FOr anyone interested http://www.lymenet.org
is the most comprehensive site and message board to learn about lyme. I have had it 2 times and recovered...my children have had it multiple times, my horses, husband and dog.
Yes it is extremely difficult to find a good llmd (lyme literate md). It is also a hotbed of controversy about diagnosis and treatment so finding a llmd is MOST important.
We take our children from PA to New Haven to see a pediatric specialist 4 times a year just to get treatment.
The lymenet web site has a big list of good doctors for all states so its a good place to start. It also goes into co-infections, treatment options, both natural and pharma.