New UC Patient 
newucpat
16 y
4,929
My husband is 43 years old and has been diagnosed with UC recently. He was operated for appendicitis on 1/10/08 but started having cramps two weeks after surgery. Had the blood in his stool first time on 3/3/08. Had the colonoscopy done on 3/7/08. Started Asacol 2 tablets 3 times a day on 3/8/08. His colon about 20cm is impacted on the left-hand side. Read lot of stuff on the internet and stumbled on curezone site sometime last week. Asacol did help him a little bit and he is havinf one bowel movement a day, but so far after 3 weeks the blood has not stopped in the stools. Stools are somewhat formed but has mucous and blood in them.
For the diet, he eats cereals with milk in the morning and less than half cup of tea (otherwise he gets headache). For the lunch and dinner he is taking lot of vegetables and fish or chicken or mutton with white rice or pita bread or regular bread. In between he does take boiled egg and banana. He takes just the regaular tap water. I read your diet but was not sure what can be eaten in the morning.
He does take Centrum one a day multi vitamin that has minerals in it. He also takes 2 tablets of Fish Oil Concentrate (1000mg contentrated fish oil with 300 mg omega-3 fatty acids) I want him to start the vitmins you suggested for the procedure one after the other and the diet before starting the vitamin E enema. I bought the
following vitamins as requested: Vitamin E 400IU as d-alpha tocopherol plus d-beta tocopherol, d-delta tocopherol and d-gamma tocopherol by SOLGAR (ingradients: safflower oil, gelatin, soyabean oil, d-beta tocopherol, d-delta tocopherol and d-gamma tocopherol, water)Vitamin C 500mg is Ester-c (ingredients: cellulose (plant origin), croscarmellose, calcium silicate, vegetable stearic acid, vegetable magnesium stearate, cellulose coating). I will buy selemium and vitamin K tomorrow and will send you the details. Do you recommend any probiotics or prebiotics etc. For now he is not using anything.Advertisement
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- Re: New UC Patient sheldon
16 y
5,160
MoreThis is a reply to # 1,143,500
Hello,
The diet is the cornerstone of the procedure any wrong food or liquid will irritate the colon and delay healing.
No processed food.No cereal.Try brown rice or barley.
No white rice,mutton,banana or pita or regular bread.
See if you can get distilled water in the store.If not,get the softest water you can.Many tap waters can have irritating chemicals.Use the procedure diet for all meals with vegetables at every meal.The posting Issue 64 gives the correct diet information.Your vitamin E is fine.Probotics? What we are trying to do is get a positive basic result from which we can later add one different item at a time.The colon will give the best answer.There should be a positive result within a week and continued improvement to a CURE without future flares.Most important,please keep us posted.sheldon
- Re: New UC Patient newucpat
16 y
4,694
MoreThis is a reply to # 1,143,595You think that the Fish oil tablets he can continue taking?? please advise about vitamin C too?? I read the diet but it did say much about the sweet items like cookie etc. Can he take sugar?? For milk you have suggested soy milk or low fat yogurt (kefir).
- Re: New UC Patient sheldon
16 y
4,980
This is a reply to # 1,143,729Advertisement
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No cookies or any processed food.The fish oils should be OK but since I have no experience using them perhaps it would be better not to use them for the first week.
Sugar takes more than it gives the body if over used.Try Stevia or unsulphured molasses as part of the sweeteners.Kefer or low fat milk yogurt and soy or skim milk should be fine to drink.When using steamed vegetables,drink the water in the upper basket of the steamer or pot they are cooked in.If the previous diet was processed foods,it will take a short time for the colon to adjust to the fresh cooked food diet.- Re: New UC Patient newucpat
16 y
4,444
This is a reply to # 1,144,083I will be sending you another email soon with the rest of the vitamin details and will proceed with the procedure diet and enema soon. Thanks for your time and i will keep you posted. I may have more questions regarding the diet but for now i think have enough information to proceed.
