaf)...look up Leaky gut and do a Natural remedy after Humaworm is done. Have you ever taken urine pH????
- Re: Can ANYONE relate? Please? From ... bodgy
15 y
6,284
This is a reply to # 1,441,761Just curious, what SHOULD the urine PH be AND what does it mean? I know nothing(to speak of) about the whole PH thing. All I DO know is that mine has remained alkaline for a very long time. So is this a good thing? Because I've never felt worse than when mine has been alkaline. That being blood, urine and saliva.
- Also curious about the above post Flairgal
15 y
5,986
This is a reply to # 1,441,768I am wondering about body/urine ph as well. My urine as of lately has had a dull sting on my vulva. I was interested in doing a urine ph but didnt know how to get started or what the results should be.
Thanks- Re: Also curious about the above pos... imaxfli
15 y
5,924
This is a reply to # 1,441,806Buy pH strips at most drug stores...check urine throughout the day..if constantly 5-6, your body is working overtime to expel acids as it keeps bodies systems balanced....get the book ALKALIZE OR DIE(Baroody)...consider Moreless:pH protocol.
- Re: Also curious about the above pos... imaxfli
15 y
5,924
- Re: Can ANYONE relate? Please? From ... imaxfli
15 y
6,059
This is a reply to # 1,441,768Advertisement
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How alkaline is it...6.75-7.5 would seem great...if your in the 8's, that may be too high...if your low ..5's...that means your body is having to keep excreating the acids...meaning organs working harder than they should be...meaning acidic environment causes diseases.
- Also curious about the above post Flairgal
15 y
5,986
- Re: Can ANYONE relate? Please? From ... bodgy
15 y
6,284
- Re: Can ANYONE relate? Please? From ... m99
15 y
6,018
This is a reply to # 1,441,737I suggest you do a MetaMetrix test ASAP and find out what's going on. It's relativily quick. Then you stand a much better chance of actually curing the disease in question.
- Re: Can ANYONE relate? Please? From ... NewUK
15 y
6,264
This is a reply to # 1,441,737Right here goes! I've had all this stuff you describe and been on curezone for years. Started off thinking it was candida. Told it was parasites . Got tested and found I had dientamoeba fragilis. Whatever parasite you have (and you probably do)you will end up getting the damage and symptoms you describe. No amount of vitamins and minerals will cure you if this is the issue.
Firstly, Threelac is clearly no good for you. It wasn't for me either and made me really ill and undid all the progress I had made. There was a program on BBC Horizon testing the effectiveness of probiotics and the prognosis showed that the results are highly individual. What works for one person does not work for another. It is common knowledge amongst people with parasites that you cannot take probiotics until you are clear.
The only lab in the UK testing effectively for parasites is the London School of Hygiene and Tropical Medicine but you have to be referred by your doctor.
http://www.parasite-referencelab.co.uk/
You will have to persuade your GP this is the route you wish to investigate. This is also the cheapest way to get tested. "Alternative" doctors can be very expensive.
It's been a long journey for me and isn't over yet. I took herbal remedies for parasites and pharmaceuticals and though I got rid of the amoeba I still have digestive issues.
However, my success story at the moment is Chinese medicine. I can't speak more highly of it. I have more energy and positive mood than with anything else I have done to date. And NO DIEOFF! If you are in London I can give you the name of my practitioner.- Re: Can ANYONE relate? Please? From ... m99
15 y
6,141
This is a reply to # 1,441,789Have you tried the triple drug cocktail as described on http://www.badbugs.org?
The eradication rate is +80% with the right drugs, however you have to order them from abroad. Protozoals such as yours are behind more than every second case of IBS.
- Re: Can ANYONE relate? Please? From ... NewUK
15 y
6,579
This is a reply to # 1,441,804That's exactly where I went for advice on DF!
