Can anyone help with Friedreich's Ataxia?

Hi Sarah!

I'm sorry to hear that you or one of your loved ones has FA. I'm posting a link to the MDA fact sheet on FA. You may already be familiar with it. Others who come here may not know about FA. It is good to know about each other's difficulties so we can help each other.

http://www.mda.org.au/specific/mdafa.html

People on this site believe that there are no incurable diseases. I do not know anyone personally with FA who has been cured or helped in  any way. However, I am one of those people who believe that God has an answer for every disease, and I am trying to find it.

I invite you to read through all of the posts on this forum, at your leisure. They are mostly my experiences with trying to find the cure for FSHD. I have done a lot of research on alternative treatments for MD, and I am at the point of putting together a plan for people to experiment with.  I am also toying with the idea of a non-profit to help pay for supplements for those under the MDA umbrella.

You will especially enjoy the testimonies of Ryan Levinson, an Olympic cyclist with FSHD and Kathleen Hanson, whose grandson Aaron has DuchenneMD. Aaron has been responding very well to vitamins and other supplements and has shown no regression in the past 17 months.

Sarah, I am going to say that, yes, there is a cure for FA.  We just haven't found it yet.

Many blessings,

Donna