- What Happened? jrcosta
16 y
4,563
This is a reply to # 1,144,464Hello Sheldon
7 months ago I started this procedure, and as I said, everything was going fine with of course some little drawbacks until I leave all of my meds ( Asacol, Prednisone, Proctosteroid,..) I stay in the procedure ( all type of steamed vegs, brown rice, distilled water, soy milk,salmon, chicken breast also steamed, can sardines...) as told and everything was OK I was not taking the Vit E Enema anymore when I decided in 5th month to start introducing slowly new foods like bread pasta,stuffed chicken, soup, a glass of read wine and other processed foods, I was doing ok one regular BM a day over two months without any enemas only vitamins, eating vegetables everyday I begun to be convinced that I was cured when suddenly 3 weeks ago a major flare up.
I started immediately the procedure enemas included but nothing seems to stop de blood 3 to 4 BM's a day, last week start taking Asacol, Proctosteroid (local corticosteroid enema) and last 3 days 10mg of Prednisone, and still the same, can you advise me?
Thanks in advance.Advertisement
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- Re: What Happened? sheldon
16 y
5,063
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This is a reply to # 1,144,888Hello,
As explained in the procedure information,you continue the procedure until you pass the fecal accult blood test.A positive result shows the sores on the colon are ALL healed.Any remaining small open sore area on the colon wall will later open up when enough irritation will cause it to flare.This is the reason ulcerative colitis is considered incurable.Your colon was never totally healed.
Once the colon is totally healed there will be no future flares.The test can be bought at a drug store for $10.00.Continue the procedure.Please keep us posted.
- Re: What Happened? jrcosta
16 y
4,449
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This is a reply to # 1,145,070Thanks for your reply
Here we don't have that tests in our drug stores, so is difficult to determine if I have blood in my feces, but I'm going to stay more time in the procedure until I do a colonoscopy, for now I'm trying to reduce my BM an blood, I don´t know if I increase my cortisone or if i stay a little more as I am, I think if I stay maybe I get an anemia.What are your opinion?
Thanks- Re: What Happened? sheldon
16 y
5,022
This is a reply to # 1,145,570The procedure will still be effect with medication if you decide to use it.
Later when you are ready to stop the procedure your doctor can test for blood from a fecal sample.A colonoscopy won't do it.- Vitamin K newucpat
16 y
4,421
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This is a reply to # 1,145,613Sheldon, Please advise what compund of potassium should i take along with selenium, vitamin C and vitamin E. The most available compunds are potassium gluconate and potassium chloride. I was able to find rest of all the recommended vitamins, distilled water etc.
Thanks!!- Re: Vitamin K sheldon
16 y
4,776
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This is a reply to # 1,147,124Advertisement
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Hello,
Use just the vitamins listed in the procedure.The diet is healthy and the fresh cooked unprocessed food will provide the correct balance a nutriments that are necessary.An overload of extra supplements can over burden the digestive system.- Re: Vitamin K newucpat
16 y
4,573
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This is a reply to # 1,147,223Sheldon, The message from Issue 54 marked as BSA says the following for the vitamins:One multi vitamin & mineral capsule and one 500-mg. vitamin C (ester C is best),one 400 IU vitamin E ,and one 200 mcg selenium,one vitamin K capsule every day. I found all the vitamins except vitamin K which i thought is potassium. That's why i was wondering if you could advise me what compund of potassium it is as i was unable to find it at pharmacies. Thanks!!- New UC Patient - Update newucpat
16 y
4,361
This is a reply to # 1,147,302Yesterday was the fifth day with the enema also we introduced brown rice yesterday too. Based on Asacol (2 tab 3x) and enema (at bedtime) he was getting better reults, almost no visible blood. But today he not only had a lot of blood in stool but we also see vitamin E in the toilet along with the stool. Any thoughts, please advise. Thanks for your help
- Re: New UC Patient - Update newucpat
16 y
4,440
This is a reply to # 1,150,524He again had another stool and that was not even formed. Blood in this stool too. Please advise.