Actually you don't necessarily take the triple drug for DF but for Blastocystis Hominis. I took the 2 recommended drugs for DF and tested clear. It is important to realise that taking pharms does not clear all your health issues maybe even creates some. I just don't know. I am approaching the thing from another angle now and Chinese medicine seems to fit the bill. Until that stops working!- Have you checked into DE (diatomaceo... #68716 15 y 6,374
- Re: Can ANYONE relate? Please? From ... NewUK
15 y
6,579
- Re: Can ANYONE relate? Please? From ... m99
15 y
6,141
- Re: Can ANYONE relate? Please? From ... shroom
15 y
6,260
This is a reply to # 1,441,737You have all symptoms of Lyme disease. Have they checked for that? Shroom
- Re: Can ANYONE relate? Please? From ... presterjohn64
15 y
6,098
This is a reply to # 1,441,737You've had candida four years and been on the anti-candida diet for four years? It doesn't seem like it's working then, in fact it's probably made things worse by weakening your system.
- Re: Can ANYONE relate? Please? From ... stinkyOne
15 y
6,162
This is a reply to # 1,441,737Advertisement
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Free S&H.Restore lost reserves.J.CROW’S®Lugol’s Iodine Solution
New to this forum so I dont know your complete situation. Have you had a complete physical?? Sounds like some sort of virus. For candida you could take probiotics. If this isnt working see if your doctor can prescribe a pill that you take to treat yeast infections. they have them but they are not used as often so not many people know about them. Also try mitamins (yes Mitamins not Vitamins) and Colloidal Silver . Hope this helps. If not...i hate to say this but have you been checked for or diagnosed with HIV/AIDs??? If not get yourself tested. - Re: Can ANYONE relate? Please? From ... curemecurezone
15 y
6,271
This is a reply to # 1,441,737Candida die off turns into Ammonia in the body. This causes pain, nausia, aching and a feeling of being sick. This happened to me. I was told to take large doses of the amino acid - L-arginine (daytime) and L-ornithing (at bedtime). This made me feel soo much better. Second, I went to a clinic that had far infrared therapy. This makes you feel great! I recommend far infrared! Third, maybe you can find someone who does "muscle testing" ..to find out what toxins you have been exposed to ..maybe its more then candida.
- Re: Can ANYONE relate? Please? From ... King2016
7 y
2,544
This is a reply to # 1,441,737Have you been checked for possible Lyme disease. Those sound like Lyme symptoms.
- Re: Can ANYONE relate? Please? From ... jhan
7 y
2,921
This is a reply to # 1,441,737I have been on the candida diet for many years (10) when I finally got over it. I had suffered from candida for some 20 years so yes- the treatment can take a long time especially when you are all alone without resources, which I was. Now you are here - this is good news.
I did not read the may many post in reply to your message so there might be repetition/contradiction
Low ferrine : I have got this great supplement: HEMOPLEX (from Nu-Life) one a day with meals
Aching legs : attend the Lymph forum here at Curezone
lower back : adrenal support see my post: //www.curezone.org/blogs/fm.asp?i=976142
hot - cold - shivering: thyroid issues unusualy clammy cold feet - blood circulation: cayenne supplements
sweaty hands and underams which always starts late afternoon and settles a few hours later: detox bath : //www.curezone.org/blogs/fm.asp?i=976119
appitite on and off: drink more eat less
Muscle twitching: mineral imbalance - veegy juice
major depression: vitamin - B complex( the Hemploex supp I suggested above contains B complex vitamin
probably because I have been in bed for 6 weeks and it doesnt seem to be getting better at all.EXERCISE SHORT WALK - A FEW SIT UPS- DAILY
3lac is mostly a probiotic... not a solution - you need to
1- stickk to the diet
2 - address the adrenal issue + mineral imbalance issu
3 - add probiotcics sauerkraut is far supperior to 3lac.
Hope this helps,
Jhan
- oops that one was posted 8 years ago... jhan
7 y
2,569
- oops that one was posted 8 years ago... jhan
7 y
2,569
- Re: Can ANYONE relate? Please? From ... Ruffneck
15 y
6,211
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