• Questions about severe mirena side effects after 1...   Clmorton   6 y  246
  
  

  Questions about severe mirena side effects after 10 years?

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  I am wondering if anyone had mirena for 8-10 years before symptoms started Or even closer to the 5 year Mark?
  
  I have had mirena for 12 years now (multiple mirenas) to control polycystic ovarian syndrome and endometriosis. Both are fairly severe cases with the end on other organs. It has worked great for these issues, but in August I developed
  Shingles and never fully recovered. It is now March and the doctor's have diagnosed me with post herpetic neuralgia, carpal tunnel, Rheumatoid Arthritis , and are testing for ms.
  
  The only concern I have is that the Ana and all of the advanced protein and DNA blood testing the doctors have done show NO signs of any Rheumatoid Arthritis . Even my rheumatologist was shocked and baffled when she got the results of the ultrasound showing ra, she can't explain it herself and doesn't no how it's possible.
  
  My hands are pins and needles all the time, my feet are pins and needles most of the time, I have full body edema despite having RA in only 2 joints in my hands. I get dizzy, have blurred vision and double vision through out the day most days. I haven't been able to work in 3 months. I am using amitriptyline for nerve pain and metheltrexdate for the RA with little improvement in symptoms.
  
  When I saw this site I started researching and reading posts from other mirena users but they all seem to refer to short term use. When I spoke to my doctor she basically dismissed it as i have been using mirena for years and side effects seem to show up much quicker. I reminded her that I also had severe side effects from my estrogen treatment after 10 years of using the same treatment 20 years ago but we ran out of time to discuss and as my go she isn't all that well versed on all of the treatments for treating my end and pcos.
  
  I have had 2 mri's, over 110 different blood tests, seen a neurologist and rheumatologist. I am scheduled for an ekg and ecg this week because they now think I may also have heart troubles due to the edema. It's been a crazy road with tons of tests and no one can explain why.

   
  

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• Mirena hijacks your physiology video   DrJNutrition   6 y  450  † C †
  
  

  Mirena hijacks your physiology video

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  This is a video of how the mirena hijacks your physiology
  
  
  
  https://youtu.be/xSjJbiYfK3M
  
  DrJNutrition@gmail.com

   
  

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• Expand this whole thread (7 messages)
  
  I don't know what to do...   Scared Spitless   6 y  2,336  † C †
  
  

  I don't know what to do...

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  I'm 41, I had skipped a well-check and was overdue for a mammogram when I noticed I had been getting my period twice a month for four months running. I'm used to it being irregular but not consistently regular (late here, early there...) Went in and my horrifying family history took longer that the actual visit with the doctor. I knew I had lost some weight because my clothes were looser but stepping on the scale I was down 17 pounds in just under two months without trying - that DOES NOT HAPPEN FOR ME. Bloodwork, ultrasounds, off to first available OBGYN. Bloodwork showed a couple things but of note was low iron and saturation - take ferrous sulfate once a day. Ate a whole bunch of Christmas cookies and home baked goods and managed to maintain my weight until I met with the OBGYN, or should I say the APRN that was not at the location I requested - over 20 miles away. Why didn't she just prescribe you OC's? I'm over 35 and have family history. Oh, she's covering her butt. She wanted to schedule ultrasounds, I just had them done. Oh, here they are, those are okay. Well we'll do a pap and an endometrial biopsy. Everything is clear, we'll try Progesterone only to regulate you. Didn't want side effects of pills or Depo-Provera. If Depo goes wrong you're screwed for 3 months, IUD can be removed, right? Yeah, it can make you irregular and moody for 3 to 6 months but it shouldn't be worse than what you're going through now and after that it's great. Okay, I'll try. She didn't tell me I could be bleeding in agony for 3 to 6 months, something had to be wrong. I was looking at my records to see when I was supposed to follow up on the ferrous sulfate to see when levels should be checked for dose adjustment or discontinuation - nothing I was diagnosed and released. Didn't want to go back there anyway. Changed PCP and scheduled with a different OBGYN (an MD this time). After two weeks of bleeding and severe cramping I called to move up my insertion check - there had to be something wrong. Got moved to the next available Dr. and when I get there he's family medicine and doesn't do IUD's. I'm in tears so he listens to what I have to say. He's very concerned about the weight loss and skin issues I forgot to tell the first PCP. Orders more blood work, a mammogram, stool sample, urinalysis, chest x-ray, orders me to drink three ensures a day in addition to what I normally eat to see if I could put some weight on (I was down another 9 pounds in just over 2 weeks). Blood work shows I am no longer anemic and my hematocrit is high - schedules me with a hematologist. The chest x-ray shows multiple opacities, he wants a CT scan. Cramping comes and goes but when it comes it's getting worse and I'm passing odd tissue (not red endometrial stuff - clear stuff and fleshy stuff). Now there's brown clots and the cramping feels like the labor pains one step before you ask for the epidural but they are lasting much longer. I bent over to pick something up and seized up - couldn't stand for 30 seconds. I can't take this - there has got to be something wrong so I go to Urgent Care, they don't do imaging and send me to the ER. Before they take me at the ER they tell me they don't remove IUD's. Fine, do you do an ultrasound to check placement? This can't be right. I was there for over 5 hours - no meds, no heating pad, nothing. It was tolerable until after I stood up after the transvaginal. I was curled in a ball in tears. I pushed the button to call the nurse and said look-if it's "properly placed" and you're not going to do anything get me out of here so I can get home to my heating pad. She brought me a warm blanket while my paperwork was done and they sent me home in severe pain. If I wasn't worried about the pre-existing and continued weight loss along with the chest x-ray and hematocrit levels I would consider giving it at least 3 months if they'll prescribe me something for the pain as the ibuprofen is not helping much and even with food my stomach can't take it anymore. With everything else going on I am thinking this thing needs to come out so it doesn't compound or distract from the underlying or additional diagnosis that was missed. I'm thinking I would be crazy to keep this thing in right now.