- Re: New UC Patient - Update sheldon
16 y
4,878
This is a reply to # 1,150,571
UC is a very sensitive condition.In the beginning of the procedure where very little healing has taken place,any change can cause a slight down turn.You have been on the procedure a short time.So far there has been general improvement.More time is needed for more colon healing and adjustment.However,general improvement should continue.Try to notice any changes in your routine that have occurred that could have triggered the downturn.
- Re: New UC Patient - Update newucpat
16 y
4,441
This is a reply to # 1,151,047Advertisement
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Sheldon, today he was a little beter stool form and less blood. Also we are noticing that along with the stool we do see som vitamin E in the toilet.It was not there on the first 4 days but since we are using full dose w are noticing it. Any thoughts from what you heard from any other users?? Thanks!!- Re: New UC Patient - Update sheldon
16 y
4,995
This is a reply to # 1,151,154It could be what you are observing is an outer capsule or contents of another supplement.Yes,I have received the same condition reported from a few people over the years.Usually it was because the the enema was not retained long enough at the beginning of a procedure.How long have the enemas been retained after taking them and the first bowel movement?
- Re: New UC Patient - Update newucpat
16 y
4,531
This is a reply to # 1,151,594He takes the enema in the night and has the bowel movements in th morning. So it usually stays all night. Today we tried in the morning. Today again the stool was not formed much and has blood in it. I'll keep you posted. In the diet he usually takes eggs in the morning and steamed vegetables and chicken/fish in the lunch or dinner. In between he takes yogurt sometimes. Thanks for your help.
- Re: New UC Patient - Update sheldon
16 y
4,788
This is a reply to # 1,151,962It is important to eat vegetables at every meal.Each vegetable has different vitamins,minerals and fiber.All are necessary for colon healing.I would guess the colon is still in an irritated condition.Later there should be no visible E in the stool.
- Re: New UC Patient - Update newucpat
16 y
4,468
This is a reply to # 1,152,326Advertisement
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Sheldon, it has been good last three days the stool was formed and very minor blood but today again he has quite some blood as well as mucous. Also the blood seemed fresh as compared to previous one which was kind of little maroonish or you can dull. We have been doing enema for the last two weeks (started on 4/4/08). Nowadays i am not seeing any more vitmain E in the toilet. We are trying to stick to few vegetables (which we had already tried) so we can get to a point where there is no blood in stool. Any advice from your experience/knowledge will be appreciated.- Re: New UC Patient - Update newucpat
16 y
4,606
This is a reply to # 1,153,759Sheldon, do you know when the patients usually start gaining some weight?? I am really concerned. My husband is beter 3-4 days and bad again and in this timeframe i dont know whether he is morally down that his appetite goes down or something physically?? But during this time gaian we saw the weight loss, so you can say we see the weight every 3-4 days. I posted one mail in the morning which you never replied this is my second mail on different question. Please advise from your experience.
- Re: New UC Patient - Update sheldon
16 y
4,943
This is a reply to # 1,154,160Sorry about not reading your first message.I read a later vitamin E mail that replaced you vitamin E listing.In the future,I'll be more careful.
If you get three good days than get a bad day,it showa the diet and enema are effective for your condition.It seems very possible that some outside condition is causing the harmful reversal.Most possible is extra deep mental stress or physical stress.I well understand the the physical condition of UC and the stress it can cause.Try taking long slow walks around or near the house.Occupy your mind with other things.Weight gain will take place as the colon heals.For sure,there is a healthy future.
- Re: New UC Patient - Update newucpat
16 y
4,445
This is a reply to # 1,154,281Advertisement
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Your experienced words provide comfort. My husband's doctor wanted him to start prednisone (steroids) but we wanted to see if the recovery happens with vitamin E enema along with Asacol then we will avoid that. From yestreday we are trying to stick to the very tried vegetables and chicken/fish (salmon and talapia) so we do not have issues with any new items at least for two weeks. We will keep an eye on the physical exertion too. Thanks!!- Re: New UC Patient - Update sheldon
16 y
4,858
This is a reply to # 1,154,393
You can also try brown rice,eggs and barley.Anything on the diet list or any other vegetable not on the diet list.You can add one one item at a time and see the result.Al tho an allergy to any of them is not likely.Any prescription medication should be reduced slowly.The procedure will still be effective with a prescription drug.
