how to cope? 
julie819
16 y
2,409
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hey guys,
i've been on this forum for a little while now. i've been trying not to spend excessive amounts of time on it simply because i know it will make me obsess more. however, i've now had EC for 6 months, and am trying not to lose hope. i really haven't seen very much improvement, and while i know we don't know a cure yet, i want to know what you guys do to get your lips to a level where they are manageable and decent looking
the ronin, i know that you have mentioned before that your lips are doing well and you dont want to try anything new because you dont want to make them worse. how have you gotten them to that point of where you consider them "good" or whatever word you used.
anyone else too, what have you done to make them look semi normal without continuously peeling them (because i think we can all agree that that just leads to more damage and definitely not the cure)?
i am a 20 year old female living at college, and i'm trying to remain patient but i'm not seeing any results from trying to leave them alone, and at this point a cure would be nice but i would even just like them to look semi normal even if i still have a minor case of EC (which several people on here have gotten to).
Julie- Re: how to cope? julie819
16 y
2,377
This is a reply to # 1,102,395i also want to add that i really don't know how to go about even trying to heal them. i got EC because i was obsessed with putting on blistex like ten times a day, then i ended up with an allergic reaction when i tried chapstick once (it has different ingredients), so i stopped using anything and then my lips started cracking, and i picked at the cracks and here i am. i also want to add though that before then i didn't completely leave my lips alone. i would rub them together a lot and do other things (not as harsh as picking and biting, but still)...
i've tried supplements and dieting, but nothing too intense because i'm sort of skeptical- i dont think my problem is internal, although some people think that they are all internal.
sorry if this was long, i'm just a little desperate :(Advertisement
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- Re: how to cope? #64643
16 y
2,370
This is a reply to # 1,102,410To cope i use shea butter it's natural. But its a horrible situation seeing as it affects the mouth and everyone can see. I am still waiting for my vitamin A i ordered, i'll inform everyone how that goes. Does the whole of your lips peel? Does the skin continouly grow? You really have to be strong mentally, you don't want to develop other health problems. I have to put women on hold till i get rid of this, i don't want skin falling off my lips while kissing.
Is yours major noticeable?
I just had to keep it simple when it came to research.
1. my lips are inflammed.
2. the skin keeps growing.
So i looked for things that can handle inflammation. Then look for things that direct how the skin grows. Its the most logical choice for me. The Vit A will dry the lips but i'll be using shea butter with it.
I'm aiming for a permanent cure, i guess i'll find out this week and next. To maintain.. you need a good emollient.
Answer me this... does the skin keep growing? Thats a sign..
- Re: how to cope? julie819
16 y
2,307
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This is a reply to # 1,102,425i do have shea butter, and its works pretty good.
and yes, the skin absolutely keeps growing. it is in a constant cycle of peeling. sometimes it will be doing good, but one part will start peeling and then i might have to peel the entire lips. the entire area of the lips dont peel, just the middle part of my top lip as well as the inside border of my top lip, and the entire bottom lip except for a little bit above the bottom border, and that part has been getting worse too.
i really just dont know what to do anymore, and i just want them to be manageable.- Re: how to cope? #64643
16 y
2,237
This is a reply to # 1,102,451Advertisement
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you've got exactly same scenario my lips have. I thought shea butter makes them manageable? ..the discoloration is what makes it bad for me. When raw my lips are red, which i hate. I have to be patient, i've had this for years. It can be cured though, so remember that.- Re: how to cope? julie819
16 y
2,328
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This is a reply to # 1,102,456if you've had it for years and haven't been able to cure it, then that just makes me worry. i've only had it for 6 months, and the last thing i would want is to have this for the next few years, let alone possibly the rest of my life. i still need to finish college, get a job, find a boyfriend and get married, and i know that this will make everything that much more difficult. i also know that the worse it gets, the harder it will be to heal, so i want to do whatever i can now to try to help them, or just get them to a better stage. and while shea butter is one of the better things i've used on them, it really doesn't make them that much better. and yeah, the discoloration is one of the things that i hate the most too. my lips and skin in general are really super sensitive, so i get that really bad.
i really don't know what to do :( i'm so tired of being a hermit- Re: how to cope? #64643
16 y
2,170
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This is a reply to # 1,102,486don't worry... my lips have been in the same state for many years, no extensive damage to worry about, just growing and peeling.
i can't say anything that can make you feel better but be patient a cure will come. bless.
- Re: how to cope? #76783
16 y
2,316
MoreThis is a reply to # 1,102,493What I used to do was use Chapstick All Natural before I went out. It makes the lips look much better without making your lips look too shiny. It also makes the yellow crusted pieces of skin more unnoticeable. The only problem is that putting on too much or having it on for a longer period of time creates the white slimy stuff sometimes. Since most people despise using chapstick products, I just stopped.
What I do now is I don't even put anything on them at all, only would trim some of the dead skin before I went out. I found out during the first week that I obsess about my lips even more when I am using a moisturizer because it always reminds me its there. The first week without putting anything on, I felt so much better and didn't really obsess about my lips. That's when it ended though, after one week somehow I started obsessing about them again.