   
  

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  • You say ”this thing has to come out”. WHAT thing -...   Dquixote1217   6 y  2,295
    
    

    This is a reply to # 2,404,843

    You say ”this thing has to come out”. WHAT thing - the IUD? Why not take it out and see if it makes a difference. BTW, mammograms are a scam for the most part - they do not prevent cancer, they ....

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    You say "this thing has to come out". WHAT thing - the IUD? Why not take it out and see if it makes a difference.
    
    BTW, mammograms are a scam for the most part - they do not prevent cancer, they just find it after you already have it. AND they can indeed cause cancer.
    
    

     
    

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  • Have you ever in your life used hormonal birth pre...   White Shark   6 y  2,252
    
    

    This is a reply to # 2,404,843

    Have you ever in your life used hormonal birth prevention for a long time ?

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    Have you ever in your life used hormonal birth prevention for a long time ?
    
    Longer than 3-6 months ?
    
    How long ?
    
    What kind ?
    
    What about using any other artificial hormones ?
    Any other medications ?
    
    Antibiotics ?
    
    
    EDIT: I see now you posted your question into Mirena forum.
    
    Yes, it is very likely that Mirena has something to do with your problems.
    
    
    WS
    
    
    

     
    

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  • Re: I don't know what to do...   joegrane   6 y  2,283
    
    

    This is a reply to # 2,404,843

    Re: I don't know what to do...

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    Telling us more about your symptoms probably would provide clues--mood, fatigue/energy, immune system, gut issues, changes in intellectual abilities, dizziness and weakness vs athleticism, food sensitivities , etc.
    
    So may systems in the body are related, especially when you know hormones are involved.
    
    For example, Functional Medicine tries to connect the dots. If your mainstream docs can't get to the bottom of it, a FM doc may be able to do so.
    
    https://www.ifm.org/functional-medicine/
    
    For example, WHY are you iron low? This may provide leads.
    https://www.wellnessresources.com/news/stunning-discoveries-regarding-iron-obesity-candida-thyroid
    
    If your IUD contains copper, learn about copper toxicity. I've seen a few reports of that over the years with IUD.
    
    There is so much more that could be discussed. There is no reason to give up hope.

     
    

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  • An IUD has side effects that may or may not be not...   Clara88   6 y  2,148
    
    

    This is a reply to # 2,404,843

    An IUD has side effects that may or may not be noticed because you are already dealing with another issue. Get it out and find someone (a naturopath, an MD, etc.) who can help you deal with what y ....

    An IUD has side effects that may or may not be noticed because you are already dealing with another issue. Get it out and find someone (a naturopath, an MD, etc.) who can help you deal with what you are already dealing with.

     
    

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• Mirena side effects-high BP, anxiety, heart attack...   MirenaX   6 y  398  † C †
  
  

  Mirena side effects-high BP, anxiety, heart attack symptoms, palpitations.

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  I had the mirena last week and since then almost every day I have had heart palpitations, very high bp(normal bp prior to mirena was alsways on the low side) jittery and sinking feeling like I would pass out, numbness on left side etc. went to the doctor today and was told that body takes time to adjust. Came home and started to have high bp which kept on going up and down, then it went up to 170 /90 and I started sweating profusely and the heart was like about to come out of my chest as it was beating very hard. Vision started to blur and hearing also got impacted. Had to call 911. Went to ER and I knew that it was the Mirena because I usually have very low bp 99/55 and just told the ER Doc to take it out.
  
  It has just been hrs but bp is back to normal, no anxiety attack or numbness feeling so far :0 . I just had it for 7 days -nightmarish days!!