- Re: New UC Patient - Update newucpat
16 y
4,488
This is a reply to # 1,154,637Sheldon, is there any reason that wheat is not included in the list?? It is also a whole grain. The reason i am asking is because in india we make flat bread at home, the dough only includes whole wheat flour and water. Can i give my husband this bread.
- Re: New UC Patient - Update sheldon
16 y
4,732
This is a reply to # 1,154,724There is a slight possibility of a wheat allergy.Also bread is a processed food.It can be tried later. Since there is difficulty getting a positive base from which we can judge other foods one at a time, lets wait.Once we get a week or two of a positive condition it can be tried and then we can see the result.
- Re: New UC Patient - Update newucpat
16 y
4,820
This is a reply to # 1,154,837Advertisement
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I think we have been getting positive results from the procedure but since we were not experienced with this disease like how much new things would cause the issue we never realized. We realized it last week when the blood has reduced a lot and we introduced organic soy milk, readishes and brown rice in the same day. He had vry bad two following days. We realized this week that the soy milk didn't suit him because this week when he again took it he had quite some blood in stool next week. Now we are sticking to few vegetables and chicken/fish untill we have two to three weeks at least no visible blood in stool. For the bread i asked because we are from indian culture and we have eaten wheat since childhood so our bodies re kind of used to it so i am expecting less issues in introducing that rather than brown rice or barley. We make the bread at home just use whole wheat flour. But thanks so much for help and support. - Re: New UC Patient - Update newucpat
16 y
4,790
This is a reply to # 1,154,837We had three good days in which he had one bowel movement and very minor blood. Today the fourth day he had two stools in the morning and in the second stool blood came out wrapped in mucous. We have not introduced anything new in food. He is still taking few already tried vegetables and chicken/fish and eggs and kefir. Did you have anybody else who has the similar situation like us. It has been two weeks using this process, along with the meds.
On a bad day usually he has more back pain and stomach cramps. His condition seems that he is down overall. Your posts are a great help. Please advise.- Re: New UC Patient - Update sheldon
16 y
5,254
This is a reply to # 1,156,167Advertisement
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From your recent passed experiences,it is normal to feel down.You should generally find an improvement in the condition as time goes on and with it an uplifting of spirit.Mucus can be part of the healing process.Your sharing posts gives us valuable information.Thank you.
- Re: New UC Patient - Update sheldon
16 y
5,254
- Re: New UC Patient - Update newucpat
16 y
4,820
- Re: New UC Patient - Update sheldon
16 y
4,732
- Re: New UC Patient - Update newucpat
16 y
4,488
- Re: New UC Patient - Update sheldon
16 y
4,858
- Re: New UC Patient - Update newucpat
16 y
4,445
- Re: New UC Patient - Update sheldon
16 y
4,943
- Re: New UC Patient - Update
- Re: New UC Patient - Update newucpat
16 y
4,468
- Re: New UC Patient - Update sheldon
16 y
4,788
- Re: New UC Patient - Update newucpat
16 y
4,531
- Re: New UC Patient - Update sheldon
16 y
4,995
- Re: New UC Patient - Update newucpat
16 y
4,441
- Re: New UC Patient - Update sheldon
16 y
4,878
- Re: New UC Patient - Update newucpat
16 y
4,440
- New UC Patient - Update newucpat
16 y
4,361
- Re: Vitamin K newucpat
16 y
4,573
- Re: Vitamin K sheldon
16 y
4,776
- Vitamin K newucpat
16 y
4,421
- Re: What Happened? sheldon
16 y
5,022
- Re: What Happened? jrcosta
16 y
4,449
- Re: What Happened? sheldon
16 y
5,063
- What Happened? jrcosta
16 y
4,563
- Re: New UC Patient newucpat
16 y
4,444
- Re: New UC Patient sheldon
16 y
4,980
- Re: New UC Patient newucpat
16 y
4,694
- Re: New UC Patient sheldon
16 y
5,160
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