I still don't put anything on them now though, if people are going to give you weird looks then that tells you something about them.Advertisement
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- Re: how to cope? #76783
16 y
2,316
- Re: how to cope? #64643
16 y
2,170
- Re: how to cope? julie819
16 y
2,328
- Re: how to cope? #64643
16 y
2,237
- Re: how to cope? julie819
16 y
2,307
- Re: how to cope? #64643
16 y
2,370
- To julie819 The Ronin
16 y
2,359
MoreThis is a reply to # 1,102,395Currently I have a peeling cycle of 4 days BUT during those 4 days my lips look normal. They really don't dry up and if anything only my top lip looks somewhat bad but not noticable. The main thing that bothers me is that slimy white line! I have to be removing it every so often. I think what got it to be in this good state is for me to accept this condition and have a positive mind set! I stopped obsesing about it and tryed to move on! I meet my wife during the time I got EC and till this date she hasen't noticed anything! I even told her about it and she just says Im crazy! Also something that I have noticed that I do differently is not put anything on my lips! I put nothing on it, the only time I put something on it is the night before the peel.
- Re: To julie819 uklad
16 y
2,229
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- Re: To julie819 julie819
16 y
2,314
Lugol’s Iodine Free S&H
J.Crow’s® Lugol’s Iodine Solution. Restore lost reserves.
Hulda Clark Liver Cleanse
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This is a reply to # 1,103,626oh wow, so they must be really good then! I'm glad to hear that you met your wife and had a normal marriage/love life with this condition. I always wonder if I'm going to be able to meet someone who can look past it and love me for who I am despite this condition. I am trying so hard to have a good mindset and not obsess over them. I think that having a positive mindset can really improve them. What do you do to stay positive? Do you limit the amount of time you let yourself look in the mirror? I tried doing that but it's hard. That's interesting too that you don't use anything on them. Lately I can go a few days without putting anything on them, but I don't know if that's good for them or bad for them.- Re: To julie819 The Ronin
16 y
2,258
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This is a reply to # 1,103,903Advertisement
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Uklad:
My cycle last 4 days on the 4th day I have to peel. On day 1 and 2 I can kiss all I want (make out kisses, etc.) On the 3rd day I can just give normal kisses.
julie819:
Yes, this time with EC has been both good and bad. Like yeah it sucks to have EC but at the same time I meet my wife and thats awesome! On a side note I just had my first born yesterday!!!! What do I do to stay positive?? Hmm well I look at other things out there. For example, I look at the tree man (the link was posted here some time ago). It's a guy who has a disease where he is becoming a tree! His hands are like roots and has like wood on his face. Now I would rather have EC than have that! I'd rather have EC than have AIDS, Cancer, etc!! There are people who have WORSE things than we do! So I always think about that. The other day I was in the mall and I saw this girl and she was pretty but I noticed her lips and they were really really chapped! Like extreme chapped! They looked like a piece of lip was missing not only did I notice this but I noticed something perhaps more important than that! I noticed that she looked really happy! She looked like she didn't care about her lips. Her lips looked MUCH MUCH worse than mine and she looked happy! I didn't look at her like less of a girl and I dont think people look at me like that eaither! I have told friends and relatives that I have EC and they always tell me that my lips look fine! So If nobody even notices my lips why should I Die over them! Hmmm I don't really limit myself with the mirror but I used to check myself like 3 times each hour now its like I check myself every other once. Now I don't want to lie I still at times get bumbed out about my EC. I wish I didn't have it BUT I just have to accept that I have a condition and thats how God made me. I will try to post pictures of my lips soon so you can see them.-
Picture Of My Lips The Ronin
16 y
2,367
- Re: Picture Of My Lips readk
16 y
2,248
This is a reply to # 1,104,714They don't look too bad. If you leave them and not peel them does the skin build up quite a bit? After you peel do your lips still feel weird?
- Re: Picture Of My Lips The Ronin
16 y
2,190
This is a reply to # 1,104,721If I leave them it doesn't build up to bad BUT they feel weird like if I have something on them. When I peel they don't feel weird however recently (like the last 3 weeks) when I peel them and I'm in day 1 they feel a bit Hmm I guess iritated or like a very small burning sensation.
- Re: Picture Of My Lips readk
16 y
2,195
This is a reply to # 1,104,726I ordered some vitamin A droplets and I'm going to try the method of mixing it with lotion.
I also found this post on page 1 of the forum.
//www.curezone.org/forums/fm.asp?i=9664
apparently it worked for her.- Re: Picture Of My Lips uklad
16 y
2,421
This is a reply to # 1,104,731Ronin
your lips look great I would be happy if mine looked like that in there worse state.- Re: Picture Of My Lips julie819
16 y
2,693
This is a reply to # 1,104,809Advertisement
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your lips look really good. Seriously, if that is the worse that they get then I am a little jealous. Mine get a lot worse than that. I think that's awesome that you have figured out what works for you (the peeling cycle), and if that's what I have to do then I will do it, but I would really like to do whatever I have to in order to let them heal (even if that means leaving them completely alone and they look bad for a while). However, lately that has not been possible.
to readk:
i really hope that the vitamin A drops work for you. I wonder if they will work for everyone? The poster on that link said that she had a vitamin A deficiency. I'm not sure if I have a deficiency or not. I really don't want to make them worse, so I might just wait.- Re: Picture Of My Lips The Ronin
16 y
2,294
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- Re: Picture Of My Lips julie819
16 y
2,693
- Re: Picture Of My Lips uklad
16 y
2,421
- Re: Picture Of My Lips readk
16 y
2,195
- Re: Picture Of My Lips The Ronin
16 y
2,190
- Re: Picture Of My Lips readk
16 y
2,248
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- Re: To julie819 The Ronin
16 y
2,258
- Re: To julie819 uklad
16 y
2,229
- Re: how to cope? julie819
16 y
2,377
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