   
  

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• Mirena, intracranial hypertension, and B vitamins   meadowlark86   6 y  388
  
  

  Mirena, intracranial hypertension, and B vitamins

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  An interesting read--pretty technical, but it makes some sense out of a lot of the symptoms people report here and also argues that there's a link to issues with B-vitamins, which at least some of us seem to have experienced.
  
  https://www.hormonesmatter.com/astronauts-iuds-intracranial-hypertension-pseudotumor-cerebri/

   
  

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• Expand this whole thread (3 messages)
  
  Mirena Causes GI Health Issues   BPATEL   7 y  1,389  † C †
  
  

  Mirena Causes GI Health Issues

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  Thank God I came a cross to this website. I was experiencing these same symptoms since I had inserted mirena. Within 90 days of insertion of mirena, I started having constipation, acid reflux, bloating, belching, anxiety, dizziness, and fatigue. I had been going to my GI doctor and having all types of tests to rule out all possible GI related diseases. All tests results were negative. I went back to my GYN and talked to her about having all these symptoms right after I had mirena inserted. My GYN did not believe me and talked me out of it and said my GI issue is not related to mirena and I should not remove it. I still did not agree with my doctor and continued searching for the cause. I came across this website and I am 100% sure now by reading other people's experiences that mirena is the cause of these GI problems. I have set up an appointment with my GYN to remove my mirena next week. Hopefully I will recover from all the symptoms that I am having right now. I have had my mirena for two years now. If you know please let me know how long it will take to recover from these symptoms after the removal of mirena.

   
  

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  • What I am about to say to you is a fact a hard sol...   RONNIE ERROL   7 y  1,430
    
    

    This is a reply to # 2,394,238

    What I am about to say to you is a fact a hard solid fact that is being hidden from the American public about an organization so sinister and so evil that it boggles the mind. MDs themselves do no ....

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    What I am about to say to you is a fact a hard solid fact that is being hidden from the American public about an organization so sinister and so evil that it boggles the mind. MDs themselves do not consider them selves to be evil because they have been brain washed and had their minds controlled the entire time they were in Med school but the medical crimes cartel itself is evil and is the number one cause of death and disease in this nation. In case you did not understand I will repeat it. The number one cause of death and disease is a medical doctor, a member of the medical mafia usually totally unaware that he or she is a killer. The people behind this industry are the drug cartels backed by big banking and other interests such as the Rothschilds, the only trillionaires on the planet.

     
    

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  • There are thousands of complaints about this devic...   RONNIE ERROL   7 y  1,412
    
    

    This is a reply to # 2,394,238

    There are thousands of complaints about this device and 1300 cases were tossed out by a judge. It appears the drug companies have set up safe guards with the law to where many people can die and ....

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    There are thousands of complaints about this device and 1300 cases were tossed out by a judge. It appears the drug companies have set up safe guards with the law to where many people can die and suffer needlessly and the drug company that makes this suffers little to no losses. Drug companies and doctors are killers and they can get away with many many deaths before a drug or device like this quackery can be pulled.The cards are stacked against the users and everything is in favor of the sellers. The Fraud and Deception association allows this kind of garbage to be put on the market because they know that when they finish working for the drug companies with the FDA there will be a great paying job waiting for them at the drug companies where they can continue to murder the population.

     
    

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• Expand this whole thread (2 messages)
  
  Mirena Pregnancy?   #227267   7 y  920  † C †
  
  

  Mirena Pregnancy?

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  I cannot believe I am on a forum asking about this but I currently do not have health insurance and I am extremely concerned that I might be pregnant with Mirena in place. I got the IUD in 7/2016. I have had a normal cycle every month up until 8/2017. I have gone a full four months without a cycle. I have only experienced bleeding one time since August and it is now December. The bleeding only occurred two times post intercourse with my S/O. The bleeding began about 1 hour later and only lasted for a few minutes however it was pretty heavy. This bleeding occurred in November. I have been in a monogamous relationship for 2 years so STI is not a concern. Since that incident, I have been extremely exhausted, depressed, gaining weight, breaking out in blemishes on my face, neck, chest and shoulders, I have been woken up due to being nauseated, I have been having insanely vivid dreams and my breast have been so sore and swollen that I cannot sleep well or even walk without wearing the maximum support for a bra without being in pain. I have taken 3 HPT and all of them have been negative. Recently just had a bought of crying for absolutely no reason and all I seem to have energy for is sleeping. This is super unlike me. I typically sleep about 6 hours a night and I am always very active as I am a marathoner and a bikini competitor.

   
  

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  • It’s completely normal to lose your period after a...   meadowlark86   7 y  903
    
    

    This is a reply to # 2,394,028

    It’s completely normal to lose your period after awhile if you have a Mirena. (After several months on the Mirena, I would have only light spotting every six weeks or so, never a normal period.) I ....

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    It's completely normal to lose your period after awhile if you have a Mirena. (After several months on the Mirena, I would have only light spotting every six weeks or so, never a normal period.) If the pregnancy tests have all been negative, then you are probably not pregnant. It sounds like you are experiencing side effects of Mirena messing up your hormones, which happened to a lot of women who have posted on this forum. My advice would be to have it removed and use another method of birth control, ideally something non-hormonal, and see if you feel any better. It can take months for your body to go back to normal, though.

     
    

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• Mirena please get out my nightmare   Mel123au   7 y  361  † C †
  
  

  Mirena please get out my nightmare

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  Yesterday i went to get my mirena removed the gyno cant find the strings isnt sure where it is but my problem is for a while ive also been having pains under my ribs on the right side..... i put it down to my gal bladder being removed..... havnt had the ultrasound to see where it is yet but im worried that the sharp pains might be where this bloody morena is has anyone else had it go that far up into your body or am i worring to much i know im in for an operation no matter what way it goes

   
